Need CFS Dr. in Boston/Providence area

Discussion in 'Fibromyalgia Main Forum' started by BAllen, Jul 30, 2003.

  1. BAllen

    BAllen New Member


    I've had CFS for 3 years. I had been experience slow, steady improvement, but for the last year I've been stuggling with overwhelming exhaustion again, also insomnia. My regular physician doesn't know that much about CFS, but we having trouble finding a specialist at all, much less one who does continuing care. I'm a grad student, so finances are limited; I have insurance, but that's also limited. Can anybody recommend a good CFS (I don't have FM)doctor in the Boston-Providence area who doesn't charge an arm and a leg?

    [This Message was Edited on 07/30/2003]
  2. BAllen

    BAllen New Member

    Thanks for the suggestions.

    Dr. Goldenberg is in my insurance network...but he only treats CFS as part of FM; he doesn't take patients who just have CFS.

    Ralph--do you have a phone number for Dr. Maykel?
  3. Shirl

    Shirl New Member

    Hi, welcome to the board, glad to see you have gotten some help already.

    Just stopped to welcome you to our world here.

    Shalom, Shirl
  4. BAllen

    BAllen New Member

    Hi Dogdazed,

    Thanks for your suggestions too.

    I haven't tried conatacting nearby med schools, but I came to this list because my health services doctor was out of ideas. She contacted the one CFS specialist she knew of in Boston (I don't know who): he's not taking new patients and could only recommended Wendy Clough. I saw her when I was first diagnosed and again a couple months ago--She's convinced I have Lyme based solely on where I grew up and the fact that I live in New England. She doesn't do continuing care and offered no suggestion for treatment.

    I've called most of the people on the co-cure list:

    I got an appointment with Borg-Stein, but not until November.

    I have an appointment with Rothfeld next week that I'm probably going to cancel. He charges $350 for an initial consultation and who knows how much after that. My insurance is unlikely to cover even $100, so he's not an option for continuing care.

    Reardon isn't taking new patients.

    The phone number for Bordiuk went to an answering machine that didn't have his name on it.

    Northampton is too far away.

    I guess I should call Espinosa in Sandwich, but first I thought I would see if anyone on this list could recommend people they'd been happy with in areas more accessible to my home.