Neurontin report from Polliwog

Discussion in 'Fibromyalgia Main Forum' started by polliwog, Dec 5, 2002.

  1. polliwog

    polliwog New Member

    Hi everybody,

    I am in a lot less pain since my doc upped my dosage of Neurontin. Most of my leg pain is gone as long as I keep a steady level of the drug in my system. I am sleeping better, and have less fatigue during the day, but unfortunately, it hasn't prevented all of my body aches and pains, and I still tire easily and my "sore spots" are still ouchys! But overall it seems to be making a huge difference in my overall pain levels. Hope this might help someone else. Love Polliwog

    PS: Oh yes, I not having the sleepiness, and drunk feeling that I had on the meds at first. I guess you can eventually build up a tolerence for it that lets you function. At first it was awful, but now I seem to wake and do OK during the day.
  2. polliwog

    polliwog New Member

    Hi everybody,

    I am in a lot less pain since my doc upped my dosage of Neurontin. Most of my leg pain is gone as long as I keep a steady level of the drug in my system. I am sleeping better, and have less fatigue during the day, but unfortunately, it hasn't prevented all of my body aches and pains, and I still tire easily and my "sore spots" are still ouchys! But overall it seems to be making a huge difference in my overall pain levels. Hope this might help someone else. Love Polliwog

    PS: Oh yes, I not having the sleepiness, and drunk feeling that I had on the meds at first. I guess you can eventually build up a tolerence for it that lets you function. At first it was awful, but now I seem to wake and do OK during the day.
  3. Kathryn

    Kathryn New Member

    I am glad the Neurontin seems to be working for you. It seems to help me, as long as I remember to take it. I really regret it in the evening on the days that I forget to take my morning pills. It is one of the few prescriptions that I did not get a bizarre reaction to, so it really surprised me to have it work so well. I hope it continues to help you.
    Kathryn
  4. JaciBart

    JaciBart Member

    I am going to my dr soon and it is on my list to ask for. I know he will be ok with that as he does understnad this dd.

    I am anxious to see if it helps me, a few q's though.......

    How long did the icky feeling last? Should we just get thru it and keep trying? What type of symptoms can we expect? How about weight gain, sounds as if this a problem for some?

    Thank you so much, glad it is helping you.

    Jaci
  5. Mikie

    Mikie Moderator

    Klonopin is also an antiseizure med which doesn't require all the dose adjustment that Neurontin does. Most of us on Klonlopin have been on the same dose without building a tolerance. I never had any icky feeling from taking it, just 8 hours of good quality sleep, elimination of anxiety, and huge decrease in sensory overload. My tinnitus is also greatly reduced.

    Love, Mikie
  6. JaciBart

    JaciBart Member

    I did librium for 12 yrs and I got so addicted to it, it was a horrible experience trying to get off it and it required the help of a specialist, not an easy thing to get over, worse than heroin I bet.

    I have to avoid benzo's, funny thing was as I was tapering off is when I went thru all the trauma with my hubby & that is when I got this dd. Took my last benzo on July 1 and it is just NOT an option for me. I wish it was, it is the most comfortable I have ever felt in my entire life when I took 10 mgs librium 3 x a day. I have wondered myself if I were on it again would this go away???

    Personally I think it would but no doc will rx them to me!!! Dang.

    Jaci
  7. catgal

    catgal New Member

    Hello Polliwog~~I haven't ever taken neurontin, but know there are alot of people who do. I have FM, CFS, Degenerative Disc Disease (ddd), Rheumatoid & Osterarthritis, and severe Asthma. Before the ddd was diagnosed I thought all my back pain was FM and took Ultram for a year, but it wasn't potent enough. When the ddd was diagnosed I got no help from the Orthopedist or Rheumy, but found a primary physician that was willing to treat chronic pain of this type. I take oxycontin for long-term relief; percocet for breakthrough pain; soma for a muscle relaxer, and klonopin for sleep and nervous leg syndrome.

    If you are not getting adequate relief from your present physician, I would encourage you to find another doc that is willing to help you with all your ailments. Without getting full coverage for all your aches & pains, it is difficult to ever feel well.

    However, with all my medications--I still have some bad days and painful flares...just not as often. I have been in a bad flare this week, had to work, and could barely function. Not even the meds seemed to help as when one ailment goes into flare--they all flare up.

    I find that when I get in this painful condition, the best thing I can do is take my meds and REST. With all the work that needs to be around the house when I get off work--I promise myself to take at least one day and do No-Thing but rest and rejuvinate my Spirit.

    I hope you find a good doctor that will take into consideration all of your health problems. Your "quality of life" is everything, and we deserve to feel as good as we possibly can. Best Wishes, Carol...