new here need help please

Discussion in 'Fibromyalgia Main Forum' started by Renate, Mar 16, 2003.

  1. Renate

    Renate New Member

    Hello everyone

    I am sure that i have Fibro but my doctor still resists. I have a few books and have done lots of research and I am sure that I have it. My cousin has it and I think it runs in my family on my mothers side (mom, aunts and my older sister) I just see the things that they have gone through... and it clicks.

    My regular blood work comes out fine. Is there special blood work that I need to get?

    I also have a question which might sound strange. I have read that fibro patients scar dark brown and it lasts for a long time. I have been getting this more and more over the last 6 years. My sisters says she has been getting this as well. Does anyone know if this is familiar with fibro? Does anyone else get this?

    This is so confusing. my doctor thinks I should go on antidepressants for a year, he says it will help me feel better. Is this commom for fibro patients?

    I don't know what to do anymore. I always feel sick. Have nose infections, quit smoking 2 and 1/2 years ago, have mild copd, over weight, have had many losses in my life over the last 12 years (20 people, mother father husband new father inlaw and old friend died, the rest were departing friendships and 2 brothers who have diowned me because of my dads wishes in his will) feel strees from this nagging feeling of not being well also.

    So sorry to unload. Just wanted to know if I'm going nuts.

    If anyone can help it would be greatly appreciated.

  2. mamie43

    mamie43 Member

    Hi Renate:

    I'll make this short because I have a migraine.
    Get your doctor to refer you to a rheumatologist. He or she would be the one to diagnose you if its fibro. If you doctor refuses, see another one or go to emerg with your ailments and the doctor there can refer you to a rheumatologist. Make sure you do the asking.

    Let me know what goes on,
    Marielle, mamie43
  3. Renate

    Renate New Member

    Thanks for your sugestions I will ask my doctor about a referal. Sorry about your migraine hope it get s better soon. I get them as well.

    Thanks again

  4. Frogdogger

    Frogdogger New Member

    Run, do not walk to another doctor. This illness has been recognized by the AMA for years. You should not have to convince your doctor. If he is unable to diagnose you, then he should be willing to refer you. I think the suggestion that you ask for a referral to a rhuemmie is good. What planet is this doc from? Traditional blood work does not diagnose fibro. I'm sick of idiot docs. The suggestion of an antidepressent is good, but probably not the reasoning behind his suggestion. Sounds like to me that he's just blowing you off. Depression and trouble sleeping are hallmarks of the disease. Certain antidepressants help you sleep as well as help with the depression. You can look up topics on the message boards and get feedback ex: antidepressants, etc. Hang in there, there are a lot of good people and suggestions on the website. I personally mentally commit some dr's to a long and hot hell for the emotional abuse they have inflicted on me re: wrong diagnosis, etc. A few years ago I went to a psychiatrist who was the best in the area. He tried me on a jillion different things, but when I suggest fibro he said that was "a wastebasket diagnosis" and kept telling me I had "atypical depression" which, of course, meant he didn't know what was wrong with me. Stay strong!
  5. Renate

    Renate New Member

    I have an appointment late this week and a complete physical at the end of the month and I will be asking for lots of referals and tests. He has checked me for tender spots. I don't have all most of them but seem to have alot of the other symptoms that appear to be fibro. I won't give up... I'll get to the specialist for sure. I do know that I have been under so much stress most of my life and I do understand that it has to come out some place.

    I have been thinking of going to a holistic doctor. Don't they try to get at the root of the cause instead instead of just treating the symptoms like traditional doctors?

    Personally I don't feel like becoming a guinney (spelling?) pig just to satisfy a doctor. Ussually my doctor is fairly good but I do think it's time he hand me over to a rhuemmie for some testing.

    Thanks again. I appreciate you input and will most certainly stick around!

  6. Renate

    Renate New Member

    I have been to a counselor 6 years ago and so much has happened since then. Thanks... I really think I will make that phone call for one. It helped me last time and I did not need medication. I do feel depressed often and have many symptoms. I guess I have a fear of going on anti depressants because my mother had been on Librium for 35 years and her wacky doctor took her off of them cold turkey. I think it helped to kill her! So I have been thinking of making sure that I get into a routine of walking, say 2 times 30 minutes each time per day. I love to dance and stretch so I think I will start this as well. Just light stuff I don't want to over do it to fast. I understand that exersice helps your mental health as well as physical. I'd really like to start with the exercise and a counselor first. What do you all think? Do you think it might work? Can mind over matter be that strong. I am a strong willed person and I do believe that our minds, body and spirit are all connected.

    I have been doing lots of research and I know knowledge and asking for help are powerful tools. Thank you for your suggestions. I appreciate them very much. I will try to be patient. Usually I am, I also used to always find the silver lining in every black cloud....just have to start rethinking what's important. Life is too short. Honestly I believe for the most part we have to be are own doctors since we are the ones who know just how we feel.

    lol now I'm blabbering lol. Thanks again. I'll be in touch with my new home :)

  7. Shirl

    Shirl New Member

    Hi Renate, welcome to the board. Well, I think our good people have given you some wonderful advice, so I will just welcome you, and hope you find some help soon.

