New Jersey Doctors/Support Groups??

Discussion in 'Fibromyalgia Main Forum' started by cczub, Jul 31, 2006.

  1. cczub

    cczub New Member

    I've been looking through the archive and found some info but not much current. I looked up Dr. Podell and he's not in my insurance..:( I live in Union county and am looking for a doctor that takes FM as a real disease. I haven't been to any doctors since January. My PCP was dragging his feet and didn't know much about it and the Rhummy I was seeing, who says he treats people with FM put me on prednisone which did squat..

    Any recommendations would be great. I have BCBS for insurance and don't have the money to go out of network. Also, does anyone go to support groups here in NJ? The only local one I found was is Iselin and I'm waiting for a call back from them. I am hoping if that works out I get get some leads there too...

    I've been fine working my 40 hour a week job but the past month has hurt pretty bad.

    Any help would be great.

    Thanks... Chris
    [This Message was Edited on 08/01/2006]
  2. joanng

    joanng New Member

    Hi Chris, I go to a dr in Clark NJ (Ashendorf). He has no bedside manner. He is moody (didn't start out this way)but does believe fibro is real. He doesn't have any problem dispensing pain meds but is useless when you're in the midst of a flair (left me hanging last week). He is the one that recommended yoga and ti-chi (sp?) classes which have helped me a lot. I never know what mood he's going to be in. He is the 3rd dr I've been to in 5 years. The first was impossible to get an appt with but believed fibro was real too (Colao in Jersey City). How can you treat fibro patients and make them wait 5 weeks for an appt. He was ok with meds too but didn't recommend anything outside meds except to have a glass of wine at night to relax, Omega-3 Fish Oil and Evening Primrose. Otherwise, that was it. The dr in Clark is usually available quickly. The other dr was my neurologist and she recommended I seek a pain specialist that's why I left her. I realized that my disease is my disease and these dr's are only part of the solution. If you need medicine for it, that's they're job but I've learned that the real experts are on this board and yourself. Do your research and find out what works and helps you in addition to the doctor. I know anti-depressants don't work for me, I know valuim, works better than the muscle relaxer except at night, the muscle relaxer helps me sleep better, I know I have candida and I'm trying to conquer that now and I know one of the meds that the dr prescribed was actually bad for my liver and I was having a bad reaction that the dr missed so I stopped taking it. Now I know Mr. Cranky-pants is going to have a fit when I tell him I stopped using it but it's my health and my body. I stopped thinking that dr's were "God-like" a long time ago. I don't know everything but I know how I feel and what works and what doesn't. I have friends who go to other doctors in Hudson County. I could get their names for you and you can give them a call to see if they take your insurance. Good luck!
  3. cczub

    cczub New Member

    Thanks Joann.. I looked up your doctor and he's not in my plan... Go figure... So far any doctor that has been recommended hasn't been in my plan... My PCP is a nice guy but doesn't know much about FM.. He's the one who mentioned it though so he at least knew about it. We had done a TON of bloodwork, ultrascans, CAT scans and x-rays.

    When I went to the Rhummy who I had seen for pericarditis(he pushed 6 months of pills on me and said see you in 6 months)he didn't do much except wanting me to go for a lower back x-ray. WHen I went to my PCP the next week, he said, "you don't need that x-ray cause if "x" was what he was looking for your sed rate would have been high not a 1.. I told the rhummy this and was mad I didn't get the xray.. He put me on prednisone for the muscle aches and joint pain. I stopped that after 1 week as it killed my stomach and I got sick from it.

    When I went back 1 month later, he asked how I was feeling on the prednisone and I said I stopped taking it because of the side effects. I left his office that day with NO scripts and was told to see him in a month...

    That was January 3rd... I haven't seen a doctor since.. I have NO faith in them at all. However, I'm getting to the point I need help.
  4. joanng

    joanng New Member

    Try John T Dedousis. He's in Bayonne but a close friend of mine goes to him and he treats her fibro. I'll ask around for more names.
  5. cczub

    cczub New Member

    Has anyone tried any of the doctors from the referal on this site? There is one here in NJ that is actuall in my plan... Sanders Davis is the one that is in my plan..
  6. cczub

    cczub New Member

    bump... Looking for more input! Thanks
  7. cczub

    cczub New Member

    busy place today!
  8. dleaning

    dleaning New Member

    bump...I am also in NJ but in Warren County. I see a Rhuematologist in Morris County.
  9. dragon06

    dragon06 New Member

    I am in New Jersey as well, Burlington County. The doctor I go to is in Philly. She is not a pain doctor and does not specialize in FM, she is a GP, but she believes in FM and is very good at working with me on things.

    I don't know of any support groups around here, I mostly just come here, as I don't get out much anyways.

    I am pretty good at chatting and emailing though if you were looking for someone in NJ to connect with.
  10. AquariusGirl

    AquariusGirl New Member

    I live in Camden County (South Jersey). They are great. Wish I could say I've seen more improvement--but realizing it is a process. The Magaziner Center for Wellness is in Marlton, NJ and they are good--same thing--didn't get much relief but they help tons of people. They don't take insurance.