new here..

Discussion in 'Fibromyalgia Main Forum' started by fibrogoddess, Mar 16, 2007.

  1. fibrogoddess

    fibrogoddess New Member

    This is my first post here, so hi everyone! I was diagnosed with fibro 2 years ago. I was healthy until I had to have surgery 3 years ago. I had a herniated disc, C-4 C-5 and had an anterior cervical fusion. About 2-3 months after the surgery I stated having alot of problems that was attributed to the surgery and was told they would "go away". Im still waiting for that I finally got in to a GP who actually listened to me and he ran alot of tests, checked for MS, Lupus, RA, thyroid, etc. Eventually he said "probably" fibro. Thats as close as I have been to an official diagnosis. The past year has been extremely hard on me and daily it is getting worse. I work full time in a physically demanding job and and I dont know how much longer I can do it. I havent told my employer about my medical problems, partly because I havent been "officailly" diagnosed and partly because I really think I would be fired. Thats just the impression I get from what Ive heard and seen. Plus I am not eligible for FMLA yet. I am a single parent with just my income and cannot afford to lose my job or insurance. I am on no meds and until last year I was able to "grin and bear it". I cant afford a drs visit, even with my insurance. But I at the point where I NEED something NOW. Ive tried the er route and that was a joke, never again. I dont know which is worse, the pain or the fatigue. Many, many days I come home from work so exhausted that I cant even stay awake after I get home. I will fall asleep talking to my son! Other nights I cant sleep no matter what I do. I wake up feeling like Ive not sleep at all. So frustrating. Cant function without meds, but cant afford to get them either. I cant imagine spending the rest of my life like this. I did manage to get an appointment with a pain management specialist at the end of the month and I hoping she can help me, even though I am going to see her due to a pinched nerve in my neck which is causing my left arm all kinds of problems. I didnt mean to come here and complain, so if you got this far thanks for listening!! Ive been lurking for about a week now and decided this looked like a good place to be. Happy St Patricks Day!!
  2. HI , love your board name. I am glad you decided to join us here.
    I don't know how anyone can work with fibro pain. I also have a bad neck and it is giving me problems with pain, headaches and shoulder pain. Was the fusion painful and has it helped much?
  3. Shirl

    Shirl New Member

    Glad to have you join us, and hope you are feeling better soon. I can't understand how you are working with this pain, you are some courageous person.

    Happy St. Patrick's Day to you too...........

    Shalom, Shirl
  4. skikat

    skikat New Member

    goddess, i dont kow what state you reside in but i do kow that in my state, if you dont qualify through human services for medical help because of your job, that you can apply (also at human services) usually there anyway, for something that few people know about. it is called STATE MEDICAL AID FOR THE MEDICALLY NEEDY. it is for people that have outstanding medical needs and want to continue working , or else they draw a ss. check that is too large for them to get help through title 19 and do not qualify for anything else because they are drawing too much money, but not enough to take care of them nor thier meds. they just cant pay. they told my husband about this and said very few knew about this because there were only so much funds. give it a try. it cant hrt. good luck, ski
  5. natrlvr2

    natrlvr2 New Member

    This is a good place for info.
  6. kjfms

    kjfms Member

    Happy St. Patrick's Day to you too -- one of my favorite holidays.

    Welcome to the board -- I hope you enjoy it here.

    I also work (part time) but I am off at the moment recovering from surgery.

    I used to work full-time and hope to return [full-time] soon. I know how hard it is to work while in constant pain and I haven't any children.

    I can't imagine having this DD (Darn Disease), working full-time, and having a child to raise -- bless you heart. I bet you are worn out.

    I have FMS among other things.

    I am sorry you are having such a rough time and I hope you will find some answers soon.

    This is a very good site I have made some good friends here and hope you do too.

    This site has a great library if you like to do research.

    Please do not feel as though you are complaining -- I certainly empathize with what you are going through.

    I come to this forum to give and receive support. I feel a lot of people come here for the same reasons -- I am pretty sure they do :)

    As you can see I have a tendency to write a book -- sorry about that...LOL

    Take care and again welcome,

    Karen :)
  7. 139864

    139864 New Member

    I am so sorry for the situation that you are in at this moment in time, and there are no magic words that will make your situation any better ;( other than knowing that I ,and a lot of people on this board have been subjected to the same ordeal .
    I have not been on the site very long myself ,but I know you will find a lot of friends here that you will be able to relate to .
    Take good care of yourself
  8. tired2007

    tired2007 New Member

    Welcome. I just joined myself a couple of days ago. I am enjoying talking to people who have FM and being reminded that I am not alone. FM is a hard thing to have as most people either don't believe in it or think because we look OK that we are. I work about 60 hours a week. I teach computer at a public school full time and then my husband and I own a small retail store so I work there another 20 hours a week. There are some days when I just want to give up and give in. My mohter has Lupus and her kidneys and spine are effected quite a bit. Before I began with FM, I always used to tell her to slow down and take it easy. Her reply was "If I sit down, I won't get back up. You just have to keep pushing along." Now I know what she is talking about. I am afraid if I "give up," I will just spiral down hill. I have dealt with depression, anxiety attacks and FM for years now. Even though my body screams at me at times (like now when my arms are killing me from typing this little bit) I have to keep going. Is it easy??? Not at all. Hang in there. Keep searching for help and know that you are not alone. Bless your heart for taking care of a child on top of all of this. It takes a lot of mental and physical strength. I admire you for that! As far as your job goes, it is illegal for your employer to fire you due to your disability. Find a doctor to give you the diagnosis, tell your employer and remember that there is an Americans with Disabilities Act to protect you. I always hate to use the "trump card" of the disability, but in my mind, if we can keep working if our employers will accomadate us, then we should. That way, if we, or others, cannot keep working, maybe the rest of us can carry on for them (if this makes sense). Anyway, I hope you find the help you deserve and need. Remember you are not alone. Good luck to you.
  9. JessB

    JessB New Member

    I just started here too, it's helpful to know we are not alone. I can sympathize with your feeling like you have few choices. I don't work outside the home, but I have 4 kids, 3 of which I have home all day. So I know how it feels to bite your tongue and do what you have to do. I agree with ski, talk to your local Human Services people. It can be amazing what they have available that no one knows about.
    Just keep pushing through, I know sometimes it seems impossible, but you never know what will come tomorrow. New doors open up all the time, keep hope.
  10. mujuer

    mujuer New Member

    to the board. You have come to a great place. Please research as much as you can as dr.s don't tell you alot about what to expect with this terrible disorder. I have had to learn all on my own and this board saved me from alot of mental anguish. It is so hard just to be a single parent let alone to have fibro, work and have to raise children alone. Good luck with the pain specialist, I know others here have found alot of relief from their pain dr.s. Many hugs and prayers. P
  11. StephieBee

    StephieBee New Member

    Welcome to the board! I love the name!

    Ive been around here for and on when i can...having this stuff is hard. It sounds like you are fairly young?? Im 26...and ive had FM/CFS since I was 18 but I wasnt diagnosed until I was 20.

    I used to work a full time job but Im now on disability. I had a hard time with my employer like many of us have. I hope to get a part-time job when this huge flare calms down so I can have a little more income. Believe me...I know how you is hard to come by these days!

    Dont ever feel bad about coming here to let off some steam...thats what we are here for. I can only imagine how many times ive done it! This place keeps me sane. Just when I think that I cannot take it anymore I come on here and everyone somehow finds the way to make me feel just that much better and I get thru another day. And im sure youll find this place just as helpful as I have.