New Here

Discussion in 'Fibromyalgia Main Forum' started by witsend, Oct 3, 2002.

  1. witsend

    witsend New Member

    Hi!
    I'm new here and have posted a couple of replies so far. I've been sick for ...gosh... maybe 13 years. My troubles started oddly. Woke up one morning and couldn't bare weight on one leg...lame as an old horse. Eventually seen by neurologist who said he could find nothing wrong and treated me with intensive naprosyn- cleared up in about 2 months. 6 months later woke up one morning with spreading hot red rash over my skull area and down my back only on the spinal cord area. Several cortisone shots later I had recovered with residual hives on wrist unless I took benadryl. 2 years later exhausted, unable to sleep, swollen lymph glands,light sensitivity, headaches, visual disturbances(floaters), super painful shin bones, and tender points of fibromyalgia starting to show up. From there it has been a slow downhill slide.... many doctors, joint pain and swelling, muscle pains and spasms,... a host of inflammatory conditions such as nasal congestion with out cold or alergy, arthrytis, IBD symptoms, weird circular rashes that come and go.... and of course the unrelenting exhaustion. Although for about 5 years I took heavy doses of Motrin around the clock which enabled me to work part time and exercise. But then about 1 1/2 years ago could no longer tolerate the motrin and the slide has excelerated. No longer able to work, shop, cook, walk very far, still do a little laundry( I have a chair and TV right by the laundry room). All this really sucks! And I am at my wits end.
    I have an appointment to see a rhuematologist again. The first two weren't much help but I have had the support of a good FP doc who has kept me as comfortable as possible, with low dose doxepin, motrin as long as tolerated, replaced with cataflam, and darvocet. Unsuccesfully tried both Cox 2 meds ... didn't do a thing
    But I had a positive lyme test and he wants another opinion as to whether I really have lyme disease or could it be a false positive for joint inflamation. And he thinks I am a candidate for treatment with a pain specialist and some big gun pain meds, he mentioned oxycontin. But first the rheumy and then the pain consult. Anything to get some quality of life back at 48.
    Any one have any experience with positive lyme test results or taking oxycontin? Would really appreciate any feedback.

    witsend
  2. witsend

    witsend New Member

    Hi!
    I'm new here and have posted a couple of replies so far. I've been sick for ...gosh... maybe 13 years. My troubles started oddly. Woke up one morning and couldn't bare weight on one leg...lame as an old horse. Eventually seen by neurologist who said he could find nothing wrong and treated me with intensive naprosyn- cleared up in about 2 months. 6 months later woke up one morning with spreading hot red rash over my skull area and down my back only on the spinal cord area. Several cortisone shots later I had recovered with residual hives on wrist unless I took benadryl. 2 years later exhausted, unable to sleep, swollen lymph glands,light sensitivity, headaches, visual disturbances(floaters), super painful shin bones, and tender points of fibromyalgia starting to show up. From there it has been a slow downhill slide.... many doctors, joint pain and swelling, muscle pains and spasms,... a host of inflammatory conditions such as nasal congestion with out cold or alergy, arthrytis, IBD symptoms, weird circular rashes that come and go.... and of course the unrelenting exhaustion. Although for about 5 years I took heavy doses of Motrin around the clock which enabled me to work part time and exercise. But then about 1 1/2 years ago could no longer tolerate the motrin and the slide has excelerated. No longer able to work, shop, cook, walk very far, still do a little laundry( I have a chair and TV right by the laundry room). All this really sucks! And I am at my wits end.
    I have an appointment to see a rhuematologist again. The first two weren't much help but I have had the support of a good FP doc who has kept me as comfortable as possible, with low dose doxepin, motrin as long as tolerated, replaced with cataflam, and darvocet. Unsuccesfully tried both Cox 2 meds ... didn't do a thing
    But I had a positive lyme test and he wants another opinion as to whether I really have lyme disease or could it be a false positive for joint inflamation. And he thinks I am a candidate for treatment with a pain specialist and some big gun pain meds, he mentioned oxycontin. But first the rheumy and then the pain consult. Anything to get some quality of life back at 48.
    Any one have any experience with positive lyme test results or taking oxycontin? Would really appreciate any feedback.

    witsend
  3. JP

    JP New Member

    Dear Witsend,

    I am unable to address your questions at the end of your post. However, I can say that pain control for chronic back pain has given me increased quality of life. I know of a few individuals that take oxycontin. They report that it helps with the pain and does not eliminate it. It is long acting pain medication as you may know. I do not have a single memory of being pain free. I do okay with taking the edge off. Vicodin helps me. I have had other pain meds that are better/stronger and I am careful not to increase the strength, for assorted reasons.

    Welcome and hang in there...
    Jan