New Google Group for Young Adult Patients with Neuro Immune Disease (ME CFS

Discussion in 'Fibromyalgia Main Forum' started by mojoey, Jan 17, 2011.

  1. mojoey

    mojoey New Member

    I just created the following google group:

    This is an online group that primarily aims to provide a social, medical, and professional network for young-adult and adolescent neuro-immune disease (ME/CFS, Chronic Lyme Disease, Atypical MS, Fibromyalgia) patients under the age of 40.

    I am a 27-year old young man with ME/CFS for the last 5 years and am active member of many ME/CFS communities (including Prohealth in the past--I met many wonderful patients here). I created this group upon realizing that in the 5 years of being sick, I never once found a patient near my age by trying to do so, but instead always stumbled upon one by chance. Every demographic of this illness needs its own support system, and this is an attempt to make the social isolation of this illness a little easier on this particular demographic which includes many patients whom are fresh out of the most socially-embedded times of their lives.

    I hope this post will not be deleted because I know there are many other younger patients that have been seeking this type of support. I also scanned the board rules and did not see anything against posting links to other groups. I hope this post will be considered as a complement to the service that Prohealth provides (which is how I look at it) and not an attempt to steal away users (which it most definitely is not!)[This Message was Edited on 01/17/2011]
  2. mojoey

    mojoey New Member

    for young adult patients.

    A huge thank you to the moderators for not deleting my post.
    [This Message was Edited on 01/18/2011]
  3. LindaJones

    LindaJones New Member

    Hi Joey --
    I met you at a cfs/fm support group in Redondo Beach.
    I am going to join your group.
  4. victoria

    victoria New Member

    for others...
  5. Kristykay

    Kristykay New Member

    Hi Joey!

    Just found your post and I am a 29 year old female suffering with this disease for over 2 years if not more. Do you live in Southbay? I would love to connect with you sometime. Thank you for reaching out to help our voices be heard and supported.