naltrexone ??????

Discussion in 'Fibromyalgia Main Forum' started by cmt49829, Apr 20, 2009.

  1. cmt49829

    cmt49829 New Member

    I got an email form a friend who sent me a lengthy article about naltrexone.
    anyone heard of this or tired it?

    here is a web page with a good article about it..

    http://www.webmd.com/fibromyalgia/news/20090417/naltrexone-may-ease-fibromyalgia-symptoms?src=RSS_PUBLIC

    Im not sure how to make this into alink on this site, but you can copy and paste this url into your browser.
  2. hensue

    hensue New Member

    My understanding it is not approved for us yet and it seems that the people that did respond that it was not a cure all but it helps a lot.
    So I would love to try it.
    it is LDN that is for low dose naltrexone.
    I did read somewhere a dR in ny city a Dr Bihari an attending physician gives this to people. Do not quote me on that.
    I was going to call today 212-929-4196.
    google his name maybe it will come up. There was one response I read where someone could not take it. From what I understand an old drug with little side affects.
    You cannot take opiods while you are on it. One i read these are more with people that are so tired they cannot function. One person is function knows when to rest and can walk 2 miles Hello!
    So if you find out anything post ok.
    Just what I know which is not a lot, sounds promising doesnt it. I am sick of waiting i will be dead by then. They give in large doses for Alcoholics.
    Hensue
  3. ladybugmandy

    ladybugmandy Member

    many people take LDN for CFS. check out sue jackson's blog..she took it and loved it.

    http://livewithcfs.blogspot.com/

    message board:

    http://groups.google.com/group/alt.med.cfs/browse_thread/thread/22503be338c43968/419f5fbdb04c140e?#419f5fbdb04c140e

    another one:

    http://www.healthboards.com/boards/showthread.php?t=53819&highlight=low+dose+naltrexone+CFS

    also yahoo groups has a LDN group where i bet you will find plenty of people on the drug.

    do a google search for low dose naltrexone and CFS and i'm sure you will come up with loads of info!