NAMENDA -Is anyone taking Namenda? Need Feedback

Discussion in 'Fibromyalgia Main Forum' started by Lolalee, Nov 15, 2006.

  1. Lolalee

    Lolalee New Member

    I asked my doctor for Mirapex and she said it is for Restless Leg Syndrome and did not prescribe it for me. She gave me a script for Namenda which the web says is for Altzeimer's Disease? I haven't had the script filled.

    Does anyone take this med? Anyone have any feedback?

    Thanks,

    Lolalee
    [This Message was Edited on 11/16/2006]
  2. foggyfroggy

    foggyfroggy Guest

  3. Lolalee

    Lolalee New Member

  4. Lolalee

    Lolalee New Member

  5. mezombie

    mezombie Member

    Did your doctor tell you why he prescribed this for you? What symptoms is he trying to address?

    It's true that Mirapex is used for RLS, but there are a number of studies that show that it helps FMS. I think one of them is referred to in the ProHealth Library. Maybe if you gave him some written material he would start to understand the many benefits of Mirapex?

    I don't have any personal experience with Namenda, but I found this abstract on scholar.google which might help a bit. Plese note: Memantine is the generic name for Namenda.

    Memantine: A Therapeutic Approach in Treating Alzheimer's and Vascular Dementia
    Authors: Koch, Horst J.1; Uyanik, Gokhan1; Fischer-Barnicol, David1

    Source: CNS & Neurological Disorders - Drug Targets (Formerly Current Drug Targets - CNS & Neurological Disorders), Volume 4, Number 5, October 2005, pp. 499-506(8)

    Publisher: Bentham Science Publishers

    Abstract:

    Memantine has been clinically used in the treatment of organic disorders in Germany for over ten years and has now been approved in Europe and also in the US for moderate to severe Alzheimer's disease. The rationale for this indication is strongly related to the physiological and pathological role of glutamate in neurotransmission. Glutamate is an agonist of NMDA, kainate and AMPA (ionotropic) receptors, where its influence on NMDA receptors plays an important role with regard to neuronal plasticity effecting memory and learning. Excessive levels of glutamate result in neurotoxicity, in part by overactivation of NMDA receptors. Memantine acts as an uncompetitive antagonist of NMDA receptors and therefore compensates for this overactivation. Furthermore, memantine is a neuroprotective agent in various animal models based on both neurodegenerative and vascular processes, as it ameliorates cognitive and memory deficits. Memantine was effective and safe in several clinical studies, particularly in Alzheimer's disease. The compound is completely absorbed after oral intake and undergoes little metabolism. Having a low probability for drug-drug interactions, memantine, in principle, is suited for elderly patients exposed to multiple therapeutic therapies.
    Keywords: memantine; dementia; alzheimers disease; glutamate; nmda receptor; drug therapy

    Document Type: Review article

    DOI: 10.2174/156800705774322021

    Affiliations: 1: Department of Neurology, University of Regensburg, Universitaetsstrasse 84, 93053 Regensburg, Germany.

  6. 1sweetie

    1sweetie New Member

    I do not have any experience with the drug you mentioned but one doctor did prescribe a drug to me that is used for Alzheimer's disease. I filled the prescription but never took 1 pill. I had 3 doctors, one my CFS/FM specialist and 2 neurologists (one being from Duke) that said to NOT take the medication. It was Aricept. They said it had many side effects and was not effective for our problems.

    I hope this helps. You know I am not an expert just passing along info given to me about Aricept.
  7. Lolalee

    Lolalee New Member

    Hi Susan, thanks for responding. I am so hesitant to take drugs, especially those that I suspect are going to affect my brain (got enough problems there). I wrote to you on our thread. I'll bump it in case you haven't seen it.

    Hugs,

    Lola
  8. DixieDe

    DixieDe Member

    I was just going through this site for the first time in awhile and found a post where you asked me about the doctor in Fairhope. Sorry I'm just now seeing it. His name is Dan Ecklund and the last I heard he was in Fairhope. He used to be in Birmingham. He helped me when I was first dx with FM in 1999. He's a medical doctor but does a lot of natural healing. I wish I could find someone like him again. I live in N. Alabama. Hope this helps you. Dixiede
  9. Lolalee

    Lolalee New Member

    Thanks for your reply. My Fibro Doc is trying to treat my FMS symptoms. I should have taken Mirapex info with me to see her. When I see any doc, my mind goes blank and if I don't have questions written down I forget what I wanted to ask. So I didn't have a "comeback" for her when she said Mirapex is for RLS. First she offered Provigil for energy. I didn't want to take that. I know myself. If I start feeling energetic, I'm afraid I'll overdo it and blow out my adrenals. She gave me the script for Namenda to treat my cognitive dysfunction and short-term memory loss.

    I just hate taking drugs. I'm so afraid they are going to have long-term side effects. I just wondered if anyone here had taken Namenda and if so, what they thought. I appreciate the info you posted for me.

    Lolalee
  10. Lolalee

    Lolalee New Member

    Thanks so much for the doc referral. I had forgotten about my post. I live in Fairhope. Tell me about Dr. Ecklund. I've recently started treatment with a doctor in Mobile who moved here from Birmingham, as well. She is very nice, but so far hasn't been able to help. I prefer natural healing.

    What kind of treatment did Dr. Ecklund do?? What is his specialty? Does he treat Chronic Fatigue Syndrome?

    Thanks,

    Lolalee
    [This Message was Edited on 11/16/2006]
    [This Message was Edited on 11/16/2006]
  11. DixieDe

    DixieDe Member

    He worked at one time with Roger Murphree in Birmingham. He does a lot of work on finding the areas of your body that are lacking certain nutrients. He got me started on natural hormones that I still use. He also worked with my thyroid problems. He's a little different but he was good. He understood FM. I really don't know if he's still in Fairhope. Some of what he does will be covered under insurance since he's an MD. Other parts won't. In my opinion, it would be worthwhile for you to try to locate him since you're right there. I'm six hours away. Let me know what you decide to do . Dixiede
  12. wildworld

    wildworld New Member

    Dr Holtorf had me on it for almost 2 years. I stopped taking it a few months ago, and I don't notice any change one way or the other.
  13. victoria

    victoria New Member

    A few years ago Rich Carson made one of his rare posts about trying it, but it didn't help him either. I just tried to find it, but the site is not allowing me to search beyond 2 pages right now for some reason. Others have made posts about it, can't recall anyone really being helped by it.

    Yes it is given for 'Alzheimers', altho have to say, we gave it to my MIL and it didn't seem to slow it down or help at all... altho she has vascular dementia... plus, well, 'true' Alzheimers can't be definitely dx'd until autopsy anyway.

    If you try it, let us know what happens Lolalee?

    all the best,
    Victoria