New kind of Breast Cancer

Discussion in 'Fibromyalgia Main Forum' started by darude, Dec 23, 2005.

  1. darude

    darude New Member

    New kind of Breast Cancer - DO NOT DELETE
    Please forward to all of the women in your lives -- Mothers,
    daughters, sisters, aunts, friends, etc.

    In November, a rare kind of breast cancer was found. A lady
    developed a rash on her breast, similar to that of young mothers who are
    Because her mammogram had been clear, the doctor treated her with
    antibiotics for infections. After 2 rounds, it continued to get worse, so
    her doctor sent her for another mammogram. This time it showed a mass.<

    A biopsy found a fast growing malignancy. Chemo was started in
    order to shrink the growth; then a mastectomy was performed; then a full
    round of Chemo; then radiation. After about 9 months of intense treatment,
    she was given a clean bill of health.

    She had one year of living each day to its fullest! Then the cancer
    returned to the liver area. She took 4 treatments and decided that she
    wanted quality of life, not the after effects of Chemo. She had 5 great
    months and she planned each detail of the final days. After a few days of
    needing morphine, she died. She left this message to be delivered to wo men

    Women, PLEASE be alert to anything that is not normal, and be
    persistent in getting help as soon as possible.

    Paget's Disease: This is a rare form of breast cancer, and is on
    the outside of the breast, on the nipple and aureole. It appeared as a rash,
    which later became a lesion with a crusty outer edge. I would not have ever
    suspected it to be breast cancer but it was. My nipple never seemed any
    different to me, but the rash bothered me, so I went to the doctor for that.
    Sometimes, it itched and was sore, but other than that it didn't bother me.
    It was just ugly and a nuisance, and could not be cleared up with all the
    creams prescribed by my doctor and dermatologist for the dermatitis on my
    eyes just prior to this outbreak.

    They seemed a little concerned but did not warn me it could be
    cancerous. Now, I suspect not many women out there know a lesion or rash on
    the nipple or aureole can be breast cancer. Mine started out as a single red
    pimple on the aureole.

    One of the biggest problems with Paget's disease of the nipple is
    that the symptoms appear to be harmless. It is frequently thought to be a
    skin inflammation or infection, leading to unfortunate delays in detection
    and care. What are the symptoms?

    1. A persistent redness, oozing, and crusting of your nipple
    causing it to itch and burn. (As I state d, mine did not itch or burn much,
    and had no oozing I was aware of, but it did have a crust along the outer
    edge on one side.)

    2. A sore on your nipple that will not heal. (Mine was on the
    aureole area with a whitish thick looking area in center of nipple).

    3. Usually only one nipple is effected. How is it diagnosed? Your
    doctor will do a physical exam and should suggest having a mammogram of both
    breasts, done immediately. Even though the redness, oozing and crusting
    closely resemble dermatitis (inflammation of the skin), your doctor should
    suspect cancer if the sore is only on one breast. Your doctor should order a
    biopsy of your sore to confirm what is going on.

    This message should be taken seriously and passed on to as many of
    your relatives and friends as possible; it could save someone's life.

    My breast cancer has spread and metastasized to my bones afte r
    receiving mega doses of chemotherapy, 28 treatments of radiation and taking
    Tamaxofin. If this had been diagnosed as breast cancer in the beginning,
    perhaps it would not have spread...

    This is sad as women are not aware of Paget's disease. If, by
    passing this around on the e-mail, we can make others aware of it and its
    potential danger, we are helping women everywhere.

    Please, if you can, take a moment! to forward this message to as
    many people as possible, especially to your family and friends. It only
    takes a moment, yet the resul ts could save a life

  2. grandmasheri

    grandmasheri New Member

    Thanks for the info It will be passed on.
    Merry Christmas...May God bless you and yours

  3. darude

    darude New Member

    I haven't heard of this before and looked it up to there are a lot of symptoms.
  4. hopeful4

    hopeful4 New Member

    Thank you, darude, for this important post! I am a 2.5 yr. breast cancer survivor, and was not aware of this. I will forward it to friends and family.

    I'd like to add a reminder to all, please get your mammograms regularly. They do save lives. They saved mine. I had no palpable lump. My cancer was at the back of my breast close to the chest wall. Cancer was suspected when the mammogram showed a specific pattern of microcalcifications, which show up as very small, white dots in a particular pattern.

    In addition to this info about Paget's disease, many people are not aware of Inflammatory Breast Cancer. It is a very aggressive cancer, with rash-like symptoms.

    From ibc dot org(Inflammatory Breast Cancer)and breast cancer dot org:

    There is more than one kind of breast cancer:

    We have been taught and are reminded frequently by public service announcements and by the medical community that when a woman discovers a lump on her breast she should go to the doctor immediately.

