Need help with symptoms.......

Discussion in 'Fibromyalgia Main Forum' started by abbylee, Oct 1, 2005.

  1. abbylee

    abbylee New Member

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    A couple of months ago I noticed my hands and fingers were numb and tingling. I had an MRI and everything is fine. For the past couple of days my hands and fingers have been really cold, and really so have I.

    On another note, for some time I will have the urge to go to the bathroom (urinate) and when I go, I have to strain - a lot - but I'm always able to go. I recently added oxycodone to my med diet and trouble urinating is a side effect so I thought that was the problem, so I stopped taking it but it hasn't made a difference.

    Now that area is sore. I've had cyctitis before but this doesn't seem to be the same. I do not like to go to the doctor and am trying my best to figure out what this could be. Any ideas would really be appreciated?
    I don't think the hands and this other problem could be related but what do I know. I really don't want to have to go to the doctor.

    My doctor is 4 hours away, and if I see a doctor here, he'll want to know what meds I'm taking. In this state, doctors don't give narcotics to fms patients. These doctors will have a fit when I give them my med list, and I don't feel like hearing it - if you know what I mean.

    Please help.

    [This Message was Edited on 10/02/2005]
  2. Pianowoman

    Pianowoman New Member

    You may be brewing an infection, although very early. Be watchful because an untreated UTI can cause unwanted complications.
    In the meantime, drink lots of water and some have tried d-mannose and had good results. I haven't tried it myself.
    Just monitor youself for now, I think, but get to the Doctor if it gets worse.

    Keep us posted.

  3. Sheila1366

    Sheila1366 New Member

    I have never heard of that before.Why would dr.'s withhold pain meds. to peopel with fibro?

    I would get to a dr. and get that checked even if you have to drive 4 hours.That is along trip but you don't want this condition to get worse.
  4. abbylee

    abbylee New Member

    Thank you both so much for your help. I just don't know what to make of this.

    I had some oxycodone last night, so I'm still hoping that maybe once it's completely out of my system I'll get better, but in the meantime I may try d-mannose - but I've never heard of it. What is d-mannose?

  5. goodma

    goodma New Member

    Do your hands and feet have a bluish tint to them, cause it certainly sounds like you have this syndrome. It's easy enough to verify with your doctor.

    Get a doctor that is closer to you because if you have a real emergency you're too far away. Why are you taking oxycodone?

    Don't hide your medications from any doctor as it could be a matter of life or death (yours).

    Take care and I hope you see a doctor soon.

  6. abbylee

    abbylee New Member

    Thank you for responding. I take Oxycodone for breakthrough pain.

    When I lived in the same town as my doctor, it often took 4 hours to get an appointment - and sometimes an hour to get to his office because of traffic. It's no different here, except that I don't have the traffic.

  7. Pianowoman

    Pianowoman New Member

    I found this on a search for d-mannose. There is lots of other stuff!



    D-Mannose 09/02/05 06:08 PM

    You might want to do a search on D-Mannose. I know several doctors are recommending it (you don't need a prescription - you can find it at health food stores and some drug stores). Here's a little blurb about it from Dr. Mercola's site.


    UTI usually occurs when bacteria enter the opening of your urethra and multiply in your urinary tract. If you experience frequent urges to urinate and a painful, burning sensation during urination, it's likely that you have developed a urinary tract infection.

    Over 80% of UTIs occur when E. coli enters the urethral opening from the skin around the anus and genitals. This is not the same deadly E. coli mutant associated with unsanitary food processing. It's the normal E. coli found as part of the normal microflora in every intestinal tract.

    But even normal E. coli don't belong in the bladder and urinary tract -- where they will multiply and become an undesirable infection.

    If you are a woman, you are more susceptible to UTI because your urethral opening is near the source of bacteria (e.g., anus, vagina) and your urethra is shorter, providing bacteria easier access to the bladder. Also, if you use a diaphragm, and condoms with spermicidal foam, your risk for the growth of E. coli in the vagina is even higher.

    Men are not as prone to UTI's as women, but infections in men are still common -- and usually more severe. The prostate gland in men produces secretions that retard the growth of bacteria and a healthy prostate is one of the best defenses against UTI's in men.

    Microorganisms called Chlamydia and Mycoplasma may also cause UTIs in both men and women, but these infections tend to remain limited to the urethra and reproductive system. Unlike E. coli, Chlamydia and Mycoplasma may be sexually transmitted, and infections require treatment of both partners.

    Even Infants can develop UTI when bacteria from soiled diapers enter the urethra. And E. coli can enter the urethral opening when young girls do not wipe from front to back after a bowel movement.

    In fact, in all the many years that I have been practicing clinical medicine, it is my observation that one of the most frequent causes of these infections are less than careful hygiene after one develops loose stools or diarrhea.

    A naturally-occurring sugar, D-Mannose is absorbed eight times slower than glucose, and is not converted to glycogen or stored in the liver. It goes directly to the blood stream from the upper GI tract, so it's mostly filtered through the kidneys and routed to the bladder.

    The bladder lining is comprised of polysaccharide molecules. Finger-like projections on the surface of E. coli bacteria adhere to molecules in the bladder, initiating an infection. The reason E. Coli bacteria present such a persistent problem is that their physio-chemical makeup enables them to stick like glue to the inner walls of the urinary tract and bladder.

    D-Mannose is so remarkable that its chemical structure causes it to adhere to E. Coli bacteria even more stubbornly than E.coli sticks to human cells.

    Thus, the E. coli preferentially attach to D-Mannose molecules forming a compound that is expelled with urine. It's amazingly effective and many D-Mannose studies confirm this.

    According to the studies, D-Mannose works about 80-90% of the time; that is likely because the bacteria disabled by mannose causes 80-90% of UTI's. When mannose is taken the body redirects it to the urine, where it will start to show concentrations in the urine within 30 minutes. Once it is passed into the urine it goes to work immediately.

    The concentration of bacteria present will determine how long it takes to clear it out. Some mannose users are reporting that their symptoms are substantially better in 24 hours - 48 hours and totally cleared in 3 days.

  8. abbylee

    abbylee New Member

    I'll call some of the stores tomorrow and see if I can find this medication. I'm not having pain or burning, and I've not had an upset stomach but I'll try anything to avoid having to go to the doctor!!

    sheila - I live in SC, and from what I've been able to find out, none of the docs here will prescribe anything for pain for fms patients.


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