New here and new to fibro...well sort of

Discussion in 'Fibromyalgia Main Forum' started by myjoy, Feb 18, 2007.

  1. myjoy

    myjoy New Member

    Hi everyone!

    This is my first post here. I got a 'for sure' diagnosis of fibromyalgia (do you call it FMS?) about 3wks ago, although I've been in pain for several years. I have so many questions, I hardly know where to start.

    Perhaps you folks have all the answers!

    I guess it doesn't matter where I start, so here goes.

    I fell at work and injured my shoulder 4 weeks ago. I'm having an MRI tomorrow. Does FMS cause healing to be slowed? Also, I am so tired since this happened...I could barely work before from fatigue, now it's really bad. How can I get some energy? Or isn't that possible?

    Thanks so much, and I look forward to meeting you all.
    myjoy
    [This Message was Edited on 02/18/2007]
  2. bewell4

    bewell4 New Member

    just diagnosed. i want to rant for a second about how aggravated those words make me feel!!! i had the same experience. wish we could all be immediately helped*!!

    anyway, yeah, unfortunately, i think it does take longer to heal.

    it seems for me, anyway. it makes sense to me that our cells are "starving", because it seems like an injury that never heals. like, lack of deep sleep just stars devastating the whole body. this is just an educated guess; the good news (i think??) is that doc's do diagnose this, and there seems to be a lot of progress in the works.

    hang in there.

    i wish you a speedy recovery.
  3. momof471

    momof471 New Member

    Its not that the healing in the shoulder is slowed, its that the injury overstimulates your central nervous system and this in turn makes it feel like your not healing. This was my case. I had an injury to my sternum that was misdiagnosed, treatment was delayed by six months.(Worker's comp)at that point the injury had 'healed' the way it was going to. I still had the full pain effects from the injury. Definantly go for your testing and make sure its healing ok. When you have fibro though the pain can long outlast the injury. Sometimes you may find a doctor that tries to brush off complaints of pain when you have fibro, always get things checked out though.
  4. bewell4

    bewell4 New Member

    i forgot about that stuff. wish i had a better doc! i still haven't been tested for all the biggies...too tired to fight to educate docs and advocate for myself.

    i had to work to get thyroid, lupus, and some of those.

    when i asked my doc for thyroid test, he wrinkled his brow, started flipping pages in my chart, and said in an irritated voice "haven't we done that already?!" ...lol! (not). it was all i could do to not bust out crying or laughing, or both, but just calmly say "no."

    insanity!! anyway, i hope you have a better journey than i!

    p.s. what i mean by "takes longer to heal", is, for example my wrists hurt and seems like something like this would be better in a day or 2. instead, it keeps getting worse...i really have to rest and take it easy to get back to "normal". also, i used to work out and have sore muscles for a couple days, a week. well, they've been sore now, continuously, for going on 5 years... lol. ugh!
    [This Message was Edited on 02/18/2007]
  5. myjoy

    myjoy New Member

    Thanks so much for the info...I feel both more informed, and a little confused. Don't mind me...it's the fibro, lol.

    I have had many tests already. The ones I remember for sure were: lupus, lymes, thyroid (I think), and some other stuff I don't remember.

    Yes, I have been told "all you have to do is excercise," from my 23yr old daughter, no less. Because she knows someone at work who has it, and that's all she needs to do to feel better. Arggggh! I can't really punch my daughter, I suppose! I've also been told "at least it's only fibro, and not something serious" from my friends. I just want to cry sometimes. I've felt myself pull away from folks a bit...more my fault than their's I think.

    My doctor sounds pretty knowledgable. I just have trouble concentraiting on what he is telling me. But he does not rush me through my appts.

    We turned up the heat this winter, and that helps a little. I didn't know about all the different suppliments and stuff. That will be interesting to see what works, and what doesn't. I've never had a massage...I'd like to try that. Going swimmimg seems to help some if I go in a hot tub first (local hotel lets me go for $2.00 a visit w/dr's RX).

    Thanks again folks, and I hope to get to know you all better.

    myjoy
  6. kelleyc

    kelleyc New Member

    I was in pain for years and I kept asking my doctor about it and the exhaustion all the time. He just kept telling me that sometimes life is tiring. I kept leaving my appointments crying and thinking that I was a big baby. I finally got diagnosed by a Rheumatologist and sent to a pain specialist who said he didn't want to start me out on narcotics right away. I did everything I was supposed to and finally got mad and said that I had been suffering from this for a long time so it wasn't right away. I have been seeing him for about 2 years now and he really listens to me and adjusts my meds as needed. I hope you have a good doctor too. That is really important. I still work about 45 hours a week but that is really hard. My docotor started talking to me about going part-time. I don't think it will be too much longer until I do.
  7. myjoy

    myjoy New Member

    Your first 2 sentences sound just like me! One doctor even told me to just forget or ignore my pain...take my pick, I guess! Wish I could.

    Nice to meet you.
    myjoy