New FM/CF thyroid therapy helps you loose weight..I am proof

Discussion in 'Fibromyalgia Main Forum' started by achy, Sep 14, 2002.

  1. achy

    achy New Member

    I have NEVER had a weight problem. I used to be a model. After an asthma attack, then having to take steriods & quitting smoking I gained 30 lbs. Never having to diet in my life it was a struggle to loose weight, I didn't know how to diet!! I was used to eating chocolate cake, cookies, anything I wanted with no weight gain...boy the good ol days.
    Anyway, I finally lost about 20 lbs., was so happy & this wonderful fibro and CF hit hard. Just the inability to move around like we used to makes the pounds add up.
    Then add the Zoloft, Paxil, Xanax, steriods and we could all be Baloons in the Macy's parade! LOL
    Thanks to my doc, I have once again lost all weight and I can prove to you it worked.
    I am sure most of you have heard about T3 thyroid therapy.
    If you haven't, just go to (Edited by Moderator to remove URL's)right here at immunesupport.
    My doc is wonderful. We tried the guaifenesin for 5 months. I followed the protocol by the letter. I saw no improvement, and my aweat and urine stunk!! Bye Bye Guai.
    Three months ago my doc tested my thyroid. The results can back in the low range of normal. After a long discussion, he started me on Cytomel, It is a T3 thyroid hormone.
    Within 1 week I had lost 3 lbs. The next week I felt like my energy level had increased, and I had lost3 more lbs.
    Well, after the three month trial I had lost an amazing 15 lbs. but had stopped loosing. I had been in a major flare and sick with a kliller virus for three weeks. I didn't thinks the Cytomel was working, so we stopped it. That was two weeks ago.
    IN two weeks I GAINED 8 lbs!! I have has no energy, barely being able to get out of bed. Just a little exertion and I had to lay down to rest. Yup, you guessed it...back to the doc...and back on the Cytomel. My energy level has increased and I am once again loosing weight.
    Do some research...Talk to your doc...have tour thyroid tested...just a simple blood test. It is considered safe
    little to no side effects. Try it for 3 months & see how you feel....
    Good luck
    Achy
  2. achy

    achy New Member

    I have NEVER had a weight problem. I used to be a model. After an asthma attack, then having to take steriods & quitting smoking I gained 30 lbs. Never having to diet in my life it was a struggle to loose weight, I didn't know how to diet!! I was used to eating chocolate cake, cookies, anything I wanted with no weight gain...boy the good ol days.
    Anyway, I finally lost about 20 lbs., was so happy & this wonderful fibro and CF hit hard. Just the inability to move around like we used to makes the pounds add up.
    Then add the Zoloft, Paxil, Xanax, steriods and we could all be Baloons in the Macy's parade! LOL
    Thanks to my doc, I have once again lost all weight and I can prove to you it worked.
    I am sure most of you have heard about T3 thyroid therapy.
    If you haven't, just go to (Edited by Moderator to remove URL's)right here at immunesupport.
    My doc is wonderful. We tried the guaifenesin for 5 months. I followed the protocol by the letter. I saw no improvement, and my aweat and urine stunk!! Bye Bye Guai.
    Three months ago my doc tested my thyroid. The results can back in the low range of normal. After a long discussion, he started me on Cytomel, It is a T3 thyroid hormone.
    Within 1 week I had lost 3 lbs. The next week I felt like my energy level had increased, and I had lost3 more lbs.
    Well, after the three month trial I had lost an amazing 15 lbs. but had stopped loosing. I had been in a major flare and sick with a kliller virus for three weeks. I didn't thinks the Cytomel was working, so we stopped it. That was two weeks ago.
    IN two weeks I GAINED 8 lbs!! I have has no energy, barely being able to get out of bed. Just a little exertion and I had to lay down to rest. Yup, you guessed it...back to the doc...and back on the Cytomel. My energy level has increased and I am once again loosing weight.
    Do some research...Talk to your doc...have tour thyroid tested...just a simple blood test. It is considered safe
    little to no side effects. Try it for 3 months & see how you feel....
    Good luck
    Achy
  3. Achy-shaky

    Achy-shaky New Member

    I'm going to find out if that's my problem - I just had blood tests done but doc said thyroid was fine. Could it be low but not in danger area and doctor just lets it go at that? It did show I was anemic but they haven't figured out why yet. I will check out the info you mentioned and go back to doctor. I've been 50 lbs overweight for years but don't really eat that much, just don't get enough exercise because of pain & fatigue so anything to help my energy would be a blessing.
    Sounds like you've been thru a lot and I'm so glad it is working for you now.

