Discussion in 'Fibromyalgia Main Forum' started by honkers, Apr 7, 2006.

  1. honkers

    honkers New Member

    Hi all - just found this site. I am on the Peripheral Neuropathy message board but recently my neurologist thinks I have FM too! Can any of you tell me if you have an actual diagnosis of small fibre neuropathy with FM. Mine causes terrible burning, prickling and deep aching which was first in feet now in both legs, hips, buttocks and hands. The strange thing is that I keep getting really ill too - I mean vomiting, migrane headaches and intolerance to many things which I never had before all this. I am told this is not a symptom of PN. Also do any of you have menstrual problems with this disease? My periods went crazy around the time I was diagnosed (4 years ago) and I wonder if a hormonal shift could have kicked it all of (I'm 47 now).
    Thanks so much for your help and glad to have found you all.
  2. winsomme

    winsomme New Member

    i know that some DRs believe that Peripheral Neuropathy is something that can develop in people with Chronic Lyme disease.

    there is a neurologist in Orange, CT that treats this condition with IVIG and antibiotics. it mightbe worth getting tested for Lyme disease.

    unfortunatelty the only reliable test for Lyme is done by a lab called Igenex, and usually only Lyme specialists use this lab.

    if you want nroe info let me know, or also do a google for "Lymenet". This website has discussion boards that go over all this in great depth - including testing and treatment. look for their "flash discussion" section for medical questions.

    [This Message was Edited on 04/07/2006]
  3. Forebearance

    Forebearance Member

    I'll give you what I've learned in a nutshell, too.

    I'm more of an all-natural, no prescriptions type person. (except for hormones)

    Try 5-HTP for headaches. And also Cranial Sacral Therapy.

    Corvalen works on digestive motility (at least it does for me). You could try it before you go through an icky medical test. It's not a drug, just a sugar for muscles.

    There are many other things for estrogen imbalance besides the horrible premarin (pregnant mare's urine). I take a little soy phytoestrogen to help me sleep and avoid night sweats. There are also bioidentical hormones, which I haven't taken myself but have heard good things about.

    For sleeping well, try calcium and magnesium. Don't be shy about taking a lot. I take 2500 mg of calcium lactate a day, and 600 mg of magnesium asporotate. I've never had to take a sleeping pill.

    Oh yeah, I'm 44 and have had CFS for 16 years, but have never been diagnosed with fibromyalgia. I have neuropathy, too, in my vulva and running down the insides of both legs. Sympathies to you about your nerve pain.

    You might try searching past messages for "nerve pain" or "neuropathy". It seems to come up regularly as a subject!

    And please research all suggestions for yourself and use your own good judgment about whether they're right for you.


    [This Message was Edited on 04/07/2006]
  4. Crispangel66

    Crispangel66 New Member

    I have fms and have for about 12yrs and I also have Peripheral neuropathy from diabetes. Your pain from peripheral neuropathy sounds alot like mine. Sometimes it is worse thatn my fms. When I still had periods before my hysterectomy I had alot of problems with my periods. But it sounds to me like you have a double whammy like me.

  5. Densgirl

    Densgirl New Member

    I too have both. I was diagnosed with Small Fiber Neuropathy first in my legs and feet. I do not have diabetes. Then I started having chronic pain in my head, neck and back. I went through extensive testing before the Fibro diagnosis. I'm currently taking Lexapro with very little results. The Neuropathy in my feet is bad and it's pretty constaint. I do not have the stomach problems and am sorry to hear you are so sick. Hope you can get help here.

  6. Cromwell

    Cromwell New Member

    That FM and neuropathy go hand in hand. So many of us here have the burning pain tingling and numbness associated with neuropathy. Valium works best on mine.

    Welcome and good luck.

    Love Anne C
  7. laura81655

    laura81655 New Member

    Hi Pauline, I was also told I have small fibre N. in my feet for the past year. It has not really traveled up my legs, yet anyway. I take elavil and Neurontin for the pain but it only helps somewhat. I also have FM. I have found for me that walking in a warm therapy pool with tennis shoes made for water use helps my feet. It takes the pressure off of them.

    I also have to make sure I avoid alcohol and drink a lot of water. If I get dehydrated my pain is also a lot worse everywhere.

    I am sorry for your pain but I am glad you found this site. I hope you can find some help here.


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