NEED HELP FINDING LOCAL SUPPORT GROUPS

Discussion in 'Fibromyalgia Main Forum' started by KIMHURTS, May 2, 2006.

  1. KIMHURTS

    KIMHURTS New Member

    Does anyone know of any local Fibromyalgia support groups in Rochester, New York?
  2. jakeg

    jakeg New Member

    if you goto the arthritis web site here is the link.

    http://www.arthritis.org

    you can do a search from there to see if there is one in your surrounding area

    Also found this site

    http://fmaware.org/fame%0newsletter/famedirect_newyork.htm




    Take Care

    Jake
    [This Message was Edited on 05/02/2006]
  3. findmind

    findmind New Member

    1. Check out this site for SGs

    2. Look on co-cure.org's site for SGs

    3. Look on CFIDS Assoc. of Amer. caa-org, for SGs

    4. Check out CDC.gov for CFS SGs

    5. Call Rochester, NY United Way: they list SGs in all states, and FM is common enough, they probably have more than one!

    6. Call biggest Rheumatologist group in your town: bet they know of one, or someone who can tell you.

    Best of luck, ok? BTW, WE are the most informed SG in the world!!! LOL

    findmind
  4. SandraJean

    SandraJean New Member

    Hi Kim,

    I'm from Pittsford, NY, right outside of Rochester and know about a support group. They meet twice a month, one time during the day and another time at night. The day time meeting is in Brighton from 11-12:30 at Brighton Recreation and the evening meeting is in Greece, from 7-8:30 at the Greece Town Hall.

    They ususally meet the second Tuesday for the evening meeting and the last Wednesday for the noon meeting.

    You can find them under the Fibromyalgia association of Rochester New York. I don't think I can post e-mail addresses or regualar address for the group. I hope this helps abit.

    Sandy
  5. findmind

    findmind New Member

    Hope you found SGs in your areas...

    Meg, you esp....look at my original reply to kimhurts about all the places to look for sgs in your area...

    Best to you both.
    findmind
  6. UnicornK

    UnicornK New Member

    The nearest one to me is about 30 minutes away. After a long day, I can't drive that far. I'm thinking about starting my own. Next week, when the newspaper article on me and CFS/FM comes out, I'll see what kind of response I get. I asked him to include my email addy in the article so people can contact me for more info...like I'm some kind of expert! LOL

    Good luck finding one...or start your own!

    God Bless.