New health problem

Discussion in 'Spirituality/Worship' started by Sky, Jan 13, 2002.

  1. Sky

    Sky New Member

    I usually post on the fibro board, but haven't since the new switch. Lots has happened with my health. Where I have made great progress with the guaifenesin treatment, my heart has decided to give me problems.

    I have an ultra sound scheduled for tomorrow to make sure that my arteries are all in tact and that my heart is functioning properly.

    I am asking for prayers that my heart is okay. I am also asking for prayers to give me the strength I need to be strong through this. I would also like prayers asking for my parents to understand that I am sick and not to ignore me anymore.

    I don't ask for much and try to be as giving and understanding to others as I possibly can.

    It's just this time, I'm the one that needs the help. I know this board doesn't get frequented as much, but I feel better that this is out there.

    With love,
    Sky
  2. Jude

    Jude New Member

    Sky, I have a limited amount of time that I am on the computer everyday but I do check this board before going to any others. I know the thought of having a heart condition in addition to the FMS is discouraging. Many of us with FMS have mitral valve prolapse but I know the anxiety of wondering what could be wrong can drive us crazy. I will remember you tonight in my prayers to face this newest challange and that you may have a better relationship with your family members. Our families can be a source of our greatest joy and a source of our greatest pain.

    Jude
  3. Shirl

    Shirl New Member

    Hi Sky, will put you on my prayer list right now.

    Prayer will be going up for you from all of us.

    God Bless, and give you the courage and strength you need, and that your parents face the fact that you are sick.

    Sometimes the people we love the most, just don't understand.

    The stronger people are the less they understand this terrible sickness, unless they themselves are stricken with it.

    I have been through a lot with family and friends.

    Take care, and know that the Lord will be right there with you!

    God Bless,

    Shalom, Shirl
  4. Cactuslil

    Cactuslil New Member

    You will have the Savior at your side.

    Shirl noted that the strong take longer to understand; the converse is also true, when you have always been a strong person, it is hard for family to realize something is terribly wrong.

    It has taken my parents six years to realize I am really ill. They gave me their old car not realizing that I rarely drive anymore. That car was a fantastic gift to me as I had been without any transportation; however, it was given to me at a time when I generally don't have the faculties to drive safely.

    Hang in and prayers are with you. CactusLil'
  5. Pixie

    Pixie New Member

    Dear Sky, just read your post that you wrote on the 14th, so you must have the results of your test, I looked for them, please let us know how they turned out, my daughter (willow) has had all kinds of test as others have in my suppport group, they all have same problem and turn out ok, good idea to have test to make sure but this is part of fms, still scares me when willow has this. you also talk about your family does not understand your illness, as a loving mother I did not at first, denial, or thought it was taking a toll on her for caring for her quad husband for all those years, the more I read, and saw this awful illnes in so many, the more I myself understood, but at first and not understanding fms, taking her to doc after doc, with degative results made me feel the way I did, so Sky, my suggestion is to find material, books, etc. try to educate family members as this is added stress to you, stress itself plays a big part in your illness, I will be praying for you and your family, and please let us know your results, love and hugs to you and yours.
  6. Sky

    Sky New Member

    Hi Pixie,

    Thank you for the kind words. Yes, I did get back the test results from the ultra sound of my heart. There are abnormalities in the rhythm/beats. It has been diagnosed as a ‘heart arrhythmia”. My appointment with the cardiac specialist isn’t until this Friday now. I’m not too concerned with it now, as if it was a bigger deal, I would have been in to see him already. My other physician said that it is easily treatable with a beta blocker, and she gave me a prescription for it already, but I won’t fill it until I speak with the cardiologist.

    As far as my family, it only involves my parents. My sister, brother-in-law and brother understand my fibro and are very caring. Since my dx of fibro, My parents have ignored me and ignored the fact that I am ‘sick’. Initially, I sent them a really long letter explaining everything and sent them a ton of information to read over. A week later, I called to see if they went thru and read the information about fibro and both said, “no, we haven’t read it yet”. Now, both my parents are retired. The built their dream home in the Smokey Mts and moved from close to where I live (Chicago) to NC November ’00.

