new here hello all

Discussion in 'Fibromyalgia Main Forum' started by sabimax, Dec 9, 2005.

  1. sabimax

    sabimax New Member

    hello all, new here. Been suffering symptoms of numbness/tingling in face and other body parts, pins and needles tingling, balance issues, eye blurriness, and vertigo....6 years....also achey joints upon waking up...feel like age 93 when only 36...anyhow long story short....was thinking it was MS for a long time...finally went to a MS specalist for a second opinion..and he read my MRIs and all...said he really thinks it is NOT MS or neurological issue....thinks it is Fibromyalgia...

    ok so thought I would find a message board...I was on a MS message board for years..of ppl that had MS or thought so...still post there...but want to keep in touch with others with Fibro...my mother has it too.

    anyhow I am a full time manager 40 hours a week and mother of four kids...married 15 years...

    curious if any of you get the extra symptoms that I didnt know could be fibro related...balance/ vertigo numb/tingling stuff....??? I always thought fibro was mainly the aches and pains and exhaustion..like my mom... so anyhelp would be great...nice to be here...thanks for all info...sarah
  2. FibroJo

    FibroJo New Member

    Hi Sarah, Welcome to the boards. You are going to find a great bunch of people here who understand what you are going through. In answer to your question, yes I do get the balance problem, vertigo/dizziness, along with the regular aches, pains and exhaustion. So hang in there and I will look forward to your postings !! Take care.
  3. gidgetsmom

    gidgetsmom New Member

    just a quick welcome, glad that you found this board!
    it's a very friendly place with alot of answers and support.
    I also have the balance/vertigo, thing along with FM.
    Like you, I still manage to work full time..married..2 kids almost grown.
    Looking forward to getting to know you!!!
  4. twix

    twix New Member

    And WELCOME!! Yes i have the same symptoms with FMS.

    Twix
  5. sabimax

    sabimax New Member

    cool then to find that some of my symptoms that I didnt think go with fibro....do...heeheeee....was thinking MS for so long...but anyhow glad the dr gave me a diagnosis..and now can concentrate of taking care of me the best ways with fibro....any tips?? I know exercise and good sleep are the best for it..sleep well I average 5-6 hours is all..due to work schedule at 4am..and the four kids...but might need to force more sleep in...

    any tips would be great, what is the number one thing you do or take medicine wise...or do...that you recommend>?? thanks, sarah
  6. libra55

    libra55 New Member

    Glad to have you with us. I am 50, have FM diagnosed in 2000 and Crohn's Disease diagnosed in 2005. I have had vertigo and balance problems for over 30 years. Annoying aren't they? Mine come and go. It's worse in the cold weather for me.

    My doctor prescribes Antivert (meclazine) when it gets too bad. I also take Bonine (doesn't cause sleepiness like Dramamine) sometimes.

    Michelle
  7. Solaris_Starr

    Solaris_Starr New Member

    Numbness and tingling/pins & needles, vertigo, balance.......all mine!! I am always triping and bumping into furniture or corners and always dropping things. I have CFIDS/FMS. I would think that your symptoms are more CFIDS related with FMS as a secondary condition or a tag along. How do you do it to work 40 hrs a week and raise 4 kids??!!

    Hugs to you,
    Sandy


    [This Message was Edited on 12/09/2005]
  8. Jeanette62

    Jeanette62 New Member

    Hi Sarah,

    Welcome. My mom has fibro too.

    You're not alone with having balance/vertigo symptoms with FMs dx. That and the extreme fatigue were the first symptoms to hit the hardest when the FMS first started this last year. Now I have the aches and pains as well.

    I don't know how you manage to keep up with a full time job and your famiy. I can't seem to keep up with my daily trip to the gym and transporting my son to school and the house, let alone thinking about going back to work yet. I have a daughter in college too.

    I do understand your feeling like 93 at 36. I'm 45 and feel like a Sr. many days. Hey many Sr.'s have more energy and a higher fitness level than me. It's very frustrating because I was very active a little over a year ago before I had an injury that started all of this. It's been a big adjustment having to slow down because my body doesn't have the energy to keep up.

    Take care,

    Jeanette
  9. JLH

    JLH New Member

    Welcome to our board/support group. Glad to have you!

    I am getting close to 55, married, 3 adult children, 2 grandsons, retired for 6 years after working full-time for 30 years. I have had fibro and lupus since I was 10, and currently have a ton of other health problems (see my bio).

