Hi, I have been ill for 26 years. In the beginning I tried everything and everyone to get well but it was the 80's and nothing was known about what was wrong with me. I was told it was in my head. Thru the 90's I went from doctor to doctor, from nutritionist to nutritionist and then from quack to quack hoping to find something so I could continue working. I even went for therapy and group therapy and the therapist told me I was physically sick and there was nothing she could do for me. I did acupuncture in 2000 and she saved my life. But she could never bring me to the point where I could work again. Then I gave up and did nothing until 2005 when I found Dr. Larry Sharp. Unfortunately I was to ill to make the 6 hour trip to see him more than twice. Then I gave up for the next 6 years and did nothing. Then I found out I was losing my health insurance so I thought there is one last doctor I have not been to so I better go and see what if anything she can do for me. She is a leading doctor in this field. She did extensive blood work and I have HHV6 and virtually no immune system. I tested twice for Lyme and it was negative both times. I have been seeing her for 11 months now. I have extreme difficulty trying to stand up long enough to peel 2 potatoes. I feel like I am going to crash to the floor. So I went and had a tilt table test done and the doctor found nothing wrong with me. As long as I can keep moving I am ok but due to the CFIDS I don't have the energy to keep moving. I can make it around a small grocery store to buy one days worth of food maybe twice a week. If I have to stand in line to pay I want to ask everyone to let me in front of them but I have never done that. When I get out to the truck to load the few bags of groceries I am in such a state it is unbelievable. I feel like I am going to die right then and there. I am taking anti virals and they are bringing down the viral load. This is the only thing this doctor has done for me. So when i get on this board and I read about all the things you are doing especially the mitocondrial post and the peptide post that I just read well I have to ask the question HOW do you understand all this information and HOW do you find a doctor to help you or is it something that you just have to research and research to find the answers. I now have no health insurance, no job, no disablilty and no chance of getting a job being this ill. My days and nights are totally turned around. When I wake up in the late afternoon it takes me several hours to get out of bed and move. I have sleep apnea and I was using the CPAP machine but my lungs were getting worse by the day. I think breathing thru the plastic was really affecting me. It is a shame because I could tolerate that mask on my face. So if anyone can shed some light as to how I would get started I would appreciate it.