Never ending battle

Discussion in 'Fibromyalgia Main Forum' started by daytrippersoul, Jan 18, 2010.

  1. daytrippersoul

    daytrippersoul New Member

    It seems I am gone for a long time then I come back for a short period of time. I'm not sure why that is but it is!

    Well.....I still have Fibromyalgia..going on my 10th year now and still no improvements. I'm exhausted since I now have a 2yr old baby girl named Gabrielle which gives me no time for rest. I am taking liquid methadone to help manage my pain and Ibuprofen600 so in case of a headache or a pain in my pinky toe. The methadone works okay but when I do something..for example: change Gabby or wash the floor I'm in excruiating pain. I wish I was off the methadone so I could take something that will work for flare ups and for when I do something so simple that to others who don't have FM doesn't bother yet it brings me severe pain. I am feeling soooooooooooo lost and soooooooooo depressed. I don't even want to have sex with my b/f of 7 years anymore and I ALWAYS wanted to be with him but I have gained 30lbs. being on methadone that I don't feel sexually attractive anymore. Ahh..well...gotta is napping and I'm tired so off to my 45min. nap I goooooo.....zzzzzzzzzz.

  2. Yucca13

    Yucca13 Member

    Please be very careful with methadone. My 34 year old son was taking prescription methadone for chronic pain and died. The doctor also prescribed Restoril and Soma and the combination was probably too much for his central nervous system and depressed his breathing. Methadone can also cause heart arrythmias. Many people have died from one methadone pill. It seems to affect some people's personalities, i.e. causing depression.

    I take Opana ER, a 12 hour time released medication which is oxymorphone (similar to Dilaudid). It helps to take the edge off of the worst of the pain and does not have any severe side effects for me.

    One drawback is that it is expensive, so hopefully you have insurance that covers medication.

    My son was prescribed methadone because it was cheap and he didn't have insurance. It is the drug of choice when an inexpensive pain reliever is needed. I know that there are other choices that aren't very expensive also.

    Best of luck. I know how hard it is to care for a child when you feel awful. You are wise if you sleep when she sleeps! If you have anyone you can ask to help you out, try to get a break every now and then to help you cope.

    Please know you are not alone and try to take it one day at a time - sometimes fibro will diminish for a while and give us some respite from pain for a while. Best of luck with everything. Val
  3. daytrippersoul

    daytrippersoul New Member

    Thanks Val...I never heard of that and will talk with a pain specialist about it. It sounds promising because I have been hospitalized (just in the ER) with flare ups and terrible Migraines and the dilaudid always helped. Not just for that time being but it actually broke the cycle. - I have to get off the Methadone first. I'm up there pretty high but it's been 3yrs. now and time to get off it. I tried dropping 2mg's a week but when I do I feel not only the withdrawls symtoms but also feel my Fibro creeping back in so with the flares..head pain..back name it.
    Thanks again.

  4. rockgor

    rockgor Well-Known Member

    Is there some way you could get help to care for your daughter? Relative,
    neighbor, etc. I wonder if a church group would have some women who
    would love to spend a few hours a week caring for a little girl. They
    might be lonely.

    Do you live where there are govt. resources like a welfare dept., social
    services, etc.

    I hope you can find someone. Good luck w/ the medical grab bag.


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