New Fibro Doc/New Meds

Discussion in 'Fibromyalgia Main Forum' started by KJ2003, Nov 26, 2005.

  1. KJ2003

    KJ2003 New Member

    Hi all,

    I haven't posted in a while and, except for work, haven't gone anywhere near a computer for quite a while. I had a bad time of it and was finally referred to an Orthopedic Specialist.

    His name is Dr. Safman and his base office is in Little Rock, AR. He travels to Texarkana twice a month and has satellite offices in Hot Springs and Conway.

    Dr. Safman has his head so far into fibromyalgia that he actually described to me how I live and function...and it was unbelievable. It appears this man really knows his stuff. He's also written articles on fibro and told me they are close to tracing FM to genetics. He was able to trace my FM all the way back to early childhood.

    As far as treatment, he gave me trigger point injections and started me on Provigil. I tried a sample of Provigil and it helps my energy levels without keeping me up at night, which surprised me. However, I'm having to wait to get my prescription at the pharmacy, as they are waiting for a reference from my insurance (that my doctor has to write up).

    Let me interject...I will be lowering my dose (my doctor's suggestion) when I begin the Provigil again. I will begin with half a pill a day. If you start off too strong on this medicine, it tends to make you aggressive and angry. You have to begin s l o w l y. I'll let you know how it goes.

    Other than the injections and Provigil, I'm on Lyrica for nerve pain. Lunesta, if I need it to sleep. I've taken this in the past - only a couple of times - but it does help. So far, I haven't need it. For pain, he's keeping me on Ultram and added Darvocet, if needed.

    It's way to early to say if this combination works or not, being as I have to start over with Provigil when I pick it up. But I am optimistic. I know Dr. Safman cannot take away FM and I know this will affect me the rest of my life but I am hopeful. I believe this doctor is the real deal and I believe he can help me gain a better quality of life.

    Let me just say, after my first visit with him, by that afternoon I felt better than I had felt in years...and it was unbelievable. I felt like ME. I had forgotten what it was like to feel like ME. And all because of eight injections and taking a Provigil. Unreal.

    I see him again this Wednesday and he is going to do the injections in my lower back, as well. Plus, my husband is coming with me so he can better understand what is going on with my condition and with the treatment.

    Like I said, I know there isn't a cure but I do believe that this may be a good starting point to having a better quality of life. I'll keep you updated on my progress.

    Also, if anyone would like Dr. Safman's contact information, let me know.

    Kim
  2. elsa

    elsa New Member



    I'm thrilled for you. There is nothing better in this world then having a doctor look you in the eye and not only validate CFS/FM, but to start educating YOU on the illness instead of the other way around. Being believed and helped proactively gives you hope, a spring in your step and a chance to hold your head up high once again. I am really happy this has come along for you!

    I was thinking about you not too long ago. I was driving from West Tennessee to Dallas and past by the Texarkana split ...

    I wondered how you did working the hurricane story from the station. You probably posted about it, but I missed seeing it. I have a mental image of you doing a hurricane update bulletin in your PJ's! Glad to see you came through the experience OK!

    I take several of the RX'es your new doctor has started you on. .... provigil, ultram (tramadol) and lunesta. They all work very well for me. I too started on a very small dose of provigil ... 1/2 tab. My doctor always does that .. starts with the lowest and goes up so I didn't think anything of it. It makes sense to not start right in with the big dose though.

    You might think about taking lunesta every night ... or ask your doctor when you see him next. Even though you may get several hours worth of sleep time, you may not be getting a very good quality of sleep.

    Lunesta is very effective at promoting deep wave sleep as well as REM stage sleep. It has really made a difference in my symptoms. It's not always easy to take that pill everynight ... but it's best if I do.

    It's good to hear from you ... I'm so glad you have a beyond decent doctor in your corner! If he's in Little Rock, I'm going to keep his name for future references. I am blessed with a great PCP who took care of me from the start as well as a couple more who fine tune certain aspects of our illness however ......

    One never knows when they might need to add another fibro doc to the list.

    Take care,

    Elsa
  3. gmom605

    gmom605 New Member

    i also have fibro/cfs i was wondering what are those trigger injections meds called and how often do you take them? ,,,,,,,gmom,,,
  4. MamaR

    MamaR New Member

    So pleased to hear about your doc being so informed on FM. I will have to agree about the genetics thing...because my mom suffered from it...but didn't know what it was. I look back at her symptoms and can see how much she was like me.
    Except, it hit her worse in her late 60's and she died at 73 years with heart disease. I don't think I will make it that long!!!!

    I have had it since late 80's...of course it wasn't called that then...or either my doc just called it MPS myofascial pain syndrome. But, the older I get the worse I get!

    I think slowly it is getting recognized as a TRUE ILLNESS!!

    Again, so pleased for you, and the hope of REAL help!!


    Mari
  5. KJ2003

    KJ2003 New Member

    The trigger point injections are new to me, too, but I understand that I can get them every time I have an appointment, which is every two weeks.

    I was very impressed with the results of those shots and the Provigil. Like I said, I felt like my old self again and I hadn't felt that way in a few years.

    My mom had it, too, but didn't know it and never will. She died in a car accident back in 1988. She was only 42.

    My grandmother has had a ton of problems much like the problems I have had, although her back problems are a bit worse than mine. Plus, she's had two knee replacements. I keep telling her she's like the bionic woman. They keep replacing parts and with her spirit she'll outlive us all.

    The only problem I am having is it is taking so long for my insurance company to approve the medication. It's been a week and it's still not approved. But I do have another appointment on Wednesday so if it's not approved by then, at least I can get some samples to carry me over until this process is completed.

    Thanks for the comments. I'll let you know how Wednesday goes.

    :)

    Kim