National Invisible Chronic Illness Awareness Week!

Discussion in 'Fibromyalgia Main Forum' started by Jackie F, Aug 23, 2002.

  1. Jackie F

    Jackie F New Member

    I was not aware of this. Maybe we should support this as well, since we are a part of it.
    Jackie F
    National Invisible Chronic Illness Awareness Week
    ImmuneSupport.com

    09-23-2002

    When: September 23-29, 2002
    YOU'RE INVITED TO PARTICIPATE!

    CONTACT: Ms. Lisa Copen, founder & director of Rest Ministries

    858-486-4685; toll-free 888-751-REST (7378)

    email: rest@restministries.org

    web site: http://www.invisibleillness.com

    San Diego, CA, U.S.A. (August, 2002) More than 1 in 3 Americans have a chronic condition, and despite what we may assume, 60% of those who live with daily illness or pain are between the ages of 18 and 64. The majority of chronic illness is invisible, including the 9 million people who are cancer survivors that suffer the side effects of cancer treatment.

    September 23-29, 2002 is National Invisible Chronic Illness Awareness Week. The theme is "But You Look So Good!" It is a major public awareness campaign sponsored by Rest Ministries, an organization that offers a Christian support environment for those who live with chronic illness or pain.

    "Living with an illness that is invisible to those around us can often have a more devastating affect on our emotional health than the physical pain," explains Lisa Copen, 33, founder of Rest Ministries who lives with rheumatoid arthritis and fibromyalgia. "Friends and family of those with chronic illness care a great deal about what their loved ones are going through, but oftentimes the invisibility of the illness sets up an environment for misunderstandings and even doubt about the validity of the illness. We hope to increase awareness of how many people 'look great' but are hurting deeply."

    Outreach includes various events: the distribution of literature, "When a Friend Has a Chronic Illness: What to Say, How to Help." Resources include "But You Look So Good: A Guide to Understanding and Encouraging People With Chronic, Debilitating Illness and Pain."

    Churches across the U.S. will be participating by having various testimonies shared about living with illness. Special chat guests will be online.

    For a complete list of events and resources visit www.invisibleillness.com or call 888-751-7378.

    "The feeling of knowing that one's illness and pain is acknowledged can have a great impact on how a person copes with living with illness," says Copen. "We hope that by recognizing people with illness rarely feel as good as they look, they will begin to feel better understood, leading them to a more invigorating life!"

    For more information, please visit: http://www.invisibleillness.com


  2. Jackie F

    Jackie F New Member

    I was not aware of this. Maybe we should support this as well, since we are a part of it.
    Jackie F
    National Invisible Chronic Illness Awareness Week
    ImmuneSupport.com

    09-23-2002

    When: September 23-29, 2002
    YOU'RE INVITED TO PARTICIPATE!

    CONTACT: Ms. Lisa Copen, founder & director of Rest Ministries

    858-486-4685; toll-free 888-751-REST (7378)

    email: rest@restministries.org

    web site: http://www.invisibleillness.com

    San Diego, CA, U.S.A. (August, 2002) More than 1 in 3 Americans have a chronic condition, and despite what we may assume, 60% of those who live with daily illness or pain are between the ages of 18 and 64. The majority of chronic illness is invisible, including the 9 million people who are cancer survivors that suffer the side effects of cancer treatment.

    September 23-29, 2002 is National Invisible Chronic Illness Awareness Week. The theme is "But You Look So Good!" It is a major public awareness campaign sponsored by Rest Ministries, an organization that offers a Christian support environment for those who live with chronic illness or pain.

    "Living with an illness that is invisible to those around us can often have a more devastating affect on our emotional health than the physical pain," explains Lisa Copen, 33, founder of Rest Ministries who lives with rheumatoid arthritis and fibromyalgia. "Friends and family of those with chronic illness care a great deal about what their loved ones are going through, but oftentimes the invisibility of the illness sets up an environment for misunderstandings and even doubt about the validity of the illness. We hope to increase awareness of how many people 'look great' but are hurting deeply."

    Outreach includes various events: the distribution of literature, "When a Friend Has a Chronic Illness: What to Say, How to Help." Resources include "But You Look So Good: A Guide to Understanding and Encouraging People With Chronic, Debilitating Illness and Pain."

    Churches across the U.S. will be participating by having various testimonies shared about living with illness. Special chat guests will be online.

    For a complete list of events and resources visit www.invisibleillness.com or call 888-751-7378.

    "The feeling of knowing that one's illness and pain is acknowledged can have a great impact on how a person copes with living with illness," says Copen. "We hope that by recognizing people with illness rarely feel as good as they look, they will begin to feel better understood, leading them to a more invigorating life!"

    For more information, please visit: http://www.invisibleillness.com


  3. Renee T

    Renee T New Member

    on this somewhere. My husband found the "invisible illness" website a while back, and we sent off for some of their literature. Now I feel like a total idiot for not bringing it to the board.

    Thanks for bringing this up.

    Renee T
  4. LBinCA

    LBinCA New Member

    Hi folks...I have been to and participate with this site.......

    web site: http://www.invisibleillness.com

    A really fine group, with alot of emphasis on Spirituality and Inspiration! I highly recommend it, please check it out! And please participate if you feel up to it, we need to advocate for ourselves as often as the opportunity arises!
    Have a Pain-Free and lovely, peaceful day....xoxoxoxo Lori