    Those terrible loses you have experienced is causing you a lot of stress. I lost both my parents in a four month period, it was so devastating, that I simply fell apart.

    Then years later I lost my only young brother, and a wonderful young son in law within a 6 month peroid, I lost it again. I went into flares, sinus, no sleep, I though I would not make it, I lost so much weight I went down to 89 pounds.

    But I am still here, this board helped me through the last two losses without anyone knowing about them, I could not even talk about it for a long time.

    You will be alright, you just need a good doctor to understand what you are feeling, and someone to talk to, and I doubt if antidepressents are the answer.

    I don't take drugs, except for Xanax for racing brain syndrome, I got very good results from supplements.

    Again, welcome to the board. And I hope things work out well for you.

    Shalom, Shirl
  8. kmelodyg

    kmelodyg New Member

    Welcome to the board Renate! I have been coming here for about a week now, and it has helped me tremendously. I've been very disappointed that there are no support groups for Fibro in my city, but this is just as good if not better!! There are wonderful, loving, supportive people here. So please keep coming back! I do not take antidepressants except for Amitryptaline. I have tried Zoloft, Paxil, and Wellbutrin. I absolutly hated all of them. They made me very disorientated and actually more "crazy" and depressed feeling. But both of my sisters and my mother take Zoloft and they say that it helps them. Everyone is different. It is worth trying out to see if it may help you. I would definatly recommend seeing a counsler and keeping a journal. Talking and writing things down can help BIG TIME! And definately find a doctor who will listen to you and will be willing to work with your Fibro. I am having the same problem right now. We just have to stay persistant and fight to be taken care of! Because YOU ARE WORTH IT!!! My thoughts and prayers are with you. Please come back as often as you need. We will be here anytime 24/7!!

  9. Renate

    Renate New Member

    I can't believe the support here! I am so excited and relieved.

    Yes nink... I am trying real hard to pull this together. You'd think that maybe I would have learned by now that too much stress good and bad is harmful to us all when we are not able to regroup and refocus on a regular basis. I found the coolest thin that sparked something in me... I don't always buy the Opera Magazine but I did this month. There is a picture in there that clicked. Needless to say I ripped it out and have it posted so I can see it at lease 5 times a day. It's a picture of a large elephant on the beach, it's standing on a beach ball with only one leg. The story is about balancing your life. I just wanted to share that it's amazing what we can come across unexpectedly that may end up helping us out. :).

    Shirl... I'm sorry about all of your losses as well. So many… so close together. ((HUGS)) to you too! I can relate. You are right there is great advice here, advice that will bring me strength to do what I need to do for myself as well. I am also a giver and hope that I can be of some support to you all also! I am an extrovert and most of the time I am not shy about talking but I guess it just piles up too fast at times. I find I am at the point where just last week I was bawling to my husband that if I loose one more person in my life right now I can't even imagine what kind of state of mind I would be in. I feel that you are so right when you say that you doubt antidepressants are the answer in my case. Like you said a good doctor and some understanding will help I'm sure. I've seem to be able to pinpoint where some of the stress is coming from and I'm sure it's because I am still learning how to deal/cope with stress. At least in a different way since I quit smoking 2 and a half years ago. I said to hubby at about the 6 month mark when the smoking fog had lifted and all of a sudden I was looking at all of these deaths and grief's in a different manner. It was like I was going through it all again but without the numbing and hiding effects of the smokes. I am happy to say that it has been 4 straight days of 30 mins each session on the treadmill and it seems to be lifting my spirits, which I'm sure will help with my achy feeling. I have declared it my time and no one is allowed to cross into that space I am trying to create for myself. If I want to cry, I cry. Get mad ... I'll get mad. Meditate and envision that quiet place on earth then I will. I think it's about allowing myself this time and luxury, don't you think? Thanks for your support Shirl... it's much appreciated.


    Thanks for the welcome! I like this place already too! I fear going on the antidepressants as well because I don't want to feel disorientated and well actually more "crazy" too. lol (laugh out loud). My sister had tried Wellbutrin to quit smoking but it gave her the shakes really bad. I'm going to try real hard to go the natural way by getting my butt into gear, eating better and making sure that I pace myself along with getting more rest, fresh air and balance. This winter was hard on my lungs because of my mild COPD and extra cold air. So I was stuck inside longer then I wanted to be. I guess it was hard on everyone.
    I'm going to make that call to the counsellor next week. I feel that I need to boost myself up just to get out and make the trip. It's not easy talking about all the hurt and I find that I am much more drained after talking and crying about it. I'll make it though I'm sure. As for a journal, I have used one off and on since my first husband was sick with a brain tumour. It helped a great deal. After he died I had to start another one, there was just too much pain in the old one. Finally I had to get rid of it, it was part of my closure. Now I have 3 journals. I don't know why 3, maybe for happy, sad and kick my butt :).

    To share a little humour...which I fully believe has great healing power!
    I don't mind that kick in the butt, at least it's one step forward.

    Hope you all have a wonderful day and remember like the elephant I mentioned earlier...balance you life.

    Hugs to you all.... Renate