Neurostimulation: PLEASE HELP?!!!

Discussion in 'Fibromyalgia Main Forum' started by Fibrotears, Oct 9, 2009.

  1. Fibrotears

    Fibrotears New Member

    My painspecialist wants me to go for a neurostimulator implantation, because my pain is so worse and totally out of control.

    But I don't know what to do, because I'm too scared to go for the procedure. It can be a dangerous procedure if the surgeon doesn't know what he/she is doing and in my case my paindoc have no experience with neurostimulator implantations, so I will be his guinea pig! So, if the surgeon doesn't know what he is doing he can damage the spinal cord and that can lead to paralyses! I don't want to be paralysed at 25!

    I don't know what to decide! I don't want pain anymore, I can't handle the pain anymore and painmeds are starting not to work! But I don't want to conscent to a procedure that can be dangerous and might not even help. But what if I do not go for it and many years later from now I find out that it works, won't I regret it!

    Did one of you have a neurostimulator implantation and if you did, did it work for your pain specifically pelvic pain ? What are the side effects? What are the benefits ect.

    I'm so confused and do not know what to do and I'm in so much pain!!!!!

    Please let me know?

    And please pray for me?

  2. bobbycat

    bobbycat New Member

    I would go for a second opinon. I have not heard of anyone else on this board having one or suggesting one however, they could have. I would type that in the search engine to look at older post for information.
  3. AuntTammie

    AuntTammie New Member

    I second the advice to get a second opinion (ha ha, pun truly not intended)........seriously, though, I am sorry that you are in so much pain, but I would hesitate to have the surgery with an experienced doc, let alone with one with whom you would be the first

    if it turns out down the road that a lot of people are having this done and it helps them, it's not like you couldn't still have it then, but if you have it done now and something goes wrong, you can't undo it
  4. gb66

    gb66 Well-Known Member

    There are some on the board who have tried medicines for nerve pain (not pain killers). One of them is called neurontin, I think. I haven't tried it but you might want to look into this before deciding whether or not to have surgery. There is also another post on here titled "anyone have pain like this" that discusses pelvic pain in particular. GB66