??NEG West. Blot. What Now??

Discussion in 'Lyme Disease Archives' started by Hope4Sofia, Sep 23, 2008.

  1. Hope4Sofia

    Hope4Sofia New Member

    Just got the results for the west. blot and they were negative. I've been tested for just about everything else and Lyme clearly fits my history the best. Dr said she would refer me to specialist if labs were neg. Just wondering what good this will do me.

    So frusterated. Have been down this road for so long. Just trying to live a normal life.

    Thanks for any thoughts you might have.

    Sofia
  2. jess

    jess New Member

    HI Sofia, I'm in the same boat as you. My western Blot was negative also. Lyme is a clinical diagnosis. My LLMD still hasn't made up his mind if I have Lyme. Did you have the Igenex test? CD-57? How were these results? It is not definitive for Lyme but so far Lyme is the only illness that causes low levels. Mine was low. Mr Dr. says there are too many controversies for him so he just looks at it and keeps it in mind. I am presently being treated first for heavy metals. He is thinking about having me try an antibiotic. I would just like to have some treatment as I am not feeling very well. Also, it could be that if you have been sick a long time then your body may not produce any more antibodies. This might be the case for me. Well, I wish you the best and keep us informed, Jess
  3. victoria

    victoria New Member

    but there are certain bands in particular that are important. There are some good posts on this board about how to look at it. Also, if IGeneX did your test, they will have more information about the different bands... even if another lab did the test, you can look at IGeneX's site and compare your results.

    So, firstly, get your results in hand so you can look at them.

    But, the best in reliability for testing (IGeneX) is only 70% (the other labs companies have lower reliability rates), so keep that in mind. Even if nothing shows up, it doesn't necessarily put you in the clear. That is why even the CDC says it is a clinical dx.

    Others report that their tests only show positive after being treated with abx for 1-3 months or so, as it seems to flush them out into the bloodstream. Keep in mind that lyme and coinfections can invade our tissue cells, even the white blood cells, and may not be active in your blood stream when your test is taken, so no antibodies.

    Add to that the myriad of other diseases ticks can transmit - CDC also reports 95% of insect/vector born diseases is caused by ticks, includes mycoplasma, bartonella, & babesia to name some of the more commonly found ones. Unfortunately tests for those are way less than 70% reliable, even after taking abx, so not even really worth the $$$ (IMHO).

    This is why the 'usual' doctors can miss it completely... it would be worth your while to find a good LLMD and be evaluated.

    hope that helps... it is a very complex problem to say the least.

    all the best,
    Victoria


  4. Hope4Sofia

    Hope4Sofia New Member

    I don't have the actual results yet. I've asked the drs office for a copy but haven't received it yet. I will certainly post them when I get it.

    Thank you,

    Sofi
  5. victoria

    victoria New Member

    just wondering what your doctor thinks, and if you're doing any protocol for lyme currently? or any other infections!

    At any rate, I hope you're feeling better! That's one cute baby you have!

    all the best,
    Victoria