    Inflammatory breast cancer usually grows in nests or sheets, rather than as a confined, solid tumor and therefore can be diffuse throughout the breast with no palpable mass. The cancer cells clog the lymphatic system just below the skin. Lymph node involvement is assumed. Increased breast density compared to prior mammograms should be considered suspicious.

    You Don't Have to Have a Lump to Have Breast Cancer:

    Some women who have inflammatory breast cancer may remain undiagnosed for long periods, even while seeing their doctor to learn the cause of her symptoms. The symptoms are similar to mastitis, a breast infection and some doctors, not recognizing IBC, will prescribe antibiotics. If a response to antibiotics is not apparent after a week, a biopsy should be performed or a referral to a breast specialist is warranted.

    Inflammatory breast cancer is a very uncommon but very serious, aggressive type of breast cancer that is considered stage IIIB. The most distinguishing feature of inflammatory breast cancer is redness involving part or all of the breast. The redness feels warm. You may see puffiness of the breast's skin that looks like the peel of a navel orange ("peau d'orange"), or even ridges, welts, or hives. And part or all of the breast may be enlarged and hard. Inflammatory breast cancer is sometimes misdiagnosed as a simple infection.

    Age 52: Median age at time of diagnosis of IBC...
    A surprising portion of young women with IBC had their first symptoms during pregnancy or lactation. The misconception that these young women are at lower risk for breast cancer and the fact that IBC is the most aggressive form of breast cancer may result in metastases when the diagnosis is made.

    ... versus, Age 62: Median age at time of diagnosis of Breast Cancer

    One or more of the following are Typical Symptoms of IBC:

    Swelling, usually sudden, sometimes a cup size in a few days


    Pink, red, or dark colored area (called erythema) sometimes with texture similar to the skin of an orange (called peau d'orange)

    Ridges and thickened areas of the skin

    What appears to be a bruise that does not go away

    Nipple retraction

    Nipple discharge, may or may not be bloody

    Breast is warm to the touch

    Breast pain (from a constant ache to stabbing pains)

    Change in color and texture of the aureole

    Strange things doctors have told IBC patients about their symptoms prior to their diagnosis with IBC
    The doctor said that if it was breast cancer he would be able to find a lump and not just inflammation and swollen nodes, with a discharge and calcifications in the breast tissue due to caffeine (which she doesn't drink)

    The doctor said she had spider bites when she developed skin metastasis following treatment for regular breast cancer.

    After her mammogram the radiologist told her to stop wearing under wire bras.

    She was told to change bras and detergent to get rid of the rash.

    She was told that her blue colored bruise was a fatty necrosis and no way was it cancer.

    At age 20 she was told the lump she felt was "rib cartilage" and not to worry as she was too young to have breast cancer. She wasn't properly diagnosed until 2 years and 3 exams later. She died of IBC at age 25.

    She was told she had regular breast cancer instead of IBC. The doctor said he had seen plenty of IBC cases and she didn't have it. (She did. The clinical presentation of inflammatory breast cancer may vary from patient to patient.)

    She had inflammation with intense itching on one breast which appeared and disappeared 4 times. The first time it was diagnosed as spider bites., the second time as an allergic reaction to food or detergent, and irritation from cyst fluid from fibrocystic breast the 3rd time. The 4th time, she was diagnosed with inflammatory breast cancer.

    Her IBC was first diagnosed as shingles.

    Finally, although this woman had not been diagnosed with IBC when she wrote this, it doesn't change the fact that her doctor's explanation of how IBC starts is erroneous. She was told she didn't need a biopsy because IBC "starts with a lump which then disperses and she couldn't have IBC because the lump would have shown up on one of her previous mammograms."


    [This Message was Edited on 12/24/2005]
  5. dononagin

    dononagin New Member

    I'm having spot compressions done at 3 month intervals to watch a suspicious abnormal density.. so this is of great interest to me..
  6. 1sweetie

    1sweetie New Member

    I am a breast cancer survivor. I had my first round of breast cancer in l996 at age 42. The second round was in 1997 and was a new breast cancer(a different type)not a reoccurance. At that point I had a double mastectomy with tram flap and implants.

    My mother and grandmother had breast cancer. At the present time my mother is battling this cancer for the third time.
    Because of being so involved with breast cancer, I am familar with the different types of cancer and Paget's disease was known and in all the books that I have bought when I had cancer in 1996. Women do need to be made aware of it though because as you stated it is not the "norm" and until I had the cancer I had never heard of it either.
  7. MamaR

    MamaR New Member

    My mom had breast cancer. I will pass it on!