Need encouragement Please

Discussion in 'Fibromyalgia Main Forum' started by hope4, Jan 19, 2003.

  1. hope4

    hope4 New Member

    I'm getting so tired of this disease. I'm trying to keep positive, however when you suffer from depression in addition to all the pain and suffering that comes with fibro, and scoliosis it is overwhelming at times. I've had a very hard time the past 2 weeks. My son and I both were sick. He has a sinus infection, fever, vomiting and I had an upper respitory infection. Just taking him to the doctor and trying to keep up with his medicine in addition to my meds is driving me crazy. I've almost gotten to the point of not wanting to take my medicines. I forgot to take them today and when I remembered I really did not want to, but I did. I'm so tired of swallowing all those pills. I feel like my thoat is going to explode when I try to swallow them along with all the water I have to drink with them. If I have to take another pill in addition to what I'm already takin; be it vitamin or prescription, I'm going to scream! I'm also tired of having brain fog and misplacing things. I've been doing it all day; the remote control, the pencil I just had in my hand, my Tens unit. These were things that were right within reach and I had to ask my son to help me find them. I also have to sleep with a c-pap machine, which is very uncomfortable and even more so when I'm having a flare like I am this week. I am extremely fatigued today. My son who is 12, cooked breakfast and dinner today. I'm so thankful that I have him in my life and I make sure to tell him that each day. My husband has been out of town since last Monday. He should be home tomorrow. I'll be so happy to see him, but in the mean time I just need some encouragement please.

    Thanks for letting me vent.
  2. ohmyaching

    ohmyaching New Member

    Hope things get better for you. Sounds like you've been counting your blessings- a wonderful husband , a helpful son- who cooks! We seem to have a lot of illness going around here. Just one of those things. That's the way it always goes in the winter, but hopefully that too shall pass. Hugs to you and your family.
  3. Karrot

    Karrot New Member

    I understand how tiring (physically and mentally) this illness is. I get very down, too and get into that mode where all I want to do is deny everything I'm supposed to do and sit in a hole for awhile.

    I don't take pills on a daily basis. And I'm very lucky that I don't. I have pain but I'm predominnatly CFS. Have you considered alternative medicine? Like acupuncture? or acupressure? I personally don't know much about any of that, but maybe it would be worth looking into if you are tired of "popping pills" Plus, I've heard great things about holistic healing.

    Just a thought.

    I hope you are feeling better, Hope.

    God bless,
    Karrot
  4. hope4

    hope4 New Member

    Just knowing that someone out there understands, means so much. It is worse in the winter. I was diagnosed a year ago so everything is still kinda new to me. Just getting to the point of acceptance takes time. I have not tried accupuncture yet, but I'm willing to do so. After going thru the EMG test, I know accupuncture can't be worse than that or even close to that pain. Do you know if accupuncture last for any length of time, or do you have to go in weekly for treatments? Just the co-pay to the Chiropractor is expensive. I was seeing him 3 times a week, then 2 times a week and I'm finally at once a week.

    Again thank you both for replying to me tonight.
  5. Elvira

    Elvira New Member

    First of all, let me just say that you are very lucky to have a son who can and will cook to help you out. I wish mine was that helpful. Maybe if I had gotten sick when he was younger....

    Secondly, I tried acupuncture for my fibro and got absolutely no relief whatsoever, and it can get expensive. I understand that what helps one person may not help another, but overall I have not read very encouraging facts on acupuncture and fibromyalgia. Just something to keep in mind.

    It is hard to cope some days, cause this disease can cause depression. Probably the best thing I do for myself is come to this board and look for support. The people here are wonderful and compassionate and most of all, they understand! Good luck and I hope you feel better soon.

    Hugs,
    Anita
  6. hope4

    hope4 New Member

    Thank you for the encouragement and the information on the acupuncture. The pain specialist that I just started seeing does acupuncture and he has not recomended it yet. He's still running alot of test on me. But I'm thinking that you are probably right, that it doesn't do much for fibro. I will certainly ask his opinion on this during my visit this week.

