Mysticbrit (Nancy)

Discussion in 'Chit Chat' started by fight4acure, Mar 9, 2010.

  1. fight4acure

    fight4acure Member

    Do you know of any good psychiatrist in this area who knows about FMS and CFS that I might be able to talk with? I'm having a hard time and need a professional to help me out right now.

    Fight :)
  2. mysticbrit

    mysticbrit New Member

    I DO know a great woman but due to a major case of fibro fog I can only remember her first name. I went to her for awhile and she really helped me. One thing, if you need medication she'll have to refer you to another dr. in her group as she doesn't perscribe. But, I loved her.

    I'll go thru the phone book and pray that one of the names jogs my clogged brain.

    Hang in there. I'll get back to you ASAP.

    Sending you healing hugs.

  3. victoria

    victoria New Member

    hope you find somebody you can talk to!

    You're in my prayers....

  4. mysticbrit

    mysticbrit New Member

    I just told my hubby about your post and he couldn't remember her last name either. What a pair we are.

    But, he grabbed the phone book and found it immediately.

    Her name is Elisabeth (Betty) Magnus, 636 Park Ave., 365-4313. She also sees patients in Janesville if that works better for you.

    I didn't see her specifically for my FM but she does have a number of patients with it that she helps.

    I don't know what type of insurance she accepts. When I was seeing her I was covered under hubby's. Unfortunatly now my Medicare doesn't cover enough of the cost for me to see her anymore. Believe me, if it did I'd be parked on her doorstep.

    Hope this works for you. I'm so sorry things aren't going well for you right now. As Victoria said, you are in my prayers.


  5. butterflydream

    butterflydream New Member

    I hope you can find the good care you are searching for.

    So sorry to hear you are having such a hard time.
    Fight i hope all eases for you very soon.

    Gentle Hugs
  6. fight4acure

    fight4acure Member

    Thank you!


    My "state" insurance only covers psychiatrists, not psychologists or counselors. I know, stupid insurance, but at least it is something for me as I cannot afford anything.

    Thank you! I will get into touch with her and see what she can do to help, or at least see if she has any referals of psychiatrists.

    (((((((((((((Hugs to you all)))))))))))) Thank you for your prayers. It means a lot!

    Nancy, don't you love this weather? We can get that nasty white/gray frozen tundra out of here by the end of next week I hope!

    Fight :)
  7. mysticbrit

    mysticbrit New Member


    Yes, I'm loving our warm up. Every day a little more of our driveway becomes visable. We have someone come and shovel it for us and he basically just does the width of the garage door. That means when hubby and I both want to go somewhere he has to back the van out, then reposition it so I can get in on the passenger side without climbing thru a snow bank. What fun it is living here.

    I DO hope Betty can either help you or refer you to someone who can. She is a wonderful person who I felt comfortable with from the first appt. I wish I could still see her.

    Is there anything we can help you with here? You know we'll give it our best shot.

    Loving hugs,
  8. fight4acure

    fight4acure Member

    Thank you!

    I've been under enormous amounts of stress and fatigue and pain.

    I don't have a place to live yet. And with that comes a lot of people trying to decide my life out for me.

    My bestfriend(s) have been mostly unavailable to me... and when they are, they help a little bit here and there, but not as much as I need right now, and I don't need much.

    Family has been half-way supportive, but then its back to the crap that I don't feel I should have to deal with right now, but it is continuously dealt to me, regardless.

    Nothing I do will gain their support. Nothing I do is right. Nothing I say is right.

    Then the emotionally distant, so-called "best" friends and unsupportive family members shove advice down my throat instead of listening to me. IS EVERYONE IN MY "NON-INTERNET" LIFE DEAF????

    It is sad that people do not value friendship.

    It is sad when family members that I barrow from are fed up with my not being able to work, and calling me names that I don't want to rehash on here. No matter what I say or do, nothing will gain their support. I'm lazy and not wanting to work, according to some.

    I am sad to say that I envy those who have family who learn to understand this illness and how it literally rap*s our lives. I am glad there are some out there that understand and care. I'm sorry for those who are going through the same crapola that I'm going through on a daily basis.

    Reading my medical files is overwhelming, on top of having to move to who knows where! Many doctors have wrote biased, non-scientific assumptions in my files that INFURIATES ME TO NO END!!!!!!!!!!!!!!!!!

