I need to vent. Well I need to cry into my pillow but that will wait. I know you have a lot on your mind and have a lot of your own to deal with, and I really appreciate you taking a moment to read this. Quick background. I got hit with Guillain-Barre Syndrome in 06. Long story with that one. 2 years later I was diagnosed (twice by different docs) with fibro as well. As if a person needs pain on top of pain. I am trying to sort out and learn what pain is which....GBS related re-innervation or fibro. Some of the things I deal with: numbness and tingling in feet, legs, hands, arms, face, sometimes even lips, tongue and throat. And in patches body wide. Muscle twitching muscle weakness (I can only describe it as feeling as if I have worked out big time...I know that the nerves that have 'grown back' are not as efficient as the originals so this can cause such issues) Sleep issues. Can't sleep, can't stay awake, waking during the night, unable to get on a regular or workable sleep pattern. Digestive issues (chronic constipation...no matter what fiber product I have tried or how much water I drink. This is a problem.) Body wide pain that sometimes feels bone deep Joint pain tendon and ligament pain anxiety depression my body temp has been known to drop to 92.9-93.3 for no reason. Warm house, dressed appropriately, wrapped in blankets. Doesn't matter. I will suddenly feel as if I am freezing to death! I will also sweat and not have much of a change in normal body temp which since the GBS has been 97.3. I have three different thermometers I use to triple check this. Hair loss weight gain brain fog should i go on? or do you have an idea that I am a mess. I am on xanax... .5 three xdaily if needed, 2mg at bedtime, 10 mg of flexeril 3x daily if needed, recently put on vitamin d 50,000 IU 2x a week for 4 weeks and then drop to 1x week for 4 weeks and then get retested, Meloxicam 7.5 as needed (this did help with a recent very intense flare up of some kind but has not really helped the past couple of days now that things are at a 'dull roar'). No anti depressants because they make me suicidal. No neurontin because I hallucinated and went into a manic. Was told no gaba products at all ever. I feel so down. I realized after some research that what I thought I was dealing with pain wise and inflammation wise was probably just fibro. I recently had a flare up where my joints hurt, my tendons and ligaments hurt, I could barely walk and was in tears with the pain. Went to the doc, had some blood work done for possible RA and thyroid and other auto immune markers. Only thing that came back positive was Sed rate and CRP. I have had flare ups like this in the past and have had many of them but I think I have only been in to the doc for it twice now (once was given a 10 day round of prednisone which helped). Since I am unable to take the usual pain meds with codeine, I figured there wasn't anything they would or could do about it so I suffered on my own and did what I could. I poked around after getting the results of the other tests and those were all negative for anything scary like RA, which every single symptom seems to point to. And other symptoms point to a thyroid issue, but that was also okay. Then I find out that Fibro isn't an inflammatory condition. Um. Okay then if that is true and the anti inflammatory meds helped take a lot of the edge off, then what the hell is going on?? Something is wrong. I feel it, I know it, I just can't explain why or how I feel or know it. I thought maybe it's just stress, but I am quite friendly with stress, we are on a first name basis, and this is not the same. I don't know what I am dealing with and an unknown is a bit frightening. I tried a lap on our treadmill thinking it would help get things moving...almost immediately I started hurting again so much that my knees and feet just could not handle it and I couldn't handle the burning in my muscles. Ticked me off and was such a disappointment. As if gaining weight isn't a kick in the pants, trying to do something about it is proving to be pointless. I feel pretty alone and am trying so hard not to bring things up with my SO because he is one of those fix it guys and gets upset that this is something he can not fix. I will be seeing a new counselor soon...I have no idea why, their 'coping skills' suck and mine are already bad enough. I am so angry about all of this and feel as if I have lost so much of who I was. I don't know how to get used to the 'new' me and live within my limits because those limits change on a dime. Can you help me? Give me some ideas or insight or point me in a direction of some sort? I have run into a brick wall as far as my research into all of this goes. thanks for listening. need to go lay down.