I Found out I have genetic disorder Neurofibromatosis! WHAT NEXT as if this FM wasn't enough????????????????? Found out when I got doctor records from Workers comp for my SSDI ap. Neurologist put it on his evaluation in 1988 that I have neurofibromatosis and cafe au'lait spots and freckles in areas the sun don't shine(I thought it was just birthmarks and a few moles and warts!)Should of been having MRI's at least yearly for most of my life! Searched on internet last night for neurofibromatosis resources at Harvard site and found letters from others on personal pages that had signs and symptoms like I have. NF1 Neurofibromas and lipomas etc. attacks nerves, organs, cranial & brain stem,eyes, whole body inside and out, & bones and NF2 has mostly Aucoustic Neurofibromas. I must have a mild case that didn't activate when I was a kid or teenager. I hope mine hasn't activated and I wish I didn't know about it. Doctors have missed it for years and pregnancy can make them grow faster as well as stress! I can't get through to my doctor(who thinks i'm neurotic and thinks every prob i have is FM) that I need a neurologist and full body MRI to see if I have lesions or tumors (which can be benign or cancerous and intertwined in nerves) on my nerve system that can cause a lot of my symptoms as well as a multitude of other health problems. My mom died at 42 from breast lump cancer which spread and aunt from brain cancer and dad has lumps on his head and arms. if they both carried the genetic NF OR if the gene mutates then i could have both NF1 and NF2. Am so scared now because this DD was bad enough but NF is horrible always waiting to see if neurofibromas or other worse things are growing inside me attaching to my cns system. The horror stories i've read are depressing and I don't want my family to suffer more than they already are. I love my family so much, but Feel like leaving and living alone somewhere so my family doesn't suffer IF mine's activated and complications/surgeries cripple or shorten my life span. I know God helps us through our trials even if he doesn't heal us completely.Please pray for me and my family!