    I'm having to face the fact that the trip down to Nashville was good, as one day I felt limited pain, but that was the day I was taking extra meds and sleeping for 20 hours, so go figure. I'm facing the fact that Disability is inevitable. It hurts me to no end to have to file for disability, especially because "some" of my friends and family do not believe I have a disability. Most think that I'm lazy or that I don't have a real illness.

    I cannot count how many days I've stayed home when I wanted to be out-and-about. It is probably 80% of the year of being homebound. The other 20% is me trying to be normal, trying to have some fun, despite the horrible fatigue and pain.

    I wish I could run away to some island and never come back.

    I'm just tired of people, family, friends and doctors/nurses, judging me so wrongly and not caring to understand that I'm seriously ill.

    Fight :) (I smile because I can, but sadness is eroding my heart.)
    [This Message was Edited on 03/14/2010]
  9. HeavenlyRN

    HeavenlyRN New Member

    ....oh, I feel for you and know what you are going through.

    Sometime I feel as though the emotional hurt is worse than the physical pain. My husband became ill a little over 3 years ago. He had his own cabinet making business and did beautiful work. After many doctors and many tests, he was finally diagnosed with Cushings Disease (only AFTER I asked the endocrinologist to check for it!). He has tumors on his pituitary gland and one of his adrenal glands. He has been told - by the specialist we finally saw in Pittsburgh 0 (we live in western NY) that he essentially has to get worse before he can get better. In other words, one of the tumors has to get big enough so that the lab work will tell them which tumor is causing the problems.

    Now, here's a surprise: he doesn't LOOK sick! Hmmmm.....where have we all heard THAT before?!

    My family just doesn't get it. They feel that he should be out working. He has applied for SSDI and we're still waiting to hear the judge's decision.

    People in my family just don't do things like applying for social security disability. It's just never been done. Of course, people in my family don't get depressed either! If my family only knew the number of antidepressants I have been on over the years......!

    Now, I've been out of work on short term disability since December 23rd. What started out as severe back pain and a horrible fibro flare (the worst I have ever had) has now turned into a potentially cancerous tumor in my kidney that I am having removed on April 8th.

    Again, my family just doesn't get it. I don't look sick! My siblings live out of town and don't really seem to care. I had to call them after I saw the oncologist because the type of tumor I have on my kidney is potentially inherited (my mother had a kidney removed several years ago due to cancer) and the do thought that my siblings should be tested. I've told both of them but have had very little feed back.

    My husband and I had to apply for heating assistance and food stamps last week. Oh....that's another thing people in my family don't do. Will I ever tell anyone in my family? No way!

    My parents live here and they only know about one of the 4 times I have been in the emergency room sine the beginning of December.

    Boy oh boy I'm blathering on, but I must say it feels good.

    I have been so hurt by my family's reactions - or lack thereof - to my husband's situation and mine. It has also upset my husband quite a bit, but as he has said, "if they don't want to take the time to understand our situation, then scr*w it."

    My family was very supportive to me when my first husband and I split up. My dad has always been financially supportive. Now I think I'm beginning to pay for that. I love my dad very much, but I feel as though he is trying to run my life now. Obviously he is concerned about how my husband and I are doing financially (not well at all) but sometimes it gets a little too personal, as if my personal, health and financial troubles will somehow reflect poorly on him.

    Geez, I've never said that outloud or even written that before. It just came to me now as I was typing my little heart out.

    Guess I'm feeling a little sorry for myself right now. I love coming to this site and being able to spill my guts like this. I know that I won't be judged for what I say or how I feel.

    Thank you to everyone here for taking the time to reply to other people's concerns in a non-judgmental and loving way. It's like a breath of fresh air when I come here.
  10. FibroFay

    FibroFay New Member

    Just wanted to say we all love you here.

    Wish there were some way I could help. I believe you will work through all this, but I can see it's so hard for you.

    Praying things will get better for you soon.

  11. fight4acure

    fight4acure Member

    Sorry to hear that you've been through lots of stress too. I began to cry after reading these two posts, yours and FibroFay's. Why are people judged so much, so wrongly, when they do not deserve it?

