NEW CFS Study Info to be Released Today

Discussion in 'Fibromyalgia Main Forum' started by BabiCati, Apr 20, 2006.

  1. BabiCati

    BabiCati New Member

    This is for credentialed media only but I figured you can either listen or get the transcript later. Looks interesting for those of you who have CFS...

    Apr 20, 2006 10:35 ET

    CDC Media Advisory: Telephone Briefing to Discuss New Research About Chronic Fatigue Syndrome (CFS)

    WHO: Dr. Julie Gerberding, Director, Centers for Disease Control
    and Prevention (CDC)
    Dr. William Reeves, CDC Lead Chronic Fatigue Syndrome
    scientist
    Dr. Suzanne Vernon, CDC Lead Chronic Fatigue Syndrome
    scientist

    WHAT: Telephone briefing to discuss new research about Chronic
    Fatigue Syndrome (CFS)

    WHEN: Thursday, April 20, 2006
    11:45 a.m. ET
    Brief remarks followed by Q&A.

    BACKGROUND: CDC scientists will be discussing results from the largest
    clinical study of CFS patients to date published in the April
    issue of Pharmacogenomics. This research strongly suggests
    there are specific genes and gene activity that make some
    people more susceptible to having CFS, (e.g. their genetic
    makeup affects their body's ability to adapt to change).

    CALL-IN: 1-888-795-0855
    Passcode: CDC Media

    Important Instructions: If you would like to ask a question
    during the call, press *1 on your touchtone phone. To
    withdraw your question, press *2. You may queue up at any
    time. You will hear a tone to indicate your question is
    pending.

    LISTEN-ONLY AUDIO WEBCAST
    This briefing will also be audio webcast. To listen LIVE
    online, please visit http://www.cdc.gov/od/oc/media

    TRANSCRIPT
    A transcript of this teleconference will be available
    following the briefing at the CDC web site at
    http://www.cdc.gov/od/oc/media.


    CONTACT: Centers for Disease Control and Prevention Media Relations, +1-404-639-3286.

    PRNewswire -- April 20
    Audio: http://www.videonewswire.com/cdc

    Source: Centers for Disease Control and Prevention

    Web site: http://www.cdc.gov/
    http://www.cdc.gov/od/oc/media
    Related Links
    AUDIO CDC Media Advisory: Telephone Briefing to Discuss New Research About Chronic Fatigue Syndrome (CFS)
  2. NyroFan

    NyroFan New Member

    babicat:
    I will definitely get the transcript. Thank you for the information.

    nyrofan
  3. BabiCati

    BabiCati New Member

    Bump for others to see...
  4. phoenixrising2

    phoenixrising2 New Member

  5. davebhoy

    davebhoy New Member

    bump for any more news on this[This Message was Edited on 04/20/2006]
  6. BabiCati

    BabiCati New Member

    and other links at this site http://www.cdc.gov/od/oc/media/pressrel/r060420.htm

    According to their research it is genetic and environmental factors that impact CFS patients.
  7. ephemera

    ephemera New Member

    A local TV station in my area covered the CFS story tonight by saying new research suggests we have something wrong in our genes that we cannot deal with everyday stress.

    I'll be anxious to hear the CDC report itself as I'm leary of the TV station's "interpretation" of the news.

    OK, after reading the CDC info I'm really wondering what they're going to say about those of us who are FM/CFS & also do they think FM is different than ME?

    OK, here's the CDC press release:

    Press Release
    For Immediate Release
    April 20, 2006 Contact: CDC Media Relations
    (404)-639-3286

    Genetic and Environmental Factors Impact CFS Patients
    People who suffer from chronic fatigue syndrome (CFS) have a genetic make up that affects the body's ability to adapt to change, according to a series of papers released today by the Centers for Disease Control and Prevention (CDC). These papers, which analyze the most detailed and comprehensive clinical study on CFS to date, are published in the April issue of Pharmacogenomics.

    Over the past year, CDC scientists have worked with experts in medicine, molecular biology, epidemiology, genomics, mathematics, engineering, and physics to analyze and interpret information gathered from 227 CFS patients. The information was gathered during a study in which volunteers spent two days in a hospital research ward. During this time, they underwent detailed clinical evaluations, measurement of sleep physiology, cognitive function, autonomic nervous system function, and extensive blood evaluations, including an assessment of the activity of 20,000 genes, in an attempt to identify factors that potentially cause or are related to CFS.

    "This study demonstrates that the physiology of people with CFS is not able to adapt to the many challenges and stresses encountered throughout life, such as infection, injury and other adverse events during life," said Dr. William C Reeves, who heads CDC's CFS public health research program. "These findings are important because they will help to focus our research efforts to identify diagnostic tools and more effective treatments which ultimately could alleviate a lot of pain and suffering."

    The multidisciplinary approach to this study, which has been termed C3 or the CFS Computational Challenge, was developed by the CDC's Dr. Suzanne Vernon, Molecular Epidemiology Team Leader for the CFS Research Laboratory. It is an approach that could lead to advances with other diseases and disorders. "We put together four teams of different experts and challenged them to develop ways to integrate and analyze a wide range of medical data so as to identify those things that could improve the diagnosis, treatment, or understanding of CFS," Dr. Vernon said. "There is a clear biologic basis for CFS, and knowing the molecular damage involved will help us devise effective therapeutic intervention and control strategies."

    It's estimated that over one million people in the United States alone are sick with CFS. The condition takes a tremendous personal and social toll - approximately $9 billion a year to the nation and $20,000 per family. It occurs most frequently in women ages 40-60 and can be as disabling as multiple sclerosis and chronic obstructive pulmonary disease.

    The CDC is the principal agency in the United States for protecting the health and safety of all Americans. CDC is promoting CFS awareness through a national media and education campaign set to kick off later this spring.

    The April issue of Pharmacogenomics, published by Future Medicine, includes 14 research papers, the culmination of C3. The journal Pharmacogenomics is dedicated to the rapid publication of original research on basic pharmacogenomics research and its clinical applications. Published eight times a year, the journal covers the effects of genetic variablity on drug toxicity and efficacy, the characterization of genetic mutations relevant to drug action, and the identification of novel genomic targets for drug development.

    For additional information about the CFS Computational Challenge, including a list of participants, visit www.cdc.gov/ncidod/diseases/cfs/meetings/2005_09.htm

    [This Message was Edited on 04/20/2006]
  8. roadkill

    roadkill New Member

    When are we going to wake up.

    Doesn't it seem odd that the most influential organization on health is focused on pharmaceutical cures. I mean the standard health care protocol of pharmaceuticals and surgery are not health care models at all. They are financial models developed and financed way back in the 1920's by one of the biggest financial magnates in the world.

    I have a real problem with our health care system today. It is not based on preventing illness or helping people get better. It's based on keeping people sick enough so that the pharmaceutical companies can make $$$$.

    Yes, I'm cynical and I'm astounded at how we've been duped into thinking the government and the pharmaceutical companies have kept us in the dark about what is really happening to us and what the true cures are.

    After all, we can't continue to be that naive and think that "GREED" isn't running this world.

    I know I'll probably get some flack on this one but I am thoroughly convinced the answers are not in ingesting drugs, drugs and more drugs. I believe strongly that there are simple and inexpensive cures to our suffering that are being suppressed by the megacompanies and politics. The problem is this, that simple and inexpensive cures don't make megabucks and its easier to control people when they are stressed out and ill!