need help - problems after surgery

Discussion in 'Fibromyalgia Main Forum' started by kd25, Jan 9, 2009.

  1. kd25

    kd25 New Member

    I have FM and CFS. I had surgery to have my gallbladder removed last week. Since a few days after my surgery, my heart has been racing (up to146 bpm) and my blood pressure is high (up to 145/95). I went to urgent care last night, and he seemed to have no idea what was causing it. I am starting to get more concerned, because it has been going on like this for 6 days now. Anyone experience this or have any guesses as to what may be going on? Thanks for your help!
  2. kd25

    kd25 New Member

    I do have lots of sensitivities. All I know is that it was general anesthesia. I never had this problem after surgery before, but this is the first surgery I've had since getting CFS and FM. The urgent care doc did not give me anything to treat it.
  3. kd25

    kd25 New Member

    I looked online, and I have some of the symptoms, but not all. As far as I know, my family is of East German descent.
  4. simonedb

    simonedb Member

    sorry to hear this.
    i had g.b. surgery almost 20 years ago and have been disabled since. I didnt have active cfs/fm before the surgery but in retrospect I may have had it as I had recurring mono years before the surgery, and maybe its like the illness someone told you to google, perhaps having had a significant viral illness that isnt gone renders one more vulnerable to anesthesia.
    There are guidelines from several cfs doctors about how to approach anesthesia with cfs, it can be dangerous for us.
    I called 911 a few times after my surgery as I would wake up in middle of night with heart racing, get up and pass out, it was scary, never had that before then.
    Did it hurt your neck at all too? the position they put it in to administer anesthesia can be another source of flare up. I have never been sure what hurt me more, the anesthesia or the neck irritation.
    It will probably calm down eventually. I am not sure what you should expect because I wasnt aware of having fms/cfs before my surgery and was pretty able, jogging all the time etc no big aches or pains so I dont know how bad it was for you before the surgery. If you research on the internet you can find info about surgery and cfs.
    Dr. Cheney says the anesthesia/oxygen can cause brain swelling in cfs people, I am not sure what you should do in an acute situation for it.
  5. kel78

    kel78 Member

    Yes, I had a very similar experience after a laparoscopy a year ago. After the surgery, I had what felt like adrenaline rushes, including one that lasted 24 hours (!) a week after the surgery. After that episode, it finally started to calm down.

    I'm extremely sensitive to medications and had read that anesthesia can be a problem for people with CFS, so I discussed it with the anesthesiologist and showed him some written material, which he read. I also specifically asked NOT to be given any fentanyl because I'd had bad reactions to it in the past. He promised not to give me that drug.

    Well, months later, I received a copy of what was billed to my insurance company, and fentanyl WAS listed! So, apparently, my anesthesiologist wasn't to be trusted. Perhaps that explains my post-surgery problems, or at least contributed to them. All I know is, if I ever need surgery again, I'll be meeting with the anesthesiologist well in advance and getting things in writing!

    Hope you're feeling better!

  6. kat0465

    kat0465 New Member

    Unfortunately after my Hysterectomy i did the same thing! they put something on me called a q pump after the surgery it was for pain. but my heart rate went nuts and the blood pressure was high. i kept telling them i was having problems with the med in the q pump, Finally they took it off and the heart calmed down some. that was 8 months ago, and for the first 3 or 4 months after the surgery my heart bothered me something terrible, also my blood pressure stayed high, that too has gone back down to almost normal for me.
    it could have been some anesthesia you had, or some other drug. in my case i have had irregular heart beats all my life & have a funny heart valve.I just couldnt take the meds i guess, and also a 5 hour surgery was tough!! keep an eye on it and definately bother the heck out of them if you dont start feeling better, but it may take a while,we dont do too well with surgerys anyways :) feel better soon, Kat
  7. kd25

    kd25 New Member

    This is just a nightmare. I am still having chest pains and high heart rate and blood pressure. I called the hospital where the surgery was done on Saturday, closed. I just called this morning, the nurse was rude and said I had to call medical recoreds. I did, and she said she could not tell me what drugs I was given over the phone. I have to drive there, which I can't, or send a request by mail to which they will respond in 2-3 weeks. Crazy!
  8. Janalynn

    Janalynn New Member

    Don't call the hospital - call the surgeon's office. I'd be calling the Dr. right away, they are the ones who will want to know what's going on with you.
    Id call them this morning!
  9. kd25

    kd25 New Member

    I actually saw the surgeon last Wednesday. He just said my cuts were healing fine, that my heart rate and blood pressure should not be that high, but that it was not related to surgery and I should see my PCP. So, his office has not been helpful.

    After some pleading and 'reacting', I got the hospital nurse to give me a list of drugs I was given. I have no idea how to spell most of these, or even what they are: decadron, fenergen, pepsid, propepol, zemerin, versed, and fentanyl. She did insist that they all should be out of my system by now, so it must be something else.

    I also saw my PCP this afternoon. As is typical, he rushed my appointment. He did order a CT scan to rule out a pulmoary embolism, which I assume was negative since they let me leave the hospital after.
  10. simonedb

    simonedb Member

    well, what can they really do, they don't know what to do about it is the problem so they try to slide out of it, sigh
    duh, could there be a connection, ya have surgery and all hell breaks loose, naw, just a coincidence.
    try to get to a good cfs specialist if you can.
  11. PVLady

    PVLady New Member

    They probaby already told you but dont' drink any coffee. Are you taking pain meds or any other medications - you might call the pharmacist and have him review any and all meds you take for the side effects.