    I've been sleeping anywhere from 10 - 11 1/2 hours a day. When I wake up, I can hardly get out of bed, and it takes me a good 15 minutes or more, (if I don't go back to sleep), to get out of bed. The worst pain is in my lower back. When I finally get out of bed to go to the bathroom, walking down the stairs takes me a good few minutes. Then going to the bathroom hurts me. I've been telling the docs for years that I keep on having UTI's and they should check out my kidneys, but none of them even bother to write it in any doc reports, let alone think that maybe I should have them checked out. So, my fear isn't even addressed, even when I go to the doc and have UTI's, and tell them I have a UTI before they even test me.

    My mother is helping me to file for SSDI, so I have some help from her, so I am thankful for that. She looked at all of my med records and said to me that she's really sorry for telling me that I was a hypochondriac and telling others that as well. She tells me I'm far worse off than she is and was when she filed SSDI. I told her, "That's okay, I said the same thing about you." Right away she didn't say anything more, because she is one to worry about health problems she doesn't have any symptoms to. And she pulled a few stunts, having the whole family worry, when it was all to get out of work.

    It takes my body several hours for the meds to kick in so that my mid-to-lower back stops hurting so gol dang much after waking up. I've had several symptoms of kidney disease but the docs don't want to look into it, afraid of what they might find, maybe?

    I've had many problems that aren't FMS/CFS related, but they won't look into it. They might be FMS and CFS, but it might be the more "severe" form, as if there's a less severe form.

    It literally feels like my body is dying... but if I tell others this, everyone thinks I'm just saying that because I cannot "tollerate" pain and a little fatigue.

    I've told my friends in the past that I won't make it to age 40 if they keep on ignoring other symptoms I'm having all of the time. Of course, it makes it harder for them to believe how bad off I am. Go figure.

    My general family blames me as the reason they do not think I'm ill. I'm so fed up with this all.

    A relative of mine who has family gatherings and won't invite me out there, says to my relative that she's hearing and seeing things that in her mind are real, but everyone knows that she's losing her mind. She's blaming a family member (another person she's ousted and judged) who lives in Texas, of coming up and harassing her by knocking on her door and scaring her to death at night. She's been mean to me for years, and she says I can work and am not ill. All I can say is that pure Karma is finally happening to her life after all of this time. Now no one believes HER!!! And they're afraid to do anything for this ongoing-somewhat new illness of hers, because of how judgmental she is and how she likes to control everything, and because she's finally lost her mind completely. I don't feel one bit sorry. I've waited for Karma to finally get to her. Too bad it took this long! I know that sounds evil, but it wouldn't if you understood all I had been through with her. She's accused others of trying to poison her before, but this is completely losing it. I told my relative that they should spend more time with her because some will lose their minds before dying and maybe its people in "heaven" knocking on her door. Of course I wasn't really thinking it was heaven. I've seen this happen to people who were about to die, as I've worked as a hospice volunteer for a few years. But of course, "I" don't know anything... as this relative is not taking my explanation seriously.

    I've got so much on my plate right now, and my health is number one. Too bad others cannot see what my mother now sees going on with my health. My mother got so mad at some of the stupid docs and the stupid crapola they wrote on my medical reports. I told her that I cannot bare to look at the reports without my blood pressure rising and getting all upset all over again.

    I'm finally getting to the dentist this week, so that's a positive note.

    Once I get on disability, I will be so tempted to move to Nashville or Hawaii to get the heck away from my family and halfway-supportive friends. Then when they talk about me behind my back, it will be a faint whisper in the air that will flow away with the wind.

    Thank you for the replies, and thank you for the hugs and prayers! I've been praying a lot and do not know if God is hearing me or not anymore.

    Fight :)
    [This Message was Edited on 03/14/2010]
  12. FibroFay

    FibroFay New Member

    Keep on praying. I firmly believe God is hearing your prayers. In his time he will answer.

    My heart hurts for you. I'm wondering if, once you get your disability, your family will indeed see things differently. Maybe they will accept your illness when they see that S.S. even accepts your illness as disabling. Everyone knows that S.S. makes absolutely certain you are disabled before they give you your benefits. So, this may be what convinces your relatives.

    I'm so glad your mother is helping you and is your ally. It's good for you to understand each other this way. It makes the bond between you stronger.

    I understand about your pain. Mine is about the same, and my meds. don't help very much. This is the most frustrating dd there is! Maybe a hot tub bath would help you, but there are no guarantees of course. The only thing that really helps me is sweet sleep. The deep refreshing kind. Elusive as it is!

