Need MAJOR feedback

Discussion in 'Fibromyalgia Main Forum' started by Natedagw821, Jan 20, 2007.

  1. Natedagw821

    Natedagw821 New Member

    Hello everyone,

    I have had FM for about 6 years now(im gonna be 25 in march). A new symtom has revealed itself; this started happening in Nov of 2006. My hands and arms hurt very very badly. I type on the computer a lot(I go to the University of Michigan-Dearborn) and I play a lot of video games. I went to my doctor in Nov and he said I might have Carpal tunnel in both arms :(

    Well, its now January of 2007 and I see a specialist in like 5 days. Im really worried because I hope this is not gonna be another chronic problem caused by the FM. I really hope that its something they can treat!
    Ive heard that there is a surgery for CTS; does it really work? I've also heard that they can inject a steroid into the arm; the steroid is cortizone.

    Please give me some feedback and please, by all means,,include me in ur prayers!!!!Im really worried about this....... :(

    Thanks again,

  2. katvwolf

    katvwolf New Member

    Hi Nathan,

    I was 22 when I started having pain in my arms, too. I was working long hours in customer service, was a single mom and was taking some post bacc courses. I have FM (though it wasn't diagnosed at the time) and they said I had carpel tunnel. They gave me braces for my arms and it helped A LOT!!!! (sometimes I still wear them when I'm on the computer). The pain got better after I quit my customer service job (I was a teacher after that). Have they given you braces for your arms? That would be the first thing I'd try.

    I would follow what the specialist says. Don't get discouraged and think that this might be FM. One of my friends just had surgery for her carpel tunnel on Tuesday, and it is supposedly going to help, but I can't tell you what kind of shape she's in until she recovers.

    I don't recommend cortizone shots, but that's just my opinion and I'm not a doc. I had a pain management specialist recommend them for me last year, but my doc told me that he didn't agree with this recommendation. Apparently, I would need so many for all my trigger points that he said I wouldn't like the way I felt or looked from them. You also have to get these every few months. On the flip side, I know people who have benefited from them.

    Good luck with your specialist. Try not to worry and take one day at a time. Let me know what he/she says.


    P.S. Do you play Guild Wars?

  3. cordy250

    cordy250 Member

    It's hard to tell from your description, but there is also a possibility that it is Thoracic Outlet Syndrome. This is one thing that I suffered from that was pretty successfully treated with physical therapy. If it is, do the exercises faithfully and it may resolve.

    here's hoping for something simple and treatable!
  4. enjoysue

    enjoysue New Member

    I'm not a Dr. but......

    The doctor will probably do the quick 2 tests you do to see if it is possibly carpal tunnel. You could google for that and do the tests yourself actually. I think fibro can appear similiar to CTS. You could also have tendonitis which is chronic for me so I know your pain. My heart goes out to you because my pain started when I was 26.

    I don't think they'd do a cortisone shot for CTS but I have done that for my elbow and even my knee and it didn't help one little bit so I personally don't recommend it to anyone I know. But with that said, it has helped other people.

    If I were you....and I know it will be hard, but it's for your health.....lay off the video games for awhile. I tell my kids that you don't know what good health is til you lose it. There's already what's been coined 'blackberry thumb.'

    One of my younger sisters had carpal tunnel surgery and she is just fine. Her job entailed alot of typing and she was just fine going back to that routine.

    I have kids ages 20, 22, and 24 and they play tons of video games plus the keyboarding online. I tell them that it will be really interesting in 20 years or so to see how everyone's hands and arms and shoulders are holding out. Repetition is a killer on wrists and other joints. Let us know how the doc apt. goes and what you find out. Good luck!!
  5. Natedagw821

    Natedagw821 New Member

    just letting you all know that i havent done any computer gaming in over 2 I will definitly let you all know how it goes.

    Thanks for the responses! :)
  6. jaltair

    jaltair New Member

    I've had carpel tunnel in both wrists with the right the worse. I had to see a neurologist. The outcome was moderate to severe carpel tunnel per testing. The choice was surgery or steroid injection. I chose the injection and it's really helped. That, along with wearing a brace at night to keep me from bending my wrists has made a tremendous difference and will keep me from having to undergo the surgery, I'm certain of that.

    What is pretty for sure now per many research articles and opinions is that carpel tunnel isn't from repetitive work injury but from sleeping with the wrists bent ... yes, that's correct, from the way we sleep.

    The main thing is to not let it get in the "pain loop" that I feel causes the FM – you need to get the pain dealt with as soon as possible.

    Surgeries are overused for the problem. Talk with your doctor and if appropriate, request injections. I was surprised how painless they were!
  7. findmind

    findmind New Member

    Gosh, my grdau, 18, started there just this semester...a beautiful architect student. She's had CFS for 3 yrs, missed last 3 years of HS, and passed the GED on first try with flying colors.

