Discussion in 'Fibromyalgia Main Forum' started by mindyandy420, May 30, 2008.
Anybody know one?
Don't go to the FFC clinic, they cost my friend an arm and a leg, she got sicker and sicker and lost so much weight, she finally quit going.
They wanted almost $300. to write a letter for her.
[This Message was Edited on 05/30/2008]
for the heads up. Have you heard of the Harborview CFS clinic? I wonder what the review are there?
The U of W .....They "tend" to lean towards research , but have helped some people. I was not one of the people they helped.
If I lived over there , I would check out Dr. Susan Shilfer (sp) in Poulsbo , WA. She & her son have CFS and she has helped several people.....including herself & her son.
I lost contact with her & ran out of money before I could go see her. If I remember correctly , she leaned towards the Marshall Protocol. But , was open to any good approach.
I've been accepted to cfs/fm pain clinic after filling out a 40pg questionnare. The waiting period is over a year and still have months to go. It's the only Rheumy that my doctor and referral specialist has found that will accept me as I'm on DSHS and medicaid, considered long term disabled and CNP (categorrically needy person). I am applying for SSD/SSDI at the moment.
If you want to get into pain clinic, I suggest you apply now and see if they even accept you and then be prepared for the long waiting period. From the literature they sent, if you do not follow their protocal to the T, you will be kicked out of program. They also do NOT support nor write any letters recommending SSD for you.
I wish I COULD tell you of a good rheumy, but the ones we've tried to get me into either don't treat fm, or they don't take medicaid.
Still waiting in Seattle
Laurie A Marti, MD, PLLC
12000 NE 8th St, Suite 207
Bellevue, Washington 98005
She is wonderful. Formerly with the Seattle FFC, now on her own. Very bright, caring, knowledgeable, helpful.
I found a dr at Providence in Mill Creek. They have some pretty good doctors, and some not so listening-type, but they are all very compassionate.
I see Dr. Nancy Linscott, but she is going back to Private Practice later this summer somewhere in Bellevue. But as a general family doctore, she is incredible and atleast knows what fibromyalgia is!!!
I am going to have to find a new doctor since she is moving, but I am going to keep in touch with her.
There is also Eastside Therapy, they do research on fibro and that is where I got diagnosed actually. They are nice, and full of resources. They are in Bellevue, or Kirkland I think, off 70th PL off the 405.
How far are you from me? Where is Mill Creek, is that where Mill Creek health food store is. I live in Yakima.
Does she dianose CFS? I dont believe I have FM. I do get tender and achy but not so much in the tender spots for FM. My aches and pains come and go....I dont know if I do or not. I just saw a Rhuemy and she barely touched me and said no.....????
Another vote for Lauri Marti now that she is out of the FFC.
I like Dr Levitz when she was at the FFC too, and now she is a family doctor in Issaquah.
and another HOORAY for Dr. Marti!! She is the heck outta that dump and money $ mill that the FFC is!!
She is in practice all by herself now and happy! She is by far THE best Dr. I have ever seen and has helped me ALOT!! I really believe I would have never found out what I know now... with out her. Yes its expensive to pay out of pocket- BUT> she is right there along with other "specialty" docs as far as fees go. I have already been to Dr.s that my insurance will pay for and they are all crap. Does me no good, so even though its paid for... what is the point?
Anyway I just wanted to give her a CHEERS because these kind of Dr.s are SO hard to find. I just cant say enough about her.
Someone else mentioned Dr. Levitz, who is ALSO no longer with the FFC (hmmmm I wonder why...)and she was pretty good- I saw her also. Liked her.
Perhaps more and more people are realizing that doctors in their own practices, governing their own clinical judgements and not tied to a business that seems to promote things that make a profit for them, is very effective.
When a health care "business" makes a profit on each visit they recommend, each IV recommended by them, large amounts of supplements recommended by them, hormone products recommended by them, yadda yadda, then one must be extraordinarily wary. For Marti and others, I think they make their money on visits, but they don't have a financial incentive to prescribe or recommend anything. That is done on the basis of what is best for US, the patients.
Marti and the others who have left may have reached their level of ethical tolerance and decided to treat patients on their own. I don't know that for a fact, but it would be my guess.
Good for you, Betty.
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