    THANK YOU so much!!
  4. dolsgirl

    dolsgirl New Member

    With FMS your thyroid levels may not come back showing anything, but you will have hypothyroid. Try telling a doc this that hasn't read up on it!
    I definitely plan to look into this Cytomel once I have health insurance. dolsgirl
  5. blu-butterfly

    blu-butterfly New Member

    Hey Achy I have the same problem. Always skinny-now fat. I will definitely check this out! Thanks a lot!!!!
  6. domesticgoddess

    domesticgoddess New Member

    I'm curious as to your statement that the tests on your thyroid will come back ok, but, yet ya may be hyperthyroid.
    Give me some guidance on finding hyperthyroidism with tests not showing such on the internet please!

    I'm having some severe leg cramping and hot flashes every 30 to 40 min. PCP did Thyroid test. Said it came back ok.

    Yes, I've gained about 30 lbs from taking meds for Fibromyalgia, High Blood Pressure, Angina, Tachyrdia and the list goes on.

    Gentleness
  7. ssMarilyn

    ssMarilyn New Member

    Yes, if you have an undertreated/underactive thyroid, your metabolism is running much slower than it should, thus causing you to put on weight even though you don't eat any more than you did before. By taking some thyroid hormone supplement, your metabolism should get back to normal and any unusual weight gain would become a weight loss. Thyroid hormone treatment is not a fix for just losing weight though. Your weight gain actually has to be caused by an undertreated or underactive thyroid.

    ******************************************

    achy-shaky - yes, your thyroid test results can come back showing you in the LOWER end of normal ranges, and your doc will tell you that you're just fine. He won't even tell you you're in the lower ranges, he'll just say "you're within normal ranges" or "your thyroid looks fine." Don't waste your time and money on a GP for thyroid testing, see a specialist, an endoctrinologist. I've had hypothyroidism since the early 90's. I never felt quite right, even after being on Synthroid for many years, so would complain to my GP. She would periodically order thyroid tests, which are very inaccurate, and tell me I was fine. I researched this on the net and discovered that many doctors will tell us our thyroid tests are normal even though we test on the LOWER end of normal ranges. They are wrong to not look into this further. I finally smartened up and saw a specialist. He tested me and said that "yes, you are on the lower end of normal" and apparently, even though some people feel fine there, he said I didn't. So he upped my synthroid dosage and within two weeks I was a changed person! I no longer have fibro fog, I have energy to burn and I sleep good almost every night. I also have no pain unless I exercise too much. Definitely see a specialist for your thyroid. NOT a GP!!

    P.S. Hypothyroidism is very common in females over 40 and anybody that suffers from FM. If you have FM, chances are you also have an underactive thyroid, which will make your FM symptoms much worse than they should be.

    Good luck!
    Marilyn :)

    [This Message was Edited on 09/14/2002]
  8. AnnetteP

    AnnetteP New Member

    No matter what I take, the weight does NOT come off without dieting and/or exercising. Even when I was on too strong a dose of Armour, which put me into hyperthyroidism, I STILL did not lose weight lol. I have been on cytomel for months, and guess what? I weigh the same UGH! But, yes my energy level is over the top, compared to how I used to be. Of course it doesn't hold a candle to my very active, in great physical shape, friend lol.

    Congratulations to you...and know that I'm jealous lol

    Annette
  9. Member

    Member New Member

    Hi - I found your message interesting because I have had thyroid problems for many years (hypothyroidism). About 5 years ago I had a thyroidectomy and will continue with synthroid for the rest of my life.

    I want so much to lose 20-30 lbs but never connected thyroid. I also have fibro/cfs, osteoarthritis and rt side facial paralysis from non recovery from Bells Palsy.
    I hope to start low carb diet and hope. If you have anything to add relative to thyroid, I will listen.
    Thanks so much.....Pat
  10. kellym

    kellym New Member

    I've been on cytomel for almost a year (10 micrograms/day) because of hypothyroidism, and have only continued to gain and feel crappy. However, a girl my dad works with is only on 5/day and says its an absolute wonder drug! I'm glad to hear it works for most people!
  11. Mikie

    Mikie Moderator

    In many cases, the appropriate dose of the Guai is never reached and/or there are hidden sals involved. It can be very difficult to eliminate them. Did you just stay on the same dose for five months without a flare? If your sweat and uring smelled, the Guai was probably working at a lower level. I've been on the Guai for 1 1/2 years. One of the biggest mistakes people make is expecting too much too soon and not be willing to tweak the dosage until the optimum dose is reached. The Guai treatment is a very long-term undertaking and patience is a must. Most docs do not really understand the protocol.

