Need some help please

Discussion in 'Fibromyalgia Main Forum' started by babycakes01, Feb 6, 2006.

  1. babycakes01

    babycakes01 New Member

    Wow so I'm new and I've been reading these boards for about a month now. I was diagnosed with FMS last week. My primary care doctor laughed at me when I told her I thought it was fibro and referred me to an orthopedist for surgery...on what? I don't know. So I went to a rheumatolgist and he said it was fibro. He said that he has lots of experience treating it and that he could help. The only problem is that he said he will not prescribe narcotic pain medicine so he gave me ultram. I can only take 1/2 of a 50mg ultram once a day before bed. My primary care doctor had me on Darvocet then Tylenol #3 then precocet and now she won't refill my perscription and he won't give me anything for relief. What should I do? Does anyone know about any doctors in northern Virginia who could help? I'm sorry this is so long I just need help I have a 1 year old child who needs her mother and I have to work full time as well. Thanks for listening.
  2. Cromwell

    Cromwell New Member

    I am sure people who use these meds will be able to help you on this board. I don't so I really cannot be much help except to say welcome, and I can help with psychological issues,(past career) but not well up on pain meds.

    Hope you get this sorted out. The rheumy seems to know what he/she is talking about but I wonder how "up" your other doc is as she sent you for surgery??????? Maybe it will be worth trying the new pill regime for a couple of weeks?

    Love Anne
  3. babycakes01

    babycakes01 New Member

    I appriciate the support from everyone. I've been taking the ultram for 5 days now and it just makes me tired and doesn't help with the pain. What kind of treatments and medications have you all tried?
  4. tandy

    tandy New Member

    Wow!! that half of Ultram must do wonders!!
    LOL
    what the hell is this dr. thinking!!???
    I take 2 ultrams and still complain of pain.
    So many drs. will not prescribe narcotics.
    But alot of us NEED them.
    Maybe you could ask to see a pain specialist in your area?

    They have helped many people with Fibro.
    although I did'nt get anything from them either.
    To me,.. these drs. act like we're asking for heroin!
    I'm asking to be free of pain and whatever that takes,..thats what I want.
    Best of luck
    Nice meeting you
    Tandy
  5. shan1078

    shan1078 New Member

    I'm kind of new to this board also (about 2 months) and have been diagnosed with Fibro for about 4 months now.

    My primary care Dr. is pretty good. She had given me Tylenol #3 for pain, but I'm affraid I'm going to need something stronger. Anyway, she referred me to a Rheaum. Dr. and she was the same way about Narcotics.

    This makes me crazy!! She said "narcotics don't really work for people with fibro" I wanted to ask her how long SHE has had Fibro, and what her expreience was!! She put me on Neurontin, which, has worked a bit, but I've already put on 5 lbs. from it.

    I definately know what you're going thru. I think I'm going to go thru my phone book and call all of the Rheum's and ask them if they treat Fibro.

    And you should definately get another Primary care Dr. I would NEVER see a Dr. that would laugh at my pain!!Keep me posted and let me know how all of this works out!
    [This Message was Edited on 02/07/2006]
  6. shan1078

    shan1078 New Member

  7. babycakes01

    babycakes01 New Member

    I just got off the phone with my rheumy and he won't do anything for my pain except give me 1 whole ultram at night. I'm fine at night it's the morning that I have the worst pain I need something that can make it not so difficult to get out of bed and go to work and play with my kid. He said he doesn't want to be responsible if I get in a car accident or something. I've been on percocet 3 times a day for a month I think I'll be fine on the ultram. What is wrong with these people. Then he wants to refer me to pain management but I would have to drive 2 hours to the office. My head is going to explode.
  8. 69mach1

    69mach1 New Member

    i have tried many different pain meds...they cause me side effects and allergic reactions...

    and opiods (sp)? anywho, they can make depression worse...

    i deal depression/anxiety...someways to deal with the pain isby taking different types of antidepressants...trial by error..some people here have had great experiences with cymbalta//i on the other hand did not...
    keep plugging away...maybe see a psychiatrist for the meds...

    jodie
  9. babycakes01

    babycakes01 New Member

    I was on celexa, lexapro, and wellbutrin for depreesion and anxiety for awhile and they helped with the depression but they didn't help with the pain and after I had my daughter I didn't feel depressed anymore so I stopped the medication I've been fine mentally. Sometimes I have bad days if I'm flaring or you know how you can just be sad from time to time, but nothing like before. I'm going to look for different doctors and maybe a pain clinic. Everyone here is so nice and I do really appriciate all of your input. If anyone ever needs anything just ask.
  10. kch64

    kch64 New Member

    Hi babycakes,

    I am the lady that went to see Rothenberg. He did give me a pain medicine, but my pain isn't that bad right now.

