New and Confused

Discussion in 'Fibromyalgia Main Forum' started by alnit3r, Jan 15, 2006.

  1. alnit3r

    alnit3r New Member

    Well basically I have had EBV for three years now, and it has been a back and forth expirience. Reading some of these message boards I know my health problems don't come near what many of you battle everyday, but I am 17 and am just so frustrated because I just can't seem to get better. My doctor just keeps telling me that there is nothing I can do but take it easy and let things take their course.. and I just feel so helpless. I am desperate for this to end.. she told me on friday that I should consider holding off on going to college. I have worked my entire life to go to college this upcoming fall.. and I just want to be going in a good direction so I am able to go. I was diagnosed with EBV my sophmore year after having mono for about five months. I continued showing signs of ebv from october through the following summer nearly nonstop. I don't remember being sick anymore, but when I log it out on a calender there are very few days, if any at all, that i feel decent. I have just gotten to the point where is seems to be escalating at an alarming rate. I have been sick for two months now nonstop. Ive missed school and work countless times.. last night I suffered from what felt like a panic or anxiety attack, i really don't know.
    Basically. I am very confused on what I should or can be doing right now. If you have any advice for me, so I can get this under control before it gets worse, I would really appreceiate it. Anything from vitamins, to a diet that helped you build your immune system. I want to do this naturally, but even meds I can take to make this easier would be helpful. Thankyou so much
  2. Pianowoman

    Pianowoman New Member

    I want to welcome you to the board first. It must be so hard to be dealing with this at such a young age. You have your whole life ahead of you and now it's hard to see your future.

    You have come to a good place; There is lots of information and lots of caring people. One of the things that is most helpful is to educate yourself. Read all you can and ask lots of questions. There are many old posts that you can search and there is a Library on the site as well.

    It takes time to sort things out. Anxiety is really common and why wouldn't we be anxious?! Are you getting a good sleep at night? That is one of the key things.If not, try to get something from you Doctor to help you sleep. If the anxiety becomes a problem, you may need to address that too.

    Postponing college may seem like the end of the world right now but it may in the end be the best choice. You will have to see.

    Right now, take a deep breath and start reading. We are all different and what works for one may not work for all. You will likely have to try some things and move on to others. There are diet changes that may work. Usually our digestion is not working properly and a good probiotic can be a start, along with a good multi vitamin. But I am going on too much here. You can only absorb so much at once.

    Take care and I hope you find some good answers.

  3. lenasvn

    lenasvn New Member

    How are your symptoms progressing? have you read up about CFS/ME? EBV can eascalate into this, is it possible this is what it has done with you?

    Check out some of these links about EBV and CFS and see what you think.

    I am so sorry to see you go thru this so young! Wish I could give you a hug. Please write back and let us know about this stuff.

    [This Message was Edited on 01/15/2006]
  4. NyroFan

    NyroFan New Member

    One doctor may not be able to do it all. If you are discouraged with the one you have: find another.
    Try a rheumatologis: give it a shot.
    Only suggestions, it is what I have to do;doctor shopping to get to the root of the Fm/CFS.
  5. alnit3r

    alnit3r New Member

    OK, so I've looked into cfs quite a bit, and have just assumed it to be part of this whole equation. Now can someone explain to me what fibro is exactly? I feel juvinile for asking such a question but... I guess that is what this site is for right? Thankyou for all of your advice and support.. I am going to start looking for another opinion tuesday once this holiday is over. I just want something to work towards you know? I'm checking out a lot of the website and such you put up so I'm sure I'll be back later with questions.. I just wanted to thankyou for your quick reply. <3<3
  6. Sandyz

    Sandyz New Member

    I have both Chronic Fatigue and Fibromyalgia. I would recommend that you go to one of the Fibromyalgia and Fatigue Centers if you have any near you. If not, try to find a CFS specialist that you could see. Even an infectious disease doctor might be helpful.

    You are young and haven`t had this so long, with the right help you could get it under control pretty well. I`m not saying that 3 years isn`t a long time but that its seems to be easier to treat when people are young and haven`t had it forever.

    Hang in there, this gets very hard to have to deal with. We are all here for you. This site has some of the best information around. There are many no interesting things coming out of research, hopefully their will be a cure someday.
  7. lenasvn

    lenasvn New Member

    Click on the library link on top of the screen. There you can find info and symptos on Fibro, CFS and other stuff. Good luck! BTW, this page we post on is for both Chronic fatigue and fibro sufferers, they often go hand in hand. [This Message was Edited on 01/15/2006]
  8. Cromwell

    Cromwell New Member

    So sorry that you are suffering and so young. My FM came about after EBV and reemergent mono, which I keep getting too, although I am older. Have you taken a lot of anti biotics? You may want to check the messages for Probiotics as people here have some great advice on this. Can you eat a really healthy organic diet? Can you exercise? These things may help if you are able to try them.

    Good luck and so sorry again.

    Hugz Crom
  9. MKlady

    MKlady New Member

    ...and there are some anti-viral meds out there that should work for it. I'm taking Famvir for re-activatedd EBV...others are taking Valtrex. Do a search on this board for some more insight.

    I also recommend Fibromyalgia and Fatigue Centers (I go to Las Vegas center, but they are all over the country). You can do a search on "FFC" on this board for more info. Also check out stormyskye's posts for her protocol...

    I've been sick since I was young (am 54), and only this year did we figure out why (EBV!!). Go find someone to help you knock this out. It's treatable!! Good luck.
  10. KJH_10

    KJH_10 New Member

    Welcome to the board, I am also fairley new to this. I am 21 years old, and was diagnosed with FMS when I was 19. I am finally trying to understand, accept, and move on with this diagnosis. I have attended college, but I have had to take off the past year due to my trying to recover.I know how hard it is to take off school, all of my other friends have graduated or are graduating this spring, and I still have a way to go. I do not have to many suggestions, as to I am trying to figure this all out myself, but I have continued to stay active, and try to live the best I can, we are young, and it is hard to not want to be out there living "normally" like everyone else. My advice is to stay strong, and do what you have to do in order to get better.

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