    Love, Mikie
  12. kadywill

    kadywill New Member

    that's what is wrong with me. I take Levoxyl 0.025 mg. and it gets me in the normal range (TSH), but I don't lose weight and I don't feel more energetic. My husband had to have radioactive iodine therapy for severe HYPERthyroidism/Graves Disease and it destroyed his thyroid so he has to take Levoxyl as well now. All of a sudden his TSH was 80.23 which is VERY high showing that he has HYPOthyroidism. The doctor thought he hadn't been taking his Levoxyl and HE HAD so he upped his dosage to 200 mcg. and he still feels sluggish and overweight. Suggestions??????? Should we be taking Cytomel or Armour instead, Madwolf????? It has never been suggested by our doc. to take anything but Levoxyl. (He is a family practioner.) My T4 was high the last time and my T3 was low and my TSH was a little high. These were all out of the normal ranges.
    Please advise if you will!
    Thanks!
    Kady
    [This Message was Edited on 11/14/2002]
  13. BonBons

    BonBons New Member

    I think Cytomel really helped me for a while. Then we moved here and my primary care doc said I don't need it. He also is making me go to an endocrinologist to monitor my thryoid which might be a good idea if I had health insurance. I see: a neurologist, waiting to see a pain specialist, a podiatrist (foot neuromas), the dentist, they want me to see an allergist again (no luck last time), PT, Primary Care and now an endo when I can. If I could work, I wouldn't have time. BTW, I spent $89 for 10 days worth of Effexor today, since I was worried about stopping suddenly (heard it can cause flu-like symptoms). Since I have them every day, didn't want them to be worse! BonBons
  14. kadywill

    kadywill New Member

    do you suggest an endocrinologist?????? My husband's status concerns me deeply since he was in a Thyroid storm a few years ago. He nearly died and now he is on the other end of the spectrum. He NEVER had a weight problem~~ was a boxer and was very athletic~~now he and I both weigh over 200 lbs. Not a good thing!
    Thanks for the suggestions!
    Love and appreciation!
    Kady
  15. kadywill

    kadywill New Member

    for Madwolf to respond.......
  16. Jillian40

    Jillian40 New Member

    Hello All of my Cohorts -

    I just saw an endocrinologist, for the first time, yesterday. In order to prepare for the visit I did a
    bunch of research on the intenet. Because we are unable to share URLs, ie: www addresses, I would just suggest that you go to Ask.com, or other search engine and type in subjects, like Dr. Wilson, Hypothyroidism, Testing for hypothyroidism, Thyroid Gland, Endocrinology and also go to a certain well known book/shopping site, and type in Dr. Teitlebaum, Dr. Broda Barnes, and any others you know of. You can many times read 15 or so pages of a book before deciding to purchase. Used books are almost 1/2 price.

    Anyway, what I learned is what all of the normal ranges are for thyroid function. I also learned that many folks, especially us fibromites, suffer with hypo (under production) of thyroid hormones. What is interesting to understand too, is that the pituitary gland releases an important hormone to signal the thyroid to do its job. It's called TSH, Thyroid Stimulating Hormone. Secondary hypothyroidism is from a malfunction or disease of this (pituitary) gland or one other gland. What I'm wondering is if this is related to the recent article in Immune Support Library talking about how many fibromites have "slow to respond" Growth Hormone after exersion, thus weakness and pain following exercise. Note: The pituitary gland is also responsible for releasing Growth Hormone, among other things.

    I also learned that Cytomax is a time released form of T3, which is the active thyroid hormone. Though it is not without risks and some possible side effects, in high doses or long term use, such as heart palpitations and heart disease, as well as osteoporosis. This guy Dr. Wilson, who unfortunately has had his medical license taken away, don't know the details, has a theory, which he tested out fairly thoroughly and believes that since the Thyroid tests only evaluate levels in the blood, not levels in the tissue or cell utilization there isn't a true picture given. Thus he believes that there are many sufferers who have symptoms (like hair loss or dry scalp, dry skin, constipation, exhaustion and/or difficulty sleeping, weight gain, overall achiness, headaches or migraines, fluid retention, irritability and/or depression, cold intolerance, decreased memory or concentration, irregular periods, PMS) (Note: these are classic textbook symptoms of Hypo-Thyroidism) He believes that many many folks are left untreated and even shunned due to lack of blood test evidence. Interesting that folks with depression are treated with "clinical impression" only and without any blood test evidence. So why is it that endocrinologists are less willing to treat hypo sufferers with using clinical impression and treat patients by their reported symptoms?