    I will probably not go back to him for myself, but I wouldn't tell anyone else not to go.

    I just found a doctor in Arlington named Dr. Terlinsky. I have an appointment with him on March 1st.

    He's closer and he is also available as a Internal Med doctor. I'm going to try him, but he is expensive.

    I've been having more trouble with the fatigue lately. However, I'm working on it with supplements. My advice is to read everything. Start taking a good multivitamin. Take a calcium and magnesium supplement. Magnesium at night helps sleep.

    There is another doctor in Aldie VA that I has been recommend by the name of Dr. Norman Levin. I've heard good things about him. He doesn't accept insurance, so you'd have to pay first and then file with your insurance.

    Who's your primary care doctor.. the one that laughed at you?

    Hope this has helped you some.
    Regards,
    Kendra
    [This Message was Edited on 02/07/2006]
  11. kch64

    kch64 New Member

    Dr. Levin is a Board certified Rheumatologist. So if he does do some alternative medicine, its because he's intgrated it into his practice.

    Just letting you know for reference.

    Take care.
    Kendra


    P.S. As far as Dr. Rothenberg, I just thought his comment to me was a little out of line. Such as he confirmed I had Fibromyalgia and CF but he said " but I don't know why you've missed so much work". Another words, I'm sick, but I'm not supposed to be sick?

    He seems a bit peculiar to me. He gave me ultracet, but I've not taken it. After writing the prescription he basically sat there and told me that it had no "street value" if I wanted to sell it, it wouldn't be worth anything. Then he said " and if you're taking it and you have an accident, it will be driving under the influence". Who wants to go through that? Not me. And why the heck would I want to sell it? Then he said "Lyrica is better, but it's a controlled substance even though its not a narcotic". I don't give a crap. Why not give me something that's going to help me. So basically, I don't trust him now. That may sound strange, but it's how I feel.

    My pain isn't that bad lately. I'll keep it for another time, or have it filled and put it in my medicine chest.

    I'm not much for meds because they give me weird side effects usually. However, if it gets bad enough, I would try it.

    K.[This Message was Edited on 02/08/2006]
  12. dwjdf

    dwjdf New Member

    If youv'e been seeing your primary dr for a while now he should know you well enough to know that your not there to get drugs to sell. (its very common in the US). He should be able to tell the rhoumy dr that your not a dealer or a substance abusor. My rhoumatoogist gave me drugs that were best for arthritis. He also sent me to a pain relief specialist. I love them. I've been able to try all kinds of meds, even morphine, she has me on methondone 80 mgs. plus 40mg of norco for bad flare ups. I also get sleeping pills. trazadone for rls. and I see a physical theraphist, and another that gives me shots in my hips for pain. I thank my lucy stars for them. next time you go in for a visit take some articals in with you for your doc to read. When I'm in pain and see a dr I won't take no ###$#%
    from any of them. Its your time there wasting not the other way around. Don't be afraid to say anything to them, life is to short and when most of it is spent in pain, you don't need them to add to your stress level-which is not good for you. I take a list of my complaints with my to the drs and we both go over it (side affect is memory loss).
    I will also pray for you, but most of all I will pray for your drs to get 'with it'
    love
    wendy
    ps sorry its a long one. and a pain management specialist would be a good one to see, thats all thay do is give you pain meds
    GOD Bless


    [This Message was Edited on 02/09/2006]
  13. babycakes01

    babycakes01 New Member

    Thank you all so much. You have given me some hope back. I'm really glad I found this board it seems like everyone is really caring and close which is good because not everyone can understand our pain. Thank you all for the encouragement and kind words. If there is any way I can help please don't hesitate to ask. Here hoping everyone has a flare free day.