NEED HELP HERE!!! NEED ADVICE ON DARVOCET N-100

Discussion in 'Fibromyalgia Main Forum' started by pamela, Jan 28, 2003.

  1. pamela

    pamela New Member

    I WAS JUST WONDERING...I USE TO TAKE DARVOCET N-100 2-3 TIMES A DAY FOR BREAK THROUGH PAIN ALONG W/ THE VICODIN ES. THOSE DAYS ARE GONE SINCE MY DAD WAS THE DOC. PRESCRIBING AND HE PASSED AWAY. SINCE, I NOW SEE A PAIN MGT. SPECIALIST I WONDER IF THEY WILL THINK BAD OF ME IF I ASK HER IF MAYBE WE CAN TRY THE DARVOCET N-100 FOR BREAK THRU PAIN ALONG W/ THE LORCET 10? I'M AFRAID THEY WILL GET MAD AT ME OR THINK I AMD TRYING TO GET MORE MEDS. BUT WITH MY CURRENT SITUATION THE NEURONTIN HELPS BUT ZONKS ME OUT AT WORK, AND I CAN'T THINK!!! IT MAKES MY BRAIN STOP AND ITS LIKE HITTING A BRICK WALL. WHAT DO YOU GUYS THINK? I DON'T WANT TO LOOSE WHAT I CURRENTLY HAVE BECAUSE IT IS A LIFE SAVER AND THE LORCET 10 KEEPS MY PAIN LEVEL AT A DULL ROAR. I TAKE IT 4 TIMES A DAY. THE BREAK THROUGH PAIN IS AS BAD AS HAVING TAKEN NOTHING. I'M SUPPOST TO TAKE THE NEUTONTIN 3 X'S A DAY AT 300MG. EACH. WHEN I DECREASE MY DOSAGE TO 2, 2 X'S A DAY THEN I GET SOME RELIEF BUT LATER IT ALL COMES BACK!! HELP!!! ALSO IS IT THE CODEINE OR TYLENOL IN THESE MEDS THAT THE PAIN MGT. SPECIALISTS ARE AFRAID OF? PAMELA
  2. Bree

    Bree New Member

    TO BEGIN WITH PAMELA???
    NEVER, EVER ASK A DR. ABOUT MEDS!!! REMEMBER, HE IS THE DOCTOR HERE, NOT YOU......AND YES! HE/SHE WILL THINK YOU ARE THERE FOR MEDS ONLY WHEN YOU SUGGEST ANY MEDS TO HIM/HER!!
    THIS IS AN INSULT TO THEM, BELIEVE ME........
    YOU DID NOT MENTION WHAT AILS YOU, PAM........
    YOUR MEDS ARE FOR "MILD TO MODERATE" PAIN......
    YOU NEED SOMETHING STRONGER, NOT TWO OR THREE AT A TIME...
    YOUR VICODIN SHOULD HELP YOU, IT DID ME AND I HAVE:
    OA. FIBRO,CANCER,OCD,IBS,AND ? MACULAR DEGERATION.....AM GOING BLIND...........
    HAVE HAD "FIBRO" FOR 23 YEARS.......ENDED UP WITH A "MORPHINE BLOCK IMPLANT"......HAD TO MY PAIN WAS EXCRUCIATING..........NO SLEEP, DEPRESSED ALL THE TIME....WELL? WHY NOT DEPRESSWED WITH ALL THE GARBAGE I HAVE, RIGHT? YOU'D HAVE TO BE SUPERWOMAN TO STAND THIS PAIN!!
    PLEASE, ASK YOU DR. "CAN YOU CHABGE MY MEDICATION" WHY? TELL HIM/HER..........
    MUCH GOOD LUCK.....
    BLESSINGS,
    BREE
    LAKELAND. FL
  3. pamela

    pamela New Member

    WOW!!! THAT WOULD KNOCK ME FOR A LOOP. I JUST SIMPLY NEEDED TO KNOW HOW TO ASK FOR SOMETHING THAT I KNOW WORKS WITHOUT THEM THINKING SOMETHING. THATS MY STUMP AND HAS ALWAYS BEEN MY STUMP. I NEVER KNOW HOW TO ASK THESE PEOPLE FOR PROPER HELP DUE TO FEAR OF BEING THOUGHT OF IN THE WRONG WAY SO I USUALLY SUFFER FOR IT. YES I DO NEED SOMETHING STRONGER AND THE NEURONTIN JUST KNOCKS ME SO SLEEPY. ANY STRONGER DOSES OF IT WOULD SIMPLY BE HARD TO HANDLE AT WORK 40 HRS. A WEEK!!! THANKS FOR YOUR REPLY...PAMELA
  4. CATLADY912