    Here is a list of additional symptoms of fibro that you might find interesting:

    GENERAL
    ____ Fatigue, made worse by physical exertion or stress
    ____ Activity level decreased to less than 50% of pre-illness activity level
    ____ Recurrent flu-like illness
    ____ Sore throat
    ____ Hoarseness
    ____ Tender or swollen lymph nodes (glands), especially in neck and underarms
    ____ Shortness of breath (air hunger) with little or no exertion
    ____ Frequent sighing
    ____ Tremor or trembling
    ____ Severe nasal allergies (new allergies or worsening of previous allergies)
    ____ Cough
    ____ Night sweats
    ____ Low-grade fevers
    ____ Feeling cold often
    ____ Feeling hot often
    ____ Cold extremities (hands and feet)
    ____ Low body temperature (below 97.6)
    ____ Low blood pressure (below 110/70)
    ____ Heart palpitations
    ____ Dryness of eyes and/or mouth
    ____ Increased thirst
    ____ Symptoms worsened by temperature changes
    ____ Symptoms worsened by air travel
    ____ Symptoms worsened by stress


    PAIN
    ____ Headache
    ____ Tender points or trigger points
    ____ Muscle pain
    ____ Muscle twitching
    ____ Muscle weakness
    ____ Paralysis or severe weakness of an arm or leg
    ____ Joint pain
    ____ TMJ syndrome
    ____ Chest pain


    GENERAL NEUROLOGICAL
    ____ Lightheadedness; feeling "spaced out"
    ____ Inability to think clearly ("brain fog")
    ____ Seizures
    ____ Seizure-like episodes
    ____ Syncope (fainting) or blackouts
    ____ Sensation that you might faint
    ____ Vertigo or dizziness
    ____ Numbness or tingling sensations
    ____ Tinnitus (ringing in one or both ears)
    ____ Photophobia (sensitivity to light)
    ____ Noise intolerance



    EQUILIBRIUM/PERCEPTION
    ____ Feeling spatially disoriented
    ____ Dysequilibrium (balance difficulty)
    ____ Staggering gait (clumsy walking; bumping into things)
    ____ Dropping things frequently
    ____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
    ____ "Not quite seeing" what you are looking at



    SLEEP
    ____ Hypersomnia (excessive sleeping)
    ____ Sleep disturbance: unrefreshing or non-restorative sleep
    ____ Sleep disturbance: difficulty falling asleep
    ____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
    ____ Sleep disturbance: vivid or disturbing dreams or nightmares
    ____ Altered sleep/wake schedule (alertness/energy best late at night)


    MOOD/EMOTIONS
    ____ Depressed mood
    ____ Suicidal thoughts
    ____ Suicide attempts
    ____ Feeling worthless
    ____ Frequent crying
    ____ Feeling helpless and/or hopeless
    ____ Inability to enjoy previously enjoyed activities
    ____ Increased appetite
    ____ Decreased appetite
    ____ Anxiety or fear when there is no obvious cause
    ____ Panic attacks
    ____ Irritability; overreaction
    ____ Rage attacks: anger outbursts with little or no cause
    ____ Abrupt, unpredictable mood swings
    ____ Phobias (irrational fears)
    ____ Personality changes


    EYES AND VISION
    ____ Eye pain
    ____ Changes in visual acuity (frequent changes in ability to see well)
    ____ Difficulty with accommodation (switching focus from one thing to another)
    ____ Blind spots in vision


    SENSITIVITIES
    ____ Sensitivities to medications (unable to tolerate "normal" dosage)
    ____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
    ____ Sensitivities to foods
    ____ Alcohol intolerance
    ____ Alteration of taste, smell, and/or hearing


    UROGENITAL
    ____ Frequent urination
    ____ Painful urination or bladder pain
    ____ Prostate pain
    ____ Impotence
    ____ Endometriosis
    ____ Worsening of premenstrual syndrome (PMS)
    ____ Decreased libido (sex drive)


    GASTROINTESTINAL
    ____ Stomach ache; abdominal cramps
    ____ Nausea
    ____ Vomiting
    ____ Esophageal reflux (heartburn)
    ____ Frequent diarrhea
    ____ Frequent constipation
    ____ Bloating; intestinal gas
    ____ Decreased appetite
    ____ Increased appetite
    ____ Food cravings
    ____ Weight gain (____ lbs)
    ____ Weight loss (____ lbs)


