Need help with headaches

Discussion in 'Fibromyalgia Main Forum' started by countrygirl, Nov 22, 2002.

  1. countrygirl

    countrygirl New Member

    I have had a headache for almost two weeks. I have been to the ER twice - they pumped me full of pain meds and sent me home - with the headache still there. Does anyone else with FMS have this symptom? I have tried heat, cold, massage, cranial-sacral, pain med., bed rest - all with no results. The pain starts at the base of my skull and radiate over my head into my eyes and around the rest of my face. It also goes down into my shoulders and back. The doctors I have seen are of NO help. Any suggestions?
  2. countrygirl

    countrygirl New Member

    I have had a headache for almost two weeks. I have been to the ER twice - they pumped me full of pain meds and sent me home - with the headache still there. Does anyone else with FMS have this symptom? I have tried heat, cold, massage, cranial-sacral, pain med., bed rest - all with no results. The pain starts at the base of my skull and radiate over my head into my eyes and around the rest of my face. It also goes down into my shoulders and back. The doctors I have seen are of NO help. Any suggestions?
  3. Shirl

    Shirl New Member

    You sure have tried everything.

    It sounds like you have 'two' headaches, migraine and maybe a sinus attack at the same time. I have had that many times.

    I cannot think of anything else to tell you, except that mine almost never appear anymore.

    I started drinking half my body weight in ounces of water a day. It took about a week, but I don't get bad headaches anymore. I also take a quarter teaspoon of sea salt through out the day too.

    I got this information from a great site on water. Here it is; www.watercure.com/intro.htm

    I read a book called; 'ABC of Asthma Allergies and Lupus' by F. Batmanghelidj, MD concerning water. It seems that most of us are dehydrated and that is one of the causes of our headaches and a host of other ailments.

    I sure hope you get some relief soon. I know exactly where you are coming from with that pain.

    Shalom, Shirl

  4. CAgirl

    CAgirl New Member

    I have had chronic headaches for the last eight years. Have you looked into Myofascial Pain syndrome? Your pain might be coming form trigger points in your muscles. There have been other posts about myofascial pain on this message board and you might want to look them up. There are also some good books about this and they explain why these trigger points cause headaches. One book I can recommend is, Fibromyalgia & Chronic Myofascial Pain Syndrom by Devin Starlanyl, M.D. It is important to find a massage therapist who knows how to eliminate the trigger points. I have tried myotherapy with mixed results. The technique they use is to push on the spots. I didn't get lasting relief. I am going to try a therapist in my area that uses more of a stroking technique.
    I hope you feel better
    Laura
  5. sheri

    sheri New Member

    I'm sorry about your headaches! I have migraines and sinus headaches...Had a migriane today at the Dr.s office. she has had them too and so has her nurse, they are the classic kind with flashing lights and auras, then the pain. I have had these for years,in younger years, I knew they were tied to hormones, because they came exactly mid-cycle...when I went through a few weeks of daily headaches , found I had high b/p...I had a Brain MRI done this Spring from so many clusters of migraines, and they found a couple of cysts in two different sinus cavities..sounds like you will have to do some searching and testing to find the source, and reason
    for yours. I truly hope you get relief soon. They are terrible and yours sound like they really must debilitate you.
    Take care, blessings, sheri
  6. LisaMay

    LisaMay New Member

    are the pits! I have had a constant headache for the last 10 weeks. I have tried everything I could think of. I asked my PCP for help - she offered me Zomig. It helped mildly. I asked my Neuro for help - he ordered a brain MRI (which of course came back normal) and he offered me MigraZone Caps. They don't even touch it. I saw an Opthalmologist (eye doc) - he prescribed me glasses. I haven't gotten them yet, but I doubt they will help.

    I definitely feel your pain in the worse way. I'm sorry that I can't offer you very much help, except to say don't stop searching for the answer. Lisa
  7. Mike

    Mike New Member

    Have you started or increased a medication lately? Everytime I start or increase a medication, I start to get headaches about a week later.

    Also sometimes you become intollerant to drugs that you have been on for quite a while. If you can stop any medications for a couple of days, this may tell you if the meds are causing the problem.[This Message was Edited on 11/22/2002]
  8. cls

    cls New Member

    Hi countrygirl,
    You will get better. I feel like I have been to hell and back with headaches. I too am a chronic headache sufferer, went about eight years with almost daily, migraine type headaches.

    I don't know what specialty of doctors that you have tried.
    A neurologist was my main doc for the headaches and we tried all the prescriptions under the sun, I even visited a well-known headache specialist and was hospitalized for the treatment he recommended, and wouldn't recommend that to anyone.

    It wasn't until I went to a physiatrist (a physical medicine specialist) for another problem and began receiving myofacial release therapy from a physical therapist that I began to experience relief from the headaches. Gradually, the headaches that I thought I would have to live with for the rest of my life began to ease up.

    For me, there were numerous trigger points in my scalp, neck, and shoulders.You can read about these in Devin Starlanly's book, Fibromyalgia and Chronic Myofacial Pain Syndrome which you can probably get from your library, and the Trigger Point Therapy Workbook by Clair Davies, which you can buy easily on line. These two books are my bibles and are chock full of information.

    As the musculature around those trigger points was relaxed from the myofacial release, my headaches began to recede and flareups of headaches are usually relieved by my FM drugs.

    As countrygirl, I don't know if you are restricted in the number of specialists available in your area, and whether you can find someone familiar with myofacial release. A massage therapist would be helpful with working with your neck and shoulders. You may be surprised as he/she works to find out how much tension you are carrying there.

    My physical therapist showed me some myofacial release movements I could do myself for my head and face. Basically it involves pressing on bony areas of your face, especially around the eyes, and gently pushing and pulling the skin. You must hold it in that position for up to 5 minutes. He also taught me to take hold of my ears (top outer end) and pull up and back gently and, again, hold for 3 to 5 minites. The pulling must be gentle and it is important to hold the position for a time. Releasing the holds should be gentle also.

    I hope that you will be able to find relief from your headache pain.