Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by larocean, Mar 9, 2013.
Has anyone done this yet?
It is by EpicGenetics.[This Message was Edited on 03/10/2013]
This is the only article i can find online for this
in england fibromyalgia is classed as a neurological disease and endocrine disorder, the do believe its genetic and are now looking for the gene
is it considered an immune disorder in the states?
I carried on searching found this article to
Found this paper to
anyway spun my head out lol throws up more questions than answers
the only site i can find is a chronic fatigue site that refers to it as autoimmune
I dont know ,
The article is entitled:
"Tearing back the curtain on: FIBROMYALGIA AS A REAL MEDICAL DISEASE".
by Dr.Bruce S. Gillis
It is in the mar/apr 2013 issue of National Fibromyalgia & Chronic Pain Association publication Fibromyalgia and Chronic Pain LIFE.
This is brand new and potentially very important!!
Right am i right in reading and observing the info that you have provided that..
You are telling us that there is new and potientially very important information in an article in said magazine but if we want know what it is we have to subscribe to said publication because you have not shared the info here?
i'd be happy to share info. have to figure out how to do that. any suggestions?
there seems to be some info (pros and cons) online about this. try entering dr. bruce gillis on google.
also i see:
online info at: thefmtest.com
my concerns are about potential false negatives, the expense of the test and how it will change treatment right now. but hopefully it is heading in the right direction.
I understand now found the sites. But just for everyone else
dr bruce gillis studies blood test to diagnose fibromyalgia. Its a mutiple biomarker based test which measures protein molecules called cytokines within white blood cells a key park to the immune system. Rest of info here and valid questions thrown up.
your right though about whether it can be accurate. They only tested 101 people a very small study, and they havent tested all pain conditions the molecules might show up in them. I also read the test was avaiiable on 4th march by request of license physican at cost of $744 , i call it jumping the gun. Definately needs more authencity before paying that out!
Thanks for that very informative
Thanks for info larocean, i googled dr bruce gillis fibromyalgia diagnostic test.
Read he also tends to use it to see if treatments work. If they can do a bigger study and it looks like their asking for volunteers and make sure it is only applicable to fibro and not other pain conditions (that needs to be done) then it says that it has a 93%sensitive comparable (although i believe thats a false claim until they test other pain conditions and make a bigget study) but its sensitivity is comparable to hiv testing. Thst no test is 100% that rheumatoid arthritis test is only 65% sensitive.
I just hope his concern is legit which is brought into questioning considering it hasnt for me anyway passed enough testing to make results exclusive to fibro, but i do hope his study is proved right by an independebt body or his just another scam artist clinging onto what sounds like plausable studies and we've had enough of those.
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