    Then early last May, I called to explain the guaifenesin treatment to my mother. I wanted her to know what my plans were to help me. So I went into this long winded explanation and when I was done she said, “oh, you have to see this new rug your father and I just bought”. She completely blew off what I was talking about. That was the last time that I ever mentioned my fibro to her or my Dad again. When they ask how I am doing, I just reply “fine” and leave it at that because I know if I go into any detail, they won’t pay attention to it anyway. It really broke my heart at first, but now I don’t hold any expectations to them and I don’t set myself up for disappointment. Isn’t that sad? I’m not sure what they think? That just because I still work and do the things I love to do (active things), that I’m not sick?

    There is a lot more to my ‘parent’ saga, but to bring it up will just cause more harm than good at this point. It is in the past. I cannot change them. I have tried to make them understand, but if they aren’t willing, then I cannot waste more energy on them. They will always be my parents and I love them, but it’s different now.

    I think I just asked for a prayer for my parents to understand what is wrong with me because, if the heart thing was more serious, I don’t think that I could have handled more rejection from them.

    Your daughter is Willow? That is the Willow on the guaifenesin correct? I just want to let you know that she is one great person. We don’t e-mail, but have chatted on the board several times swapping guai experiences. It’s always nice to see her post.

    THANK YOU Shirl and Lil for your prayers. That meant a lot to me!
  7. Sky

    Sky New Member

    Thank you to you as well. I appreciate the kind words.

    I tried to edit my other post, but it wouldn't accept the change???

    Thank you again,
    Sky
  8. Cactuslil

    Cactuslil New Member

    I surely hold no answers about 'family matters'; my mother and daughter (the one that moved in to help me) will not deal w/my medical situation; or financial for that matter. But I have come to the conclusion is has less to do with the level of love or acceptance of me and more to do with their own inadequacies and fears.

    RoseTX has written a story of her mother wherein she realizes now that her mother loved her all the love she knew how to give and I believe that is true not only of her mother, but of my mother and probably yours too. It is sad that they miss out on learning alot about us but only we can choose to accept this relationship, with that shortcoming or not. Sometimes I don't even know if we do or do not have a relationship...the bizarre answers back to our efforts to help them understand are baffling to say the least!

    No one in my family has read my findings from the SSDIB judge wherein I was granted a favorable decision! No one has read the petition whereby my "X" has filed for custody of my son, their grandson and my daughter's half-brother! Boggles my mind Sky! First thing I would have done would have been to snatch those papers and read them with a fine toothed comb!

    No one in my family knows what diagnosis I have! Lord, lord. And I mean that humbly! You are not alone and I truly think these folks in our lives do love us, pray for us ect. but the reality of our lives is just taking it to a point of their 'hurting' so they choose right now, not to go there. Love Lil'
  9. Harmony

    Harmony New Member

    Sky, I will lift you up in prayer!
    In His Love,
    Harmony
  10. BrownSuga

    BrownSuga New Member

    hun, I'm sorry to hear of your new health problems, i know you are so worried right now.
    I will put you and your parents in my prayers sweetie.
    love
    suga

  11. reborn

    reborn New Member

    my parents had the same response...it has been one of the hardest parts of this illness to deal with their denial. the arrythmiia is probably from magnesium deficiency. try natural calm (see naturalcalm.net) and it may be the answer. it could save you alot of hassle with rx drugs and it will help the fibro tremendously. it took me years to get to this point and i hope to pass it on so others dont suffer. may God bless you.
  12. griswoldgirl

    griswoldgirl New Member

    I proclaim that your heart is fine in the Lord's name.

    I hope all went well with the ultrasound. Be good to yourself.

    take care

    cathy