mzroper

Discussion in 'Fibromyalgia Main Forum' started by mzroper, Sep 10, 2003.

  1. mzroper

    mzroper New Member

    One of my daughters was diagnosed with FM & CFS several years ago. Nothing her doctor tries has helped her with any of the many sympotms. Her last test for thyroid said nothing was wrong, yet he put her on meds for that. Now her hair is comming out by the handfulls. As all of you know when you are in that "fog" you just do what you are told and attempt to get through the day thinking the Dr. knows what he/she is doing.
    Dr ordered exray on daughters back (between her shoulder blades) however the teck exrayed her neck at her hair line. Of course the results showed nothing wrong. Her constant pain is between her shoulders!
    Something else is going on here, but with no insurance except from her Native American Tribe, she has about given up on ever feeling better or getting the help she deserves. Any suggestions on how to get it across to her Dr that she needs correct answers? mzroper@yahoo.com
  2. j9miller

    j9miller New Member

    Welcome! So sorry you are having to come here under such circumstances. I know how hard this is for you and how miserable your daughter is. I too suffer from FM as well as MANY other illness'. First things first. At the top of the messages there is a thing that says CFS & FMS Patients Guide. Click on that and order yourself several copies. They are free and it will help you answer a few questions.

    The next step is going with your daughter to her drs visits. Her dr needs to know how much pain she is in and that she NEEDS treatment now!!! There are hospitals out there that treat people w/out insurance as well as drs but it will take work finding them. You must be proactive. This illness takes work to be treated and treated right. It does not sound fair but when you finally find the right dr it will have been worth it all.

    This site is wonderful for support and info. Read, read and read some more. Ask lots of questions. The board moves fast sometimes so please do not think you are being ignored. Just keep reading and posting!!

    Janine
  3. mzroper

    mzroper New Member

    Thanks Jenine, I am scared for my daughter. She has been ready to give up if you know what I mean. I keep trying to incourage her to keep seeking help. She forces herself to work because she lost her husband and home due to her ilness. As a result she needs to work to support herself. Her weight gain (over 60#)also makes her angry. She eats such a little food I don't know how she has any energy. The less she eats the more weight she gains. She tried eating just sweets yesterday and felt so good. Knowing that isn't good for her she dosen't do that often. Diabetes runs in our family.
    Daughter tried to get Medicade but earns to much money @ six dollars an hour? Said she would rather starve or die than go back to welefare people and be embarrased and harassed by them. I have put these sites on her computer and urge her to read and read more. Thanks, mz
  4. j9miller

    j9miller New Member

    I understand all to well what she is going through. I am blessed however with a dear husband and two lovely daughters (14 & 12) and that does make it easier. Please let her know that giving up is not the answer either. Have her come to this site and see that she not alone. She has to fight this illness it is horrible and it does take so much from you but you can get the upper hand.

    Janine
  5. mzroper

    mzroper New Member

    Thanks and I sure will keep talking with daughter. A question tho. Are Dr's of ostapathy as capeable of a good diagnosis as Medical Dr's? Hers is the DO and is on vacation more than in her office. I have no use for anybody who dosen't do their jobs, especially Dr's. This office is for Tribal members and their families only. The Dr. is also Native American like my daughter. Can't this Dr at least send my daughter to a specialist? Must she beg to see someone else? I threatened to sue that Dr. just told my daughter that tho, thank goodness. mz
  6. j9miller

    j9miller New Member

    I have never seen a DO. I use a primary care dr, a rheumatologist, a pain specialist, and a chiropracter. The best is my pain specialist and then my primary. My chiro is sweet and the rheumy is nice but just gives me meds and says see you next month. If your daughter can get into a pain clinic that would help ALOT.

    Janine
  7. mzroper

    mzroper New Member

    I agree with a pain clinic however ours here in Cadillac MI is being investigated for over perscribing pain meds. Can you believe that? People in pain need help to cope. And I thought that was why a medical doctor runs this clinic. I will keep in touch and thanks. mz

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