New and confused...

Discussion in 'Fibromyalgia Main Forum' started by disconcerted, Jan 3, 2007.

  1. disconcerted

    disconcerted New Member

    Hi, I have been ill for over ten years now and for the last five have been struggling with consultants to get a diagnosis. I have had every test imaginable and have been left with 'well it's not such and such so maybe it's CFS'. I have had to give up work now and have a list of symptoms that all here will be familiar with so i won't go into them unless anyone thinks knowing my list would help.
    I have been told there is no cure and no treatment; some say graduated excercise will help, some say to stay clear of it. My Mum had CFS for over 3 years in the early 80's and was only diagnosed years after the event.
    I am suffering from reactive depression as the symptoms are so severe and i'm finding life very hard (although i'm not suicidal).
    I'm in the UK and my GP just smiles patiently when i say consultants think it's CFS (I'm awaiting a formal diagnosis in the next few weeks) - he's a good GP but not supportive on the CFS issue so I feel i need some input from people who are supportive.
    Any positive comments will help - I'm left feeling now that i'm doomed to feeling this way and it could last from '6 months to 30 years'. I'm struggling financially and have no prospect of returning to work, I can't socialise and fall asleep at the drop of a pin. My quality of life is nil at the moment and would like something to make me smile again - i like to smile!
  2. STIGZE

    STIGZE New Member


    Have u tried d-ribose off sarah myhill she gets it cheap for you i've been on it a month and its not worked yet it takes a month to get in the system apparently or ENADH other than that i can't suggest anything else to give u energy. Hope this helps
  3. STIGZE

    STIGZE New Member

    Theres also this i haven't tried yet http://www.druglibrary.org/Schaffer/library/studies/ledain/nonmed2d.htm

    AMPHETAMINES
  4. AllWXRider

    AllWXRider New Member

    CFS is a very broad syndrome. It can have many causes, although, to really get well, we have to keep researching for the Root Cause.

    Mine is in part caused by Epstein-Barr and Cytomegalo virus...but these are common viruses. My US doc tells me that these viruses flag you as having CFS. But since they are common, I'm investigating further.

    I'm also unemployed, I'm a Elect engineer and working on a Master's in Aeronautics, but now I have so much brain fog, that I'm afraid to take another course.

    I've found that a lot of my symptoms also line up with toxic metals, esp. mercury. I sent in a hair analysis to find out. If the root cause is mercury and I can chelate it out, then I won't be sick for "30 years", I will start feeling better as its treated.

    I started chelating with natural chelators and some DMSA, but at a low dose. Already my heart wierd sensations are improving!

    I also had drug resistant depression. The depression is lifting!
  5. CleanandLean

    CleanandLean New Member

    Hello Disconcerted. Chronic pain and fatigue can be really disconcerting. Have you tried cleansing? If you do a full system cleanse it may greatly help you. I have recently been doing regular cleansing with a system that cleanses my liver, kidneys, colon, lymphatic and vascular systems with great results. I have more energy than ever.