    Anyway, don't get me started!!! Hope some of this makes sense. I went ahead and purchased an online book by Wilson, so I have the list of doctors who are willing to use his protocol, and also the patient information sheet amongst other things. Can share some of what I learn as I read further. He goes into detail with his treatment protocol, ie: importance of taking doses exactly on time, how to increase doses and why, and idea of using T3 to "reset" the thyroid allowing treatment to be discontinued in a number of cases. I would like to find research done by others on this too.

    Oh yeah, one last very important point, Wilson, Barnes, among others, believe that the best evidence of low thyroid is "lower than normal" body temperature. Try this test. Use a digital thermometer, with new batteries, or a regular one, and take your temperature 3 times in a day, every 3 hours, and chart it then add all three up and divide by 3. Try a sample of several days. If your temp is between 97 and 98 or lower, you meet the diagnostic criteria.

    Hope this helps. More later.

    Take Good Care, ............... Jill
  17. sybil

    sybil New Member

    i don't eat a high carb diet,i'm vegetarian,eat lots of fresh fruit and veg.i don't eat junk food,if i need a snack i eat a handful of sunflower seeds,or about 5 dried prunes,or an apple.i eat small portions and a part from the small snacks about twice a day,i only eat breakfast lunch and dinner.but i don't lose weight.
    since i have been DX'd with FMS i have put on 3 stone.my doctor told me my thyroid was 'normal' too,but i don't trust him.i can't see doctors in the u.k. giving people thyroid drugs if they think we don't need them,because of the money that would cost.so i don't know what to do.
    i even tried cutting back on my food intake,so i was eating hardly anything,i still didn't lose weight!

    sybilxxx
  18. Mikie

    Mikie Moderator

    My supplementing with Synthroid was concurrent with my going on a very low carb diet, but for the first time in two years, I have been able to lose weight. Have plateaued at 22 pounds lost til my skin can catch up. For a while, I looked like a Sharpei.

    Love, Mikie
  19. achy

    achy New Member

    It's been so long sine I posted this I forgot about it. I even mailed John complaining there was another "Achy" on the site - LOL. FIBROFOG!!
    Anywho, My weight loss has abruptly stopped. But, I'm not gaining either, which is good. I don't know why, nothing has changed.
    My Doc has not tested my thyroid since putting me on the Cytomel. (He is getting tired of playing the fibro game I think) I just hate to have to start over with another doc. I still have more energy than I did 6 months ago. I'm not ready to run a marathon or anything, I still need to lay down 1-2 X day, but that's better than 5-6 times.
    I am wondering if I should be on the Armor though...I read and read and get more and more confused. I do not know what my test results showed. He told me it was normal, "but that the results could be deciving, so lets try it and see what happends"
    I also have low body temperature. usually runs about 97.4
    I try to tell docs when I get a "fever" of 100 I am really sick, they just laugh at me.
    Ok Madwolf....I'm listening and open to suggestions.
    I wish I could find a doc in my area that knew how to treat fibro. (YEs I have checked all the lists...nobody in Pensacola)
    So glad you pulled this back up!
    Warm Fuzzies
    Achy
  20. dd

    dd New Member

    For the past 6 years I had been telling my doctors that I think that I have an underactive thyroid. I had ALL the classic symptoms, even family history of hypothyroidism. My grandmother, aunt and cousin all have it. The doctors did run the usual blood tests on me many times and they always came back NORMAL. Last year I went to an endo and told him of all my symptoms (he is the one that dx me w/CFS, FM, Hypoglycemia). He ran the blood tests again on the thyroid and of course they came back normal again. I asked him if there was a more elaborate test that could be done because of the fact that I did have CFS and FM and that from reading and research knew that people with FM usually do have an underactive thyroid. He did a thyroid stimulation test on me, where they hooked me up to an iv and put a chemical in to see if the thyroid reacts the way that it is supposed to. They drew blood every 15 minutes for an hour and 1/2. My test results came back and low and behold I did have an underactive thyroid after all. I was put on Synthroid and noticed a huge difference only 3 days after taking it. My energy level was better than it had been in years and I lost 3 pounds the first week. I am also on the Atkin's diet to control my hypoglycemia. Between the Synthroid and the Atkin's diet I have lost close to 90 pounds so far. I was over 200 pounds a year ago. I still have the fibro flares and am still dealing with the CFS but I do feel much better than I did last year at this time. If I had not insisted on a more elaborate test for the thyroid I would never have found out for sure.

    Take Care,

    Debbie