    SKIN
    ____ Rashes or sores
    ____ Eczema or psoriasis


    OTHER
    ____ Hair loss
    ____ Mitral valve prolapse
    ____ Cancer
    ____ Dental problems
    ____ Periodontal (gum) disease
    ____ Aphthous ulcers (canker sores)


    COGNITIVE
    ____ Difficulty with simple calculations (e.g., balancing checkbook)
    ____ Word-finding difficulty
    ____ Using the wrong word
    ____ Difficulty expressing ideas in words
    ____ Difficulty moving your mouth to speak
    ____ Slowed speech
    ____ Stuttering; stammering
    ____ Impaired ability to concentrate
    ____ Easily distracted during a task
    ____ Difficulty paying attention
    ____ Difficulty following a conversation when background noise is present
    ____ Losing your train of thought in the middle of a sentence
    ____ Difficulty putting tasks or things in proper sequence
    ____ Losing track in the middle of a task (remembering what to do next)
    ____ Difficulty with short-term memory
    ____ Difficulty with long-term memory
    ____ Forgetting how to do routine things
    ____ Difficulty understanding what you read
    ____ Switching left and right
    ____ Transposition (reversal) of numbers, words and/or letters when you speak
    ____ Transposition (reversal) of numbers, words and/or letters when you write
    ____ Difficulty remembering names of objects
    ____ Difficulty remembering names of people
    ____ Difficulty recognizing faces
    ____ Difficulty following simple written instructions
    ____ Difficulty following complicated written instructions
    ____ Difficulty following simple oral (spoken) instructions
    ____ Difficulty following complicated oral (spoken) instructions
    ____ Poor judgment
    ____ Difficulty making decisions
    ____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
    ____ Difficulty following directions while driving
    ____ Becoming lost in familiar locations when driving
    ____ Feeling too disoriented to drive


    Hope to talk with you often!

    Holiday Hugs,
    Janet
  10. DVoit

    DVoit New Member

    Yes, this is the place to share, get help and advice and concern from others. We all understand. Hope you are feeling well today and have a Merry Christmas.
    Donna
  11. sabimax

    sabimax New Member

    how do I do it..all..well I work days hubby evenings...so that the yougest doesnt have to do daycare...years ago when the others were little I was a nanny and my kids came with me to work...the familys house...so none of the kdis have been in daycare...

    I just keep on going...is all....I dont work full time by choice more by bills...mortgage..and all....I do enjoy my work..I manage a McDonalds restaurant.

    thanks for the list and the tips...I will find a rheumotologist...soon...and get focused on things I can do ....this place is cool..just like the MS boards that I love....

    oh what is that other disease...with the initials...C...cant recall the name...someone in the posts mentioned maybe I have that..????? take care all,sarah
  12. kellygirl

    kellygirl Member

    Chronic Fatigue Syndrome? I started with that with the viral onset, mono-like symptoms. It has since progressed to FMS. That was in the 80's, when researchers believe there was an epidemic. Some drs feel they are one and the same disorder, maybe not. I believe I have both. Sometimes the virus will erupt. I can tell when the sore throat arrives. It's a journey and you will get to know your body and what works for you.........God bless.
  13. sdown

    sdown New Member

    All year I have had sinus infections and was told I had nasal polyps. I got rid of the nasal polyps with a prescription of glutathione nasal spray. Glutathione is an antioxidant. After the polyps were gone I have had an imbalance. This imbalance effects my body equilibrium. I only want to sit down or lie down or sleep. I went for a walk a few days ago and for a few seconds it felt like something was pulling me to the left. The naturopathic doctor gave me a homeopathic solution. She said the right side of my body was infected. The lungs and sinuses. The medical doctor who works with her said of course if it was a full blown infection I would have to go back on antibiotics. But its only a low grade one for now. Hopefully it wont blow up again into a bad infection. Anyways in the beginning of my illness with CFS the doctor told me I had the HHV6 virus which caused really bad dizziness. So I got rid of that 3 years ago I was placed on blood thinners (heparin) for 18 months for poor circulation. So get your sed rate checked. Get checked for viruses like the HHV6 virus. There is info on this site about the HHV6 virus. Go to a Nose Specialist get your sinuses checked just in case. Balance can be effected by many things as you know Im sure. This is what I went thru so thought Id share it with you. Also get your adrenal glands checked. I found out I have Addison's disease which causes chronic fatigue. Im on cortef everyday for that. Good luck!
  14. kylesmom

    kylesmom New Member

    You've already gotten the answer you were looking for, so I'll just say "welcome"!