NEW HERE-I HAVE FIBRO & RA

Discussion in 'Fibromyalgia Main Forum' started by PALMERTP, Mar 6, 2003.

  1. PALMERTP

    PALMERTP New Member

    Hello,
    I would appreciate any info that you could give. I am going on a year with this diagnosis, to no avail. Trying to treat the RA and doing nothing for the Fibro. I can't even hardly walk now because of the back pain. All I get is different pain med's which concern me, yo yoing back and forth.
  2. Shirl

    Shirl New Member

    Hi Palmer, welcome to the board. I don't take pain meds, I mostly take supplements for Fibro. The back pain is the worst for me too.

    Have you tried heat? I use a 'wireless mattress heating pad' (Sear's and Penny's sell them), it really helps with the night pain and the morning stiffness.

    Have you tired taking magnesium? most of us are deficient in this mineral which helps heal our muscles while we sleep.

    That is what has helped me the most with pain.

    Glad you found our board, and I know others will be glad to share what they are getting relief from too, many take meds, supplements and some of us take both.

    You will learn that we are all different and what works for one of us might not work for others. Strange illness we have, a lot of trial and error with medication.

    Hope we hear from you often, and that you get some relief soon.

    Shalom, Shirl
  3. Tattoopixie

    Tattoopixie New Member

    Welcome to the board. You need to be assertive w/your Dr & not minimize your pain & other symptoms. If your Dr is not willing to treat your fibro pain, then you may need to find a new Dr. Devin Starlynal's book has alot of good info - The Survival Guide for Myofacsial Pain Syndrome & Fibromyalgia Syndrome.
    Feel free to come here for advice & support. It is hard to keep up w/so many postings so please don't feel snubbed if your question gets lost in the shuffle. I have a hard time remembering to go back a few pages to the start of that day when I read posts & am sure other feel the same.
    You can also use the 'search message board' function at the top of the page to get answers for questions too.
    Take care & I hope you get relief soon!
    ***Pixie***
  4. EllenComstock

    EllenComstock New Member

    Hi, just wanted to welcome you here, but sorry you are in the same boat we all are. I don't have RA, but was diagnosed with endometriosis almost three years ago and with fibro last summer, although I think I have had both most of my life. I've had several laparascopies for the endo and haven't had as much trouble with that now. I have been seeing a fibro specialist since I was diagnosed. What kind of pain medication are you on? I am currently on Ultracet. The doctor had the double the dosage and it works pretty well. Unfortunately, it does seem like there are no pain medications that totally take away the pain from my own experience and others I have read here, but I am grateful for anything. For sleep I take melatonin (10 mg.-not a prescription but a natural substance found in the brain that helps to induce sleep-the doctor recommended this. You can get it in any health food store or vitamin catalog). I also take 10 mg. of Elavil (I take the generic Amitriptyline). I take the sleep and pain medications about an hour before bedtime and the pain medication as needed the rest of the time.

    I am still working full-time (half-time during the summer) so this is helping me to still function somewhat. I also have problems with the fibro-fog, but finding ways to help me remember things. I know this disease is very frustrating and depressing at times, but please know that you are not alone! I have found this board to be a great source of informatio and comfort and hope you do, too.

    For pain you might also try soaking in the tub with a cup of epsom salts. They are high in magnesium which is supposed to help the pain. Many people who have fibro also are low in magnesium. I have upped my intake of this. As you will see, different things work for different people. Good luck and let us know how you are!

    Ellen
  5. Mikie

    Mikie Moderator

    One of our super researchers has found a website called The Roadback Foundation. They advise on the use of antibiotics for treating RA and FMS.

    I am just stopping my antibiotics after taking them for more than a year for chronic mycoplasma infection. Mycoplasmas have been found in the joint fluid of people with RA.

    Love, Mikie
  6. PALMERTP

    PALMERTP New Member

    I'M NOT SURE IF THIS IS HOW TO ANSWER YOUR REPLY. I'LL GIVE IT A TRY. SORRY IT HAS TAKEN SO LONG TO ANSWER. JUST GOT OVER A VERY VERY BAD FLARE!!! I HAVE BEEN ON PREDISONE FOR (1) YEAR, DIFFERENT DOSAGES AT REQUIRED TIMES. PAIN MED'S HAVE BEEN MANY. MORPHINE, HYDROCODONE, ENDOCET, OXYCONTIN, HYDROMORPHONE. WHEN I WAS ON OXYCONTIN, I WAS TOLD BY DR. TO ALSO TAKE ENDOCET FOR BREAK-THRU PAIN, WHICH DID HELP.

    HAD MRI DONE TODAY FOR NECK AND HAND, I'LL LET YOU KNOW RESULTS, SO FAR FOR RA DR. JUST GOING OFF HIGH RA FACTOR. BEEN ON FOLLOWING MEDS FOR THAT: METHOTREXATE, KINERET & ENBREL, SEEMS EVERYTIME I END UP WITH SOME TYPE OF UPPER RESP. INFECTION AND MEDS HAVE TO BE STOPPED!! I FEEL LIKE A GINNY PIG!! MY BACK IS THE WORSE-GOES INTO KNOTS-PAIN DOWN SPINE, SHOULDER BLADES ARE PAINFUL AND VERY SORE.

    LOVE,
    TINA
  7. Shirl

    Shirl New Member

    For Palmer...................Shalom, Shirl
  8. bejo

    bejo New Member

    Glad to have you on board but like the others sorry you have fibro.I get by on extra strength tylenol for the pain,but my pain isn't as bad as some of the others have.My worst is the fatigue and depression.I started out with headaches but they were caused by not being able to sleep.So with sleep meds I don't have a headache very often.Some Drs. won't work with you with the fibro.If yours doesn't,then you should find one who will.Sometimes with fibro you have to shop for a Dr. like shopping for a car.You'll find a lot of information here and great support.Here's some welcome ((((hugs)))) bejo
  9. lin21

    lin21 New Member

    Just want to hi and welcome you to the board. I just joined back in December after being diagnosed and I don't think I would have made it through somethings if I didn't find this place. All I can say is read...read and ask as many questions as you need to, these folks are wonderful and they give you much needed support!!

    Lin
  10. ozgran

    ozgran New Member

    Just wanted to add my welcome. I am a 65 yr old Gran diagnosed with FM a few mnths ago, but seeing a rheumy' tomorrow to see if he can help me more. You will find this board fantastic and giving lots of support. Love Ozgran