    Thanks
  7. pam_d

    pam_d New Member

    Hope, I've been there----my husband just returned from a week out of town on business; I have a 13-yr-old daughter, so our situations are pretty similar. This last trip went pretty well, but I know I dread it (all the what-ifs? what if I have an awful flare & can't function at all, can't get my daughter to school, etc...) every time he leaves, and am so thankful when he returns just so the "back up" is there....

    As I'm reading this, I'm realizing your husband's hopefully home by now! I know what it feels like to be needing encouragement during this time, especially when you & son are both sick. I agree, thank goodness for both your son, & my daughter; really a treasure, and I especially remember this when it's just "us" at home.

    Hope things ease up a little now that you are back to a full house, and things feel less scary---I know how that feels, believe me!

    Take care & hope you are doing better,
    Pam
  8. hope4

    hope4 New Member

    Wow! you brought tears to my eyes. Yes hubby is home, got in around 4am. I had just gone to bed because I was trying to stay up for him to give him a big hug as soon as he walked through the door. Didn't quite happen that way though, because the Trazodone kicked in. As soon as he got in bed I woke for a brief moment, turned over and carressed his face and said I'm so glad your home. He said "I am too" and we both crashed. Just knowing he was back lifted such a load off me.
    Thank you so much for the encouragement. You and I are very blessed to have children who understand and are old enough to help out and for the most part, take care of themselves. I never knew when I started teaching my son to cook when he was 9 that it would be beneficial in such a way. What's so great about it is that he really enjoys it. He actually wants to be a chef. He thinks he is the "Iron Chef".

    [This Message was Edited on 01/20/2003]
  9. ejay

    ejay New Member

    hope after having head injuries and putting my 3 kids thru that and rehab then 3 deaths in the family i couldn't tell my kids i had fibro now they are 16 18 22 and saw all the changes listened to the vomiting and every thing else and moved in with their other parent. my husband sounds like yours he is so solid and thats what keeps me going when he tells me how afraid he is that i will give up, how important i am to him along with our friends and church comm.i should have been honest with my kids and remembered that i just don't depend on people even lying in bed being what i consider apain to others . they depend on me in sickness and health and if you have people that love you that much then you owe it to them to hang in and kick butt!!! because we all will beat this. ejay [ventings good though but that why you come here]
  10. susabar

    susabar New Member

    I can only imagine what it is like having a cold or other illness on top of these FM symptoms... ( I am newly diagnosed ) and have not been sick with any thing so far but.... I feel for you.... remember better days are ahead, try to focus on your blessings like your beautiful son. I can tell you from experience that kids brought up with struggles appreciate things alot more and are more compassionate, responsible adults. You'll see !!!
    love Sue
  11. raingold

    raingold New Member

    Hope,
    I know your husband is home now and I'm writing this late. I just got home from out-of-town and I try to read the messages every night.
    When I read yours, tears came to my eyes. I remembered when I was in the same boat as you. My daughter cooking for me, my husband away, not being able to remember anything, and feeling so desperate. I would even forget to bathe, or brush my teeth, or eat breakfast in the morning. I would make a list and tape it to the wall next to my bed and forget that it was there.
    OH-H-H the frustration!! But, I am hear to tell you that as sick as I was, I now function fully and am still getting more well than I thought possible.
    It has taken a lot of work. Yes, I did acupunture. It may not take away the pain instantly, but it works on an energy level, with the meridians of the body, to bring your systems into balance. As they come more into balance, the smptoms will decrease. This happens over time, so if you do choose accupunture, be patient and hopeful. (Also, your regular Dr. may not know anything about it--just a warning).
    Glad you reached out for support.
    Raingold
  12. allhart

    allhart New Member

    you are blessed i have to 13 tear olds and they wont even pick up there dirty socks!your cooks,im truley jelouse!
    i just wanted to send hugs and let you know your not alone,
    kara

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