Neurolgist anyone?

Discussion in 'Fibromyalgia Main Forum' started by puppy2dad, Apr 25, 2006.

  1. puppy2dad

    puppy2dad New Member

    Does anyone out there get treatment from a neurologist? He is sending me for several tests because I have migraines and whole areas on my body that are numb. He told me if we can't find an organic reason for my problems,he was going to send me to a neuropsychiatrist. Has anyone else gone thru this?
  2. Cromwell

    Cromwell New Member

    My neuro is less than useless so if this one seems OK then go along, but watch out. I have had numbness on the left for almost a yeara now and all mine does is shrug. I am trying to find one in another town as he is the only one here.

    Don't let him tell you you are mentally ill BTW. You aren't.
    Are you sure he did not say neuroPhysiatrist which is like sports med?

    Love Anne C
  3. julieisfree05

    julieisfree05 New Member

    You sound like you have "Multiple Chemical Sensitivities".

    I was dx'd with MCS when I told my FM Specialist that I couldn't wear perfume, using cleaning products, or even walk down the laundry aisle at the store.

    I would get severe headaches, nausea and dizziness whenever I was exposed to anything like this.

    It frequently overlaps with FM/CFIDS.

    After about 7 or 8 years, it did get better, and after the Xyrem, it completely disappeared.

    julie (is free!)

    She could have laid in bed for hours
    givin' misery the power
    but she didn't have time.. - Terri Clark
    [This Message was Edited on 04/28/2006]
  4. findmind

    findmind New Member

    Don't get me started on Neuros, LOL

    I hate them...last 6 I've seen were so arrogant and put-downish, I'll not see one again.

    Now neuropsychiatrists do some very unique testing...including nervous system and cognitive functioning. So
    if you have any of those problems that
    could be affecting you, he'll find it.

    BTW, I always suggest them if one is trying for SSDI...

    findmind
  5. itsstillme

    itsstillme New Member

    Finally someone else that's stepping up....my orthopedic ppls hv neuro specialist in same office and have been seeing for chronic muscle weakness/fibro/restless legs...she's been pumping me w/questions about "do I cry everyday" and blah blah blah...(I do have bit of depression, but because of health problems...primary care prescribed prosac)...and because after surgery for hip replacement 9 mos ago, my fibro is reared again full force and cannot get a handle on it...lots of problems...took 8 mos to get any feeling back in surgery leg and now hurts constantly....more exercise done worst I get...so orth dr even suspended PT...Now...neuro or what she is is prescribing and pushing for me to take a med at night time..I tried once or twice and not comfortable w/it...she chewed me out and said take it every night...and gave me another prescript for it...I went and had it filled and was surprised to find that it was subscribed under another Drs name when went to pick it up at pharmacy...went home and looked at the other med bottle and it too was prescribed under still another dr name different from either hers or the one she had just given me...I went on-line to check this medicine and have discovered it is an anti-depressant...not meds prescribed for restless leg, as she lead me to believe..and also not good w/people that have had seizures...I have had panic attacks in past and now very afraid of triggering those again...had couple in past few months....I am in process of asking for a hearing on disability that I have been denied and know if don't do what drs say disability will think I not trying to get well...MY GOD...who can help listen to us....think gonna call my lawyers office and ask what my options are...Scared..HURT..PAIN...AND NO ONE WANTS TO LISTEN..NO JOB...AND then they wonder if you might feel alittle depressed!!!!

    Signed...

    the 'I AM NOT CRAZY PATIENT'....
  6. suzetal

    suzetal New Member

    She is great.She found my pinched nerves in my back plus my carpor tunnel and tendanitise that I just had surgery for.It was a huge success I no longer have pain in my left hand.

    She is also the one that put me on neuontrin and with the combo of cymbalta from my other doctor I am out of bed now.Its been a full yr.

    I see her every 2 months we talk to see if I have anything new.I also told her how expensive cymbalta had gotten 537.00 no plan and 207.00 with plan for a 30 day supply.Well she gave me for free 30 days worth of sampls to help.

    I have been very lucky to have found 4 doctors that care and believe in FM and CFS.Plus I have other problems.

    I wish you luck please give it a try it may help.I try anything that might help.I want the old me back and I do believe I will get there .

    Sue
  7. bunnyfluff

    bunnyfluff Member

    So I'll have to let you know. Most of my problems seem to be more neurological in nature, so it made more sense to me. I didn't seem to be making any more progress with my rheumy.

    I am obsessed with a solution. I cannot fathom living the next 30 yrs of my life this way. I can't believe that I've had to waste the last 6 in pain. With all of the new drugs, I am hoping that there is some new things that will help me.

    Bunny
  8. Cromwell

    Cromwell New Member

    What a horid doctor. I got a book from the library last year about neurologists and apparently it is common that they are meanies. Those of you who have good ones well done! I note one is female, maybe thetre is the diff though some here have bad female ones too.

    What IS it wihtb these neuros and trheumies?

    Love Anne C
  9. claudiaw

    claudiaw New Member

    personally I think CFS/FM should be treated under an endocronologist.

    I think thyroid,thymus,adrenal's and other hormones play a big part of our condition.

    Just my opinion, having not been helped by anybody else.:)

    Best wishes,
    Claudia
  10. wildflowers2

    wildflowers2 New Member

    I found a great one that specializes in CFS/FM and
    is a Saint.




    Wildflowers2
  11. jake123

    jake123 New Member

    Mine is a good one. He has worked very hard to fine tune my meds and spends as much time as necessary to talk to me. He is good at asking questions to narrow down the possibilities. The best thing is that he believes me.
    He has taught me how to use my meds for body pain, these are meds that are meant for migraine. It is very difficult to take care of myself in my classroom because it is not a classroom I can leave unattended. I have a teaching assistant but sometimes she is absent, on an errand, etc. I won't take a pill in front of my kids because some of them have drug problems and may get the wrong idea.