Narcotic pain meds....

Discussion in 'Fibromyalgia Main Forum' started by 2BPainfree, Jan 29, 2003.

  1. 2BPainfree

    2BPainfree New Member

    Just a question:

    Do any of you feel these meds such as the vicodin, percocet, oxycontin, ect. ect. that so many of us take on a daily basis add to us being sick?? I'm sure it taxes our immune systems, but what do you do when you have overwhelming fatigue and pain??

    I wonder sometimes if it's keeping me sick...like a viscious cycle.Or maybe I created some of this because I have given in to taking pain meds daily (One can only suffer so long!) Maybe I'm just grasping here...dunno.

    Thank God there is a place (here) where we can all come together and validate our feelings such as these. For so many years I thought I was alone in this, wondering if other people struggle with the issue of taking pain meds like I do, feeling....
    "Do I have a problem? Why do I need to keep taking this medication?"

    Just wanted to hear from anyone else who may struggle with the guilt of giving in to pain meds each day. (Sorry, I don't mean to sound vain...just sitting here pondering!)

    Susan B.
  2. Dara

    Dara New Member

    I also take narcotic pain medications. I wish I didn't have to but in order to at least try and function it is totally necessary, at least for me. I don't believe that when you take these for pain control it is what they refer to as "addiction", perhaps dependent upon them yes, but if that's what it takes to try and live a somewhat normal life then so be it. I also take Zanaflex and Xanax and I am sure that both of those can be considered addictive also. On these though, I do try and not take them on an everyday basis. I use to worry about taking the pain medications until I finally came to the conclusion that I am too darn old, 56, to have to put up with pain when there is something I can do about it. SO,,,that's my take on this subject.

    Dara
  3. KailaK

    KailaK New Member

    Dear 2-B
    I also take a daily dose of pain medication and since I have had this problem for over 22years I have no guilt over doing so. As long as you feel you have control, a balance of treatment. For example exercising (as able, even though it kills you) taking walks, reading, listening to music, eating well, drinking lots of water and trying not to be so consumed with the discomfort. My heart goes out to you and I don't believe the majority of people can understand the real discomfort and disability this invisible illness causes.

    Take Care and here is a BIG HUG!
  4. 2BPainfree

    2BPainfree New Member

    Dara & Kaila,

    You are so right...there is no reason to suffer needlessly.
    I have just been examining my situation lately, trying to grow from this experiance, trying to accept what I can't change BUT also trying to figure out what I can change...it's a toughy because this DD is so elusive. One day you can feel "cured" from it, feel great..like I've finally beaten it. Then, the next, be paying for it for weeks never really knowing what you did to set it back off.

    Kaila,
    Yes, I agree with you. Life must be balanced...it's important to be doing "everything" we can to do to help ourselves...not just roll over and let life just "happen."

    Sometimes when I am in denial or overwhelmed, I think I do just that, throw my hands up in the air, Lol!!. For me THAT is the hardest part of this disease. Getting in and doing the things I need to do, even though I don't feel well. I need to take a more active role in my life. Don't get me wrong, for yrs I was very assertive. (I'm just worn down a bit lately)

    Thanks for listening to me ramble...!!

    Susan B.

    Goal: I will take a more active role in my life, If I don't how can I ever expect to feel better?



  5. VickyB

    VickyB New Member

    I haven't had anything for pain but Neurotin and antidepressants, you know the routine... I have gone almost crazy from enduring the pain. I have no where to turn because of insurance and pcp.
    Sometimes I cry when I see all the pain medication that people get to help them make it through the day. Consider yourself blessed for having someone who helps you and believes in you!!
    Sincerely, Vicky
  6. fifty1ford

    fifty1ford New Member

    2BPainfree,

    That's something we'd all love to be is pain free, unfortunately those aren't the cards we've been delt. I use Percoset every morning that enables me to go through my morning workout routine and get to work. That one dose is typically sufficient, but when things get really bad like temps below zero, I take a second dose later in the day.

    It took a while before my doctor consented to provide me with the Percoset, only after I had tried Ultram, VIOXX, Celebrex, and every other thing out there to no avail. And a variety of muscle relaxers.

    I take only what I need, not exceeding two doses in any given 24 hour period, the doctor is okay with that, and it has given me some of my life back. It has allowed me to get myself back into decent physical shape, although I still feel "crappy", I'm healthier. A little weird to be healthier, but still feel bad.

    Peace,
    fifty1ford
  7. Kimba

    Kimba New Member

    Dear Susan

    I am lucky to be 80% pain free because of Neurontin and Topamax, but on days like today where it snows all day it takes a major toll. I do have a standard prescription for lortab and only take them when I need them.

    I don't know what taking all these meds will do to me. I also wonder often "why do I have to take so much medication?" I take 5 pills a day. I don't know the answer, I hope some day to be off of all of them.

    I wish you the best.
  8. 2BPainfree

    2BPainfree New Member

    The best to you too!

    Susan B.
  9. starstella

    starstella New Member

    That was a great post.