    Fight, this is just a thought. I wonder if you posted about your possible kidney problems, etc. on the medical board along with the fact that the doctors don't take you seriously, maybe someone there would have ideas about how to get the doctors to pay you serious attention! It's just a thought. You do whatever you think is best. I just think there are some real "street-wise patients" on that board who maybe can tell you the best way to approach this.

    This is NOT all in your head. Nor are you making up illnesses for attention. None of that stuff. You have issues that need to be addressed.

    As for the unkind distant relatives, etc. This is the internet. Tell the whole world what jerks they are!! LOL! (of course don't mention any names)...It sure can help relieve some of that pent up anger you are feeling.

    Fight on :) You've got the right user name. You are a very tough lady. That's a compliment.

    When you are feeling up to it once again, and please take all the time you need, I hope you can join us on the Loungers thread.

    You are in my prayers.

  13. fight4acure

    fight4acure Member

    What a really kind and generous post! Thank you so much for understanding and helping me in this currently "hopeless" situation. I have a doctor's appt this week as well as the dental appt, so I will have him check my urine for proteins again... which happens every time I have a UTI. I have to have a strong, but stern, yet decent talk with him. It is hard to get through to him, as the last time when I told him something, he treated me like I was just fine, for example, I broke my toe last summer, and I told him that at times my toe gets really cold and won't warm up with the rest of my body, and that I think there is poor circulation in it at times. He stupidly took the stethiscope to my ankle and told me there is good circulation there as he can hear my pulse in my ankle.

    Sometimes I wonder how smart one has to be to be a doctor. And, when they miss other things, they blame it on us not telling them or being persistent. I had one doctor write that she has no idea why I wanted certain tests done, yet she never bothered to listen to me when I asked for them, as to why they are important, because there were levels in my blood that were beyond normal since the last complete blood test I had. Another doctor was so stupid that she wrote, "She did not complain about Fibromyalgia in today's visit." Um... what a dummy she is. They don't do anything for me or listen to me when I do, so why should I tell them every single time how severe my pain is. Wouldn't they know this by the amount of meds I'm on???? Wouldn't they know this by my medical history???? She never asked me if I had pains with FMS today. I really think that most doctors are idiots and that when they have biases against things like CFS and FMS, their attitude strongly shows in their reports, as well as the way that they treat me or don't treat me. I'm not violent, but I cannot tell you how many times I've wanted to be, to shake these doctors up until they understand that I'm a real human being suffering a whole lots with these illnesses, and that it is not professional to put in their own biases versus putting in scientific results and answers and emploring treatment plans that actually work. I'm so infuriated with these doctors. Another stupid comment from my current doctor is that I hurt only with physical activity like shoveling. BS!!!!! I get so angry with these lies they keep putting in there, trying to make it sound like I just have minor pains most of the time. Why???? Is it so that they get a good record of having pain taken care of properly with patients in the clinic????

    Thanks! Filing for disability is the hardest thing I've ever had to do. I've been fighting the idea since I became ill in 1998.

    I shall keep praying.

    Fight :)

    [This Message was Edited on 03/14/2010]
  14. fight4acure

    fight4acure Member

    I'll be praying for you, too. I hope that all is okay and that treatment helps. Thank you for opening up to me and being brave to share this all with me.

    Fight :)
  15. butterflydream

    butterflydream New Member

    Fight you do have alot of happenings. Too much for one to take on all at once.
    Possibly try to focus on what area needs your attention for now. if it's you applying for disability, focus with that. You must have your doctors agreeing to your disability.
    Speak to your doctor under the terms of you applying and see what is reaction is, does he support your claim? If you are uncomfortable with your doctor not understanding your medical needs, fire him and move on. There are other doctors, he's not the only one. THere is nothing wrong with other doctor opinions and such. People hire and fire doctors more than one would think. Good thing you did ask for your records to review your doctors written statements of your past appointments. Now, i would confront your doc to any dictations you feel are incorrect and get this straightened out. Good communication with your doctor is one of the most important of many. You need his support/approval for a better disability documentation. There are near 3 million people per year applying for this and SS is tough when deciding approvals. documentation is what you will need.

    If and when you are approved, i sure hope you can relocate. Seems to be much negative family support and you don't need this. I really don't think the family support will change much from what all you have described. I wish you the best in all and fight for now, try and focus on one area that you need to do. You can't please your friends and family when they have doubts. That's not what friends and family are truely about. Move forward to a better direction for you.

