Need your opinion on letter to my GP thyroid

Discussion in 'Fibromyalgia Main Forum' started by JoFMS, Jun 8, 2008.

  1. JoFMS

    JoFMS New Member

    Hi All,

    After so many visits to docotors again now that I have deteriorated, I have written a letter to my GP as I wish to follow the metabolic treatment of fibroymlagia written by Dr John Lowe.

    Can you give me any advice, crtiticisms or tips? I live in South Africa so I guess it will be slightly different in approach but would like some of you to read it before I take it to him.

    "After being very sick for over 5 years, researching daily about fibromyalgia since being diagnosed in 2006 and being referred to different doctors, I realize I need to take my health into my own hands for such a complex condition but need your help and expertise with tests and prescriptions. As you maybe aware, there are now scientific papers published and written by certified pain specialists in fibromyalgia and hypothyroidism. These state that 44% of fibromyalgia patients suffer from central hypothyroidism due to the HPA axis not functioning correctly which the TSH test is unable to detect and 90% of fibromyalgia patients have an underlying hypothyroid disorder whereby their symptoms can be improved or eliminated. Therefore, I would like to have the following test:

    TRH stimulation test

    My TSH result is 3.4 and much research now shows that many patients with similar serious symptoms such as mine are being mis-diagnosed and do not feel better when these tests show within the ‘normal range’ until at their own optimal level of 1 for example.

    If this test comes back as normal, or failing to do the TRH stimulation test, I would still like to be put on a trial of Armour thyroid (not synthetic) based on my symptoms for a min of 2 weeks. I belong to a well known online fibromyalgia support group and am researching the 1200 page book ‘The metabolic treatment of fibromyalgia’ written by specialist Dr John Lowe which will help guide me through to optimal health.

    My current symptoms are as follows:

    Pain in neck, shoulders, back constantly
    Stabbing and nerve pains
    Migraines & pressure in head
    Dry skin and hair
    Intolerance to cold & noise
    Muscle weakness & pain
    General sick, poisoned like feeling all over
    Fatigue, lack of concentration
    Exercise intolerance
    Frequent urinating & dehydration
    Sleep disturbance
    High anxiety and social isolation
    PMS – worsening of pain and emotions
    Mild depression on occasions

    I do not wish to be referred to a psychologist or be put on anti-depressants, I need to treat the underlying cause so I can get onto a programme of recovery.

    Thank you for your understanding,

    Yours sincerely,"

    Thanks for reading and comments please1
  2. JoFMS

    JoFMS New Member

    Hi Jamin,

    I haven't got the book yet by Dr John Lowe but thought his recommendations are Armour? I'm a little confused by the T3 protocol?

    Can you let me know if there's a difference?

  3. GigglePoet

    GigglePoet New Member

    HI Jofms,
    HI friend, please go and hook up to web site called, you will be glad you did. I have been one of those cases. I can say because of my persistance to find an answer my GP has worked with me and took a journey with me in this direction and I am feeling better. I can't believe what I have been able to do as of late. I am convinced this all is a big issue. It may be yours? Do check this out and be informed before going into the doctor.

    God bless
  4. JoFMS

    JoFMS New Member

    Hi Giggle poet,

    Funny, I was also looking t that website last night 'stop the thyroid madness'. It makes me so cross that there are so many people out there that are suffering and some of them may be able to be helped if doctors didnt always use blood tests etc or looked into them more closely.

    Finding a doc that can help is the real problem and I don't understand why we have to suffer our whole lives because we cant get a prescription of something we believe we need.

    I'm trying to be assertive and get the meds I feel I need and if it doesnt work - wel at least I tried but just imagine if it could give me 40 more quality yers instead of miseable ones - they are playing with our lives and I don't like it one bit.

    Docotrs need to look at research, I dont know how the medical system works but if this gets me better I will tell every docotr I have seen how.

  5. geri_fi

    geri_fi New Member

    I have suffered with seemingly every symptom to the point of being too sick to leave my bed for about 4 months a year.

    Then I found a doctor, who after hearing my symptoms on the phone, immediately doubled and then tripled my dose of thyroid medicine. After about 2 days of the higher dose, my health turned a 180.

    My earlier docs adusted the meds to bring my blood test to just within the norms. The new doc ajusted them to bring my blood test to the other extreme within the "normal" range.

    I am taking the cheap synthetic stuff and for me just getting the proper dosage has been a blessing.

    Something to consider if you can't get/afford Armour.

    P.S. It's not in your head.