    I have the exact feelings as yours regarding the use of daily pain meds. I always wonder if I've made myself more ill by using them. Went off meds for awhile. Found that my mind was totally focused on trying to deal with the pain. One day, I caught a glimpse of myself in a mirror and saw how miserable I looked. Then I realized that my life would have a better quality if I used the meds. I have reconciled myself to having a physical dependance on pain meds, but still have that glimmer of guilt that I might be putting more stress on my system by using them.
  10. tomkat

    tomkat New Member

    HI SUSAN,
    I've been taking lorcet for about 8 yrs,and just about a
    yr and a half have been taking ms-contin.One dr explained
    to me yes you can become dependent,but everyone has a pain
    limit.Some can take a couple of tylenol,or advil and keep
    on trucking.People like us with fms,cfs have a totally
    different scale.Ours is thrown off so bad that like me some
    times just a regular handshake can bring me almost to tears
    If we take a certain amount and it doesn't work we either
    need more or a supplemental or break through pain med.It's
    quite confusing though even with these meds I am still in
    so much pain.A lot of drs say to try and exercise,but if I
    just try some minor stretching I am in bed for a day or 2.
    It's just so frustrating and I know all of you may have the
    same problem,we just can't plan ANYTHING because we don't
    know how we will feel.Just another conumdrum? I guess.
    Take care,ALL MY BEST,TOMMY
  11. 2BPainfree

    2BPainfree New Member

    As I sit here today...in so much pain. I don't even know what I did. The only thing I did differently yesterday was "lay" on one of those big exercise balls backward to stretch my spine. I've taken vicodin, percocet and just a few min ago oxycontin....sheesh...(NOT TOGETHER of course)I'm so tired of this. The pain makes me want to panic because it'a between my scapulas
    (shoulder blades).....

    I would have a breakdown if I didn't have something for the pain at times like these, heck the medicine isn't even helping, I can only imagine if I didn't have anything!

    On goes the cycle...

    Good to hear from all of you!

    Susan B.
  12. Bambi

    Bambi New Member

    hesitated about the pain meds. I tried everything else the doctors threw at me, ended up with an ulcer from the NSAIDS, which are really for
    inflamation and doesn't relate to FM
    anyway. I suffered SO many years with
    severe pain to the point I was bent on suicide if I'd had to deal with the pain another DAY. I tried one last doctor (in my mind I had no hope
    I would ever find relief from anything). Her mother had FM and she knew what suffering I was going through. My pulse had been over 100 for over a year from the pain, my
    blood pressure was high for the first time in my life, my skin was mottled
    and worn looking and I felt like I was dying an inch at a time. I had always had a high pain threshold so I
    felt guilty that I couldn't take this
    pain of FM without medicating it. This doc was the first one that really explained the difference between NEED for pain medication and
    wanting to get some sort of "high".
    She also explained dependance in contrast to addiction. She held my hand and looked me in the eye and told me that my suffering was unnecessary, unhealthy, was playing havoc on my body and heart and she
    could bring me back to some degree of
    living. I was amazed she didn't think
    I was just a mental case, I think I started crying the minute I got into
    her examining room and never stopped.
    She treated each one of my symptoms
    with medication, gave me a good diet
    and sent me to my current (4 years now) pain specialist. He was every bit as comforting and understanding as she had been. No, I don't feel guilty about the medication because I am able to at least function, I am not constantly depressed and suicidal, I cherish every moment that
    I am pain free or near to it. We have
    been fed a bill of goods for many years about the use of needed pain medication and finally the doctors and even the government have realized
    that addicts and pain patients are two different creatures. It's been hard for them to admit that much of what we'd been taught was simply not
    true--very much like telling us that
    FM/CFS were not real illnesses. Look
    how long it took them to begin covering FM/CFS patients with disability. We were an inconvenient set of people for them money wise, and for the doctors who were taught
    to heal being faced with an incurable
    but not death inducing illness. I honestly do not think the medications
    do one thing worse for our bodies than the wear and tear of long term
    chronic severe pain does, and not even close to as much bad. I just thank God that He knew there would be
    so much pain on this earth and provided us with a way to ease it. And I am so grateful that we do not
    live in an earlier time when people had to go untreated for their pain in
    this country. Kavorkian's patients had FM patients among them. THAT is a
    sad thing and a wrong thing, that a
    person would be driven to kill themselves over pain that could and
    should have been eased. Sorry to go on so long, but I have thought so much about this subject and I don't want to see anyone kicking themselves for taking the medications that allows them to live and enjoy some of
    their lives. My daughter has FM also
    and if I had to sit and watch her suffer it would really kill me. So, I
    do not feel guilty but rather blessed. I hope you Vicky, find a good doctor soon! Hugs, Bambi
  13. 2BPainfree

    2BPainfree New Member

    Wow...

    Thank you for taking the time to write all that was in your heart!

    I'm sure so many of us struggle with this issue, especially those of us who have not come to terms with all this (myself included). As I sit here today I can't get relief no matter what I do.
    It just plain "Sucks." Can't think of any other way to put it.

    I'm glad you were sent an angel when you needed one most, your Doctor.

    We all deserve better.
    Susan B.