    CATLADY912 New Member

    When you go to your pain dr. you could explain to him what is going on and ask him if he has any advice as to what you can do. To me, Darvocet is not worth your time or money. There is really no help with that as far as I'm concerned. I take Methadone 10mg twice a day and lorcet plus 10/650. Have just started taking Neurotin 100 mg three times a day. Could not handle the 300mg at first, made me spaced out and sleepy and I cannot deal with that since I tried to stay on the go as much as possible walking as much as I can. Right now I'm having a bad flare up of pain and I know its from trying to take care of two grandchildren while their mother is in drug rehab. But back to you. I would just explain it all to him and ask him how you can deal with it and what else would help. You could take a chance and tell him about what your Dad did for you while he was alive. Every doctor is different. Some will be insulted and others may listen to you. My pain doctor after a few disagreemets finally gave what I wanted and the next time I went back he had to say to me ##Well go ahead and tell me I told you so"""./ I laughed at him and we have gotten allong ever since. Most of my flare up pain especially in my back comes from picking up my granddaughter who is 4 and along with fibro I have a back disability also. You just have to feel the waters as you go along and see and make your mind up to what kind of doctor you think he is and how he would take it. I don't know if I have been any help but I hope so. Janice
  5. pam_d

    pam_d New Member

    I know there are others here who use Darvocet (formulated with acetominophen) or Darvon (with aspirin) and are satisfied with it. However I subscribe to the Fibromyalgia Network quarterly newsletter, and I am going to quote from their April 2002 issue on opioid pain medications: "Several controlled studies have shown that propoxyphene (Darvon/Darvocet) is either equal to, or inferior to, a placebo." No benefits over NSAIDs were found with Darvocet. The doctor interviewed concluded that "Darvocet is more toxic and more expensive than NSAIDs or acetominophen. It is time for Darvon to be put away!"

    I bring this up because I have read (and unfortunately, I don't have that article at my fingertips) that Darvocet is the pain medication most overdosed on.....the reason is, it is many find it so ineffective for their pain that they take another, and another.....and it IS toxic at double or triple the suggested dosage.

    Again, I know some folks here take it & are happy with the results.......and if it works, why mess with success?

    I don't use regular pain meds for FM, but have used Darvocet after surgery years ago---for me it was completely ineffective. Now I know to ask for Vicodin after surgery for pain.

    Just sharing some info......I hope you find SOME good option for pain that gives you some relief, though!!

    Good luck & feel better,
    Pam
  6. tandy

    tandy New Member

    I disagree with the one post above....never ask your dr for certain meds!!! I tell my Dr all the time what meds I hear are working for people!!And Yes I suggest we try them.I currently take darvecet up to 4 times a day,with a muscle relaxer at night and a antidepressent.The last time I was at the Rheumy...I had asked her about neurontin.She's willing to try if I don't have luck with my current meds~
    So I would for sure tell your pain dr that the lorcet are'nt helping as much as you'd hoped~(you probly just need a little boost to them-and the darv's would hopefully do the trick~)Thats my opinion.
    Good luck in finding better relief.
    Tracey
  7. allhart

    allhart New Member

    i WOULD talk to your dr tell him what you where taken when and how much it helped you and ask if he thinks it might help agin because the med you are on is not doing enough and your falling asleep at work,,
    if you know something helps you need to tell him he cant just guess ,also let him know that you didnt tell him before this for fear of being labled a drug seeker,my dr got realy mad at me for not telling him what helped,he told me its worse when a paitent dosent tell them what helps for fear then having to deal with thoughs who are truley seeking drugs,
    but its totally up to you i dont know your dr,
  8. Elvira

    Elvira New Member

    I definitely DO ask my doctor for certain meds that I have heard helped others. If I didn't do that, I'd still be stuck with things that did not help my pain because they were not strong enough. I will actually print out a message thread from this board, if the topic refers to effective pain meds that others have used, and take it in to discuss with my doctor. If they know that you have fibromyalgia, they realize that you are dealing with intense, chronic pain. If you have a caring doctor, he will be more than willing to discuss other pain treatments for you, if what you are on is not strong enough. We have a right to control our pain. With this disease, we have to take an active role in our health care, and that means standing up for ourselves and asking for what we need. If a doctor is offended by that, then he is one of the arrogant "know-it-alls" who are truly not helpful to us, and he can be replaced. Good luck to you in your quest for pain relief. Do not give up!!
  9. pamela

    pamela New Member

    I have tried today 2 of the Neurontin in the a.m. and 2 after lunch. I fell groggy and not to good. The Neurontin helps my sleep the best, not pain. If I could stay home all day I would be able to probably take it but then I would be in be bed all day sleeping. It just makes me feel NOT GOOD!! Like DULL, SLEEPY, NO MOTIVATION, JUST DEAD!! Bottom line. And I also forget stuff and leave my purse everywhere!!! So I will try just telling the Doc. what works best with great care. Or at least tell her I need something for moderately severe pain. Any more posts w/ ideas would help. Thanks Pamela
    [This Message was Edited on 01/28/2003]
  10. PAT

    PAT New Member

    A doctor can't know what has helped you, if you aren't open with him or her. They may not always agree, but may let you try what you want as long as they don't see it as dangerous. I know how it feels to go asking for meds, and that is so unfair that we are made to feel that way. I want to mention also, that I just started Neurontin a few weeks ago, and the drowsy side effect went away after about 3 weeks. I know it doesn't for everyone, but it leveled out for me where I can tolerate it. I may feel a little bit spacey for about an hour after it kicks in, but it goes away, and I am not sleepy. I find too, that I am going longer between pain med doses now that I am on the Neurontin. Good luck to you. It's important to feel comfortable with your doc,and I hope you can get there with yours. Patti G