    I hope she can make it thru school; she still has lots of CFS symptoms, especially the sleep issues, but she's really determined, and I've told her if she plans out each day with rest periods, maybe she can make it.

    My shoulders go out on me from sleeping on them; I have FM and CFS, so don't know which one causes the problem! I do think Osteo Bi-Flex has helped the cartilage in some way, making it stronger, so it doesn't happen very often anymore. You might try takes about 2 months for it to be working, 3 a day for me.

    Good luck in school...!

  8. findmind

    findmind New Member

    bumpy, plz

  9. Natedagw821

    Natedagw821 New Member

    Thanks a lot for the responses guys,,and girls...I really appreciate it!!!!!!!!!!!! thanks again..I'll let you know what the specialist says on thurs...thanks!!!!!!!!!! :)

  10. Natedagw821

    Natedagw821 New Member


    It looks like I have mild CTS in both hands. They took X-rays of both hands and arms and everything lookz good joint-wise(Thank God!). He referred me to go to a neruologist and have an EMG done. That will be the deciding factor that will decide what course of action to take.

    My doctor told me that if I do have mild CTS in both hands he will only do steroid shots in both of my wrists; he will NOT do surgery. He says I'm too young for surgery. He also said that the shots really do make a difference.

    So, my question to you is this: do the shots really work? do they alleviate the symtoms for a long time or a short time?

    I am on the computer a lot(Programming micro-cpus etc) and I really need something that will help me out.

    Any feedback u provide will really be beneficial to me;

    thanks!!!!!!!!!!!!! :)

    ps. Im very happy that there is nothing serious going on with my joints: WHEW what a relief!!!!!!!!!!!!!!

    Nathan ;)
  11. sophiekk

    sophiekk New Member

    Nathan, I know several people who work with computers all day and developed carpal tunnel from using a mouse. They're symptom-free now from using a trackball; apparently it takes some getting used to but is well worth the adjustment period.

    I've had mild carpal tunnel/RSI myself, and physical therapy can also help. Not to discount surgery/shots, but it's good to exhaust all the options in adaptive technology and non-invasive procedures first!
  12. TinaJones

    TinaJones New Member

    Nathan - I have severe CTS in both hands. No risk just contribute it to my illnesses. I used to get shots in my wrists all of the time; they recommended surgery for me, but the doctor said that because of how bad my hands are - the nerves could be permanently damaged already. I've chosen to not have the surgery because I really think my hands are too far gone.

    Re: the injections - it hurts somewhat...doctors inject it in the middle of your wrist region. It's not like an immediate relief...but it works over a few days. Everyone is different - I found relief from the shots for about two to three months. However, most docs don't like to give injections too many times. One, because it's a steroid. The other - I can't remember now...sorry, my memory is shot - but I believe it had something to do with actually causing further damage with too many injections.

    I guese the thing I would question is your doctor saying you are too young for the surgery. I definitely would recommend trying everything first - from splints, to the injections, etc etc. But, if it your hands get worse over time, I would definitely recommend not waiting too long. The more damage the nerve gets over time - the more chances you won't regain function of that nerve back. I was 29 when they recommended surgery for me?

    Splints at night really do help. Short rounds of prednisone can really help, too. Not enough time to get all the yucky side effects from pred. - but short bursts, maybe 5 days worth, can really reduce the swelling and pain. I keep some on hand for the really painful times.

    Good luck to you :) You are young to have this happen, but remember not to let it go for too long. Having lost most of the nerve function in my thumb and two fingers (on both hands) - it can be really frustrating at times.

    Take care! --Tina
  13. Lindaanne

    Lindaanne New Member

    Using braces at night when you sleep keeps the wrists straight and gives the nerve a break. You can buy them at Rite aid etc or any medical supply store. They make a trememdous differance.
  14. marti_zavala

    marti_zavala Member

    I am in agreement with everyone else:

    Hold off on surgery as long as you can

    Give your wrists a break

    Wear splints especially at bedtime

    Ease up on the games as you already have

    I think steroids help anything but they really are not good for us long term. Maybe using them as cycle-breaker while changing your lifestyle.

    May I recommend a programmable keyboard? You can program various keys to insert various text strings. Then you just modify them as you need to. (I used to be a programmer but have been out of it for a while).

    Gateway had a programmable keyboard. Useful to insert functions and procedures then modify them. I don't know if there is software that you can purchase but surely by now there is. Each key combination can be used to insert various text strings.

    Just a thought.

    I prefer a mouse to trackball but if it helps then try it. Maybe an ergonomic mouse might be the trick for you.
  15. marti_zavala

    marti_zavala Member

    Why is someone bumping old posts!

    It is really aggravating as the people helping are going out of their way to write a helpful post.

    Not funny.