    Maybe it is a reaction to the anesthetic? You might call the surgeon and ask. Do you have a family doctor you can go see?
  12. richvank

    richvank New Member

    Hi, kd25.

    I am a researcher, not a licensed physician or a pharmacist, so my comments should not be viewed as medical advice, but simply as information.

    I cannot give individual treatment advice unless a physician is directly involved to review my suggestions.

    What I can do is to tell you that if I were in your position, I would consider asking my physician if it would be O.K. for me to take a small daily dosage of oral activated charcoal, which is available at drug stores without a prescription.

    Charcoal will bind a variety of drugs as they pass through the enterohepatic circulation. It is the main treatment used by poison control centers, though they use large dosages for acute poisoning episodes. Charcoal can be constipating to some people, and if this is an issue, it can be slurried before taking with milk of magnesia.

    If you want to consider this, be sure to consult your physician to see if it would be alright to take it in your case.

    You may also be interested in reading my post of July 18, 2007, which discusses a treatment for CFS that among other things appears to restore the detox system back to normal. This treatment is helping about two-thirds of the people who are trying it.

  13. simonedb

    simonedb Member

    I take charcoal regularly these days, wonder if it would have helped a little after my surgery, seems a bit like using a squirt gun on a fire, but better than nothing i guess

  14. Smurfette17

    Smurfette17 New Member

    Kd 25,

    I don't know anything about surgery, but my husband is a surgeon so I'll ask him later tonight. He may not have anything helpful to say, but at least I'll try. Although it does sound like this more of an anesthesia issue than a surgical issue per se.

    [This Message was Edited on 01/13/2009]
  15. JewelRA

    JewelRA New Member


    I am so sorry you are going through this!! What a nightmare. I would ask your PCP for some kind of anti-anxiety medication such as xanax, to see you through this time until things return to normal. Also, do you take magnesium? That may calm you down a bit and lower your blood pressure. I pray that you are feeling better soon.

    On a personal note, I am so thankful to you for posting this. I have been going back and forth for 2 years now about having a lipoma removed from my neck. It is elective surgery, and according to the 2 surgeons I have consulted, "no big deal". Neither of them took my concerns about FM/CFS and chemical sensitivities seriously at all. Each time I called to schedule the surgery, I have "chickened out", just feeling like something wasn't right. I believe it was my intuition that surgery could really set me back. I went through a medication nightmare about 2 1/2 years ago, and am just now barely stable. I don't want to go back. l'll just live with the lipoma until I can find a surgeon who actually knows about CFS and chemical sensitivity.

    Also, my MIL had a skin cancer removed a couple of months ago. Just the local anesthetic (lidocaine) gave her a reaction like you are having. Fortunately only lasted one night.

    I hope you are much better soon. Let us know what's going on.
  16. kat0465

    kat0465 New Member

    for what its worth KD, i asked my fibro doc about anesthesia, and she said sometimes you can have problems with it for a while after surgery, not just a few days. and you know us were different anyways on how our bodies deal with meds & stress.also theres some anesthesia that we cant tolerate at all, theres a list on here somewhere about the ones that give us the most problems, you might check that against what they gave you. i printed them out & had a long talk with my anesthesthetist, she promised me she would stay away from the ones that give us problems, in my case it was the pain med after the surgery that did me in.hopeing your feeling better soon, as for the embolisim, i think they would have never sent yo home if that was the case.good luck {{ Hugs}} kat
  17. kd25

    kd25 New Member

    I am still dealing with the same problems.

    I went back to my PCP today to get the results of my CT scan - no pulmonary embolism, so that is good. He seems pretty baffled - took blood to check my thyroid, but I don't think that is the cause because I've had my thyroid tested often in the process of finding out I had CFS and FM, and it was alwyas fine. He also gave me a prescription for toprol. However, it seems to me that is for longer term high blood pressure treatment, not just a short term fix. But I will do more research on it and decide.

    I have questran/csm here. Does that work the same as the charcoal?
  18. kd25

    kd25 New Member

    I got a copy today of the report from and echocardiogram I had last week. It states that mitral valve leaflets appear midly thickened, borderline mitral valve prolapse, boderline global hypokinesis of the left ventricle, trace mitral regurgitation, ejection fraction 50-55%.

    Anyone able to help me understand the significance of these results? Thanks.
  19. Empower

    Empower New Member

    Sorry you are going through this.

    I went through something similiar after surgery 7 years ago (actually that is when my CFS started)

    My problem was exhaustion that never went away

    Have they checked to make sure that you are not dehydrated? (might explain why your heart is racing) This sometimes happens after surgery and you may need fluid.

    My sister has mitral valve prolapse and sometimes she gets the fast heartbeat

    It is frustrating and scary, isn't it??

    Are you taking any new meds? I had these symptoms after I started an antibiotic

  20. kd25

    kd25 New Member

    They have not mentioned dehydration, and I don't think I am, but how do they check for that?

    The only new meds I had were all the drugs they gave me before during and after surgery.