New here and need info

Discussion in 'Fibromyalgia Main Forum' started by Pisces2526, Apr 7, 2003.

  1. Pisces2526

    Pisces2526 New Member

    Hi everyone, my name is Carol and I need some help. I have been dealing with all kinds of symptoms since I was a teenager(I'm 29 now). I've had severe migraines since I was at least 4 years old. That's the earliest one I can remember. When I hit my teens I started having problems with fatigue and the migraines became more frequent. Over the last few years I have had periods of time where the fatigue is so bad I can hardly stay awake even standing up.Also during those times(which generally last at least a month and a half)I become so sensitive to smells that even things I normally like will cause me to vomit. When this happens, I can't go into the grocery store or even think about most foods without getting sick. My husband doesn't get any home cooked meals when I'm feeling this way. Every time they test me for pregnancy, and the result is always negative. I have also been tested for EBV, mono, and thyroid dysfunction, among other things. Over the last two or three years I have also developed severe muscle pain. At times the pain in my neck and shoulders is so bad I can't sleep and can hardly function. When I was in high school the school nurse told me I should be evaluated for CFIDS but when I suggested it to my doctor his response was "It's a nice idea but you can't take the opinion of a nurse". Needless to say I was never taken seriously by that doctor. Others have tried to pin it on the fact that I have bipolar disorder. I have since been told by both my GP and my psychiatrist that there is no way those symptoms are being caused by the bipolar. Now I just need to get one of them to pursue the matter more agressively and find out what is going on. Lately I've been waking up with severe pain in my arms and legs and my migraines have increased in severity.
    I'm sorry to make this so long but I'm really at my wit's end with this. I am seeing both of my doctors on wednesday and if anyone can help me figure out how to approach them with this, please let me know.
  2. ozgran

    ozgran New Member

    Nice name. It's my DIL's too. Spacee has just replied to you and given you some good advice.You might like to check out Devin J Starlins Fibromyalgia and Chronic Myofascial Pain Syndrome. I can't get the book over here in Aus', but I did check in the library here and found some information for my husband.It was called "A guide for Relatives and Companions" and it really explained some of my symptoms. Welcome to the board. Love Ozgran.
    [This Message was Edited on 04/07/2003]
  3. Bambi

    Bambi New Member

    FM then too, but mine didn't get severe until about five or six years ago. I'm 55 now. I hate
    hearing you are having it so badly already at
    your age. I don't have the migraines, but my
    daughter does and she is 30. My suggestion for your doctor is to write down any and all questions you want answered and take them with
    you. You can read them one at a time or just hand the list to the doctor, but make sure he/she addresses each one. I'm not fond of rheumatologists OR neurologists but they do help
    many. I didn't need a referral but if you do, you might ask for a referal to a pain specialist. Some of them work under the title of Sports Medicine, but your doctor should be able to find out what it is in your area. They deal with pain and all the illnesses that cause it, so few don't believe in FM or won't treat your pain and migraines. I wouldn't stay with any doctor that wouldn't take your symptoms seriously, you are too young to have to
    suffer--not that we older ones should either. Once you get your symptoms under control then keep coming to the board and read what some of the people here have found that's working for them. Really research FM and any ideas you hear for helpful programs people are doing or you can end up spending a lot of money chasing hope. Some here are definitely being helped by different things, and we are all different so research will not necessarily mean you will get the same results as someone else..but it will give you sound ideas of things to try and things to just avoid. Good luck! Hugs, Bambi
  4. Mikie

    Mikie Moderator

    Screens for and treats CFIDS. This may take some sleuthing on your part. We do have a good doctor list here on the home page.

    Learn all you can about this illness to help empower you when dealing with docs. Good luck.

    Love, Mikie
  5. Pisces2526

    Pisces2526 New Member

    Hi everyone, thanks for responding. I checked the doctor list on the site, and unfortunately none of them are in my area. Not to mention that my HMO makes everything more difficult than it has to be. I will be seeing both of my docs tomorrow and hopefully one of them will be able to help me. I am going to take with me the information I have been gathering and with any luck, someone will actually listen to me. Thanks again, and I'll let you all know how it goes.

  6. Pisces2526

    Pisces2526 New Member

    I went to the GP today. Had to cancel the psychiatrist because I couldn't get out of bed. The GP is actually concerned and said he will keep running tests until he figures this out. He was horrified that my old doctor had refused to test me for anything. Hopefully something will turn up on one of these tests. I'm just happy to be taken seriously for a change. I should be used to this by now, it took many years of frustration before I got a correct diagnosis of my bipolar disorder. None of the psychiatrists I saw wanted to listen to me or believe it was anything more than serious depression. I know myself well enough to be able to tell what is normal and what isn't. One counselor I was seeing even told me that I was only having situational depression. If only it was that simple, I'd be cured lol. I'll keep you all updated on what happens now.