    I pray all eases for you soon. Too much stress is no good. Think positive, better days ahead.

  16. fight4acure

    fight4acure Member

    My prayers were answered! I cannot believe it all!

    You all must have helped through your prayers! 3 prayers got answered today!

    Got 3 teeth fixed which was causing such extreme migraines, esp. the one that had to get a root canal done. It hurts still, but the severity of the migraines is so far less!!! I cannot believe how my teeth affected my head so severely that I felt like I was dying. And cannot believe how I got such relief after he filled the cavities, even with a slight headache from the aching tooth that had a rootcanal done. It's hardly as painful as it was before. So no more SEVERE MIGRAINES, yet anyways. Whew! (I still have one root canal to be done on another tooth, but that one isn't causing me pain yet. My old filling are falling apart after much wear and tear.

    Prayer #2, I got a call from this psychiatrist, and she got me in after there was a cancellation, last minute. Otherwise I would've had to wait until May to get in. She is really understanding and compassionate, plus she knows all about Fibromyalgia and it's complications. I was hoping to find a psychiatrist that knew all about this illness, and my prayers were answered! She prescribed some Wellbutrin for me, and I just started taking it tonight, so I don't know if it's working yet, but hope it will. I don't know if I feel more relaxed from it or from spilling out my life to the psychiatrist, or maybe both? But I'm so glad I got the nerve to finally go and not keep stuff back anymore.

    Prayer #3, I found a place to move in and I just love it! Lots of space for all of my furniture! It feels too good to be true! I can place all of my furniture in it already. The landlord is a great guy as well!

    Thank you for responding to my spilling out of my stress in my life. I really appreciate it, especially since I haven't been here much for others lately with all that has been happening. Your prayers have really helped!

    (Butterfly - Yep, you already guessed my plan in talking with my doctor. How'd you know what I was planning? Do you have a crystal ball or something? :) )

    Thank you all for your help and prayers! I hope good Karma is sent your ways and that your prayers are answered. Thanks for listening!

    Fight :)
  17. victoria

    victoria New Member

    I am so happy for you!
    ... hope you can get some peace and rest now,
    and hope the Wellbutrin works quickly for you!
    (Some do kick in quickly for some people.)

    Been watching your posts, you've been in many people's thoughts/prayers, I think!

    take care,

  18. butterflydream

    butterflydream New Member

    oh how funny fight, no i don't have a crystal ball. i felt all your frustrations in your posts.

    This is all such Wonderful Perfect Karma !!!
    Take a deep breath Fight, You can breath again !!!!!

    Hey fight, you may see a decrease in your smoking with the wellbutrin. Wellbutrin has been known to decrease the ole tobacco urge.

    I am so very Happy for you Fight !!!!
    I will continue to pray for you

    Go , Fight, Win (you won) i just had to throw that one in here. I am just so happy for you!!!!!!!!!!!

    Always Remember Fight, Miracles do happen.

    Hugs and Prayers
  19. fight4acure

    fight4acure Member

    I swear that Butterfly has a crystal ball. Did the pengys give it to her? Darn them Pengys!!! I thought they were at your house taking a break before my BIG MOVE!

    Butterfly thinks like I do! Thanks for thinking of me, you all!, and too bad I've been so selfish of my time here, but hopefully when things settle down, I can be as supportive as you have all been to me!

    I was so afraid to tell the psychiatrist how it feels to live with this every single second of every day. I was afraid I'd be locked in the same padded room as were the pengys. But after I opened up the flood gates, I realized how understanding and helpful the psychiatrist is and will be for me. Thank God for psychiatrists who know about FMS! Most I called did not know what the initials even stood for.

    Thanks for your prayers!

    Madusa (not my real name) :)
  20. fight4acure

    fight4acure Member

    Butterfly inside the crystal ball
    How beautiful she is
    I wonder now if I should call
    for answers in the bubbling fizz

    Miracles may happen
    No matter time or day
    Just remember to listen
    And pray every day

    Go, Fight and Win
    You made the choice
    Go, Fight and Win
    And then Rejoyce!
    Go, Fight and Win
    No matter rain or Shine
    Go, Fight and Win
    And Remember to Aim High!

    Yours truly,
    Fight4acure! :)