Need advice!

Discussion in 'Fibromyalgia Main Forum' started by CarolDonz, Feb 2, 2003.

  1. CarolDonz

    CarolDonz New Member

    Hi all,

    For the past few years, I've had extreme fatigue, some leg pain, lack of appetite (because of IBS and nausea) and other gastro problems, causing me to lose a few lbs (which the Drs I see don't seem to be concerned about), cognitive problems, balance problems (dizziness), dry mouth, sleeping problems, headches, and anxiety/depression problems (which I didn't have before).

    I've had extensive blood work, an endoscopu, and a colonostomy. I've been told that I have fibro, possibly w/CFIDS. Years ago, I had mono and then was told that I had the EBV virus. How accurate is the test for the latter, anyway?

    I don't seem to feel better, although my symptoms wax and wane. Does anyone recommend seeing a specialist in this field? I live in NY, and was told that a Dr. Enlander was very good. Do you think that you're better off seeing someone like this than a rheumotologist, who I've been seeing for the fibro, w/other Drs for various symptoms.

    I would greatly appreciate any info or input about this condition.

    Thanks,
    Carol
  2. tiredTina

    tiredTina New Member

    Hi! A few months ago I was diagnosed with mono/EBV also. I have fibro,IBS,IC as well. I have since recovered from mono, but I still feel horrible everyday. I often wonder if I'm in a constant state of relapse. I'm ALWAYS sick with something. I was told that rest was about all I could do for mono/EBV. If you find out otherwise, let me know! Good luck and feel well! OH, what is CFIDS???
  3. CarolDonz

    CarolDonz New Member

    Hi Sonny,

    Yes, I have brain fog too, so I guess you're my twin...LOL. EBV virus is Epstein-Barr, another name for chronic fatigue.

    Thanks for responding,
    Carol