New labs - still considered CFS? or does it look like Lupus????

Discussion in 'Fibromyalgia Main Forum' started by pamj, Jan 23, 2006.

  1. pamj

    pamj New Member

    I had some more tests by the rheumy, but I don't see him for another 2 weeks.

    Here's labs done last week:
    Positive ANA - 1:640
    High SED rate - 27
    High CRP - 1.33
    Low Albumin - 3.2

    I've been diagnosed with CFS for 4 years now, but I'm going through another re-evaluation the past couple of months. I want to make sure we're not missing anything that could make my health worse in the future. Also want to see if I need to change any of my treatment.

    People here have been through so many of these tests, I'd like to hear if anyone has any input.

    Thanks so much,
    Pam

  2. alaska3355

    alaska3355 New Member

    I'll bump this for ya!
  3. greatgran

    greatgran Member

    Sounds like I could have written this post myself..In fact I posted one last week about my labs and having to see a new rheumy to rule our lupus..

    I have had the abnormal labs from the beginning of my cfs, in fact at first they thought lupus but the rheumy said not..

    My visit to my doc about 2 weeks ago my labs were still up..ANA 1:640, C-reactive protein 22.5 and other abnormal ones..This time he noticed my rash that comes and goes but I told him the rash had been with me for years, way before the cfs.

    Back to your question,I have had these same abnormal labs from day one which has been 5 years and so far no lupus..One of the doctors said with labs like this it is definite an autoimmune disease and he believes that cfs could very well be one..

    I am anxious to hear what your rheumy has to say please let me know..It may be months before I get to see a new one..

    God bless,
    greatgran
  4. pamj

    pamj New Member

    I'll definitely keep you updated, it does sound like we're dealing with the same questions right now.

    The other part of this that bugs me is my disabiity coverage. My insurance company feels that my my illness is completely "self-reported", but if these tests are showing signs of an autoimmune illness (whether or not it could be Lupus), then isn't that medical proof that something is going on?

    And if all these tests are signs for autoimmune disease, then how can there still be so many people who don't think CFS is real???

    OK, obviously I'm feeling a bit frustrated. Thanks for letting me vent :)

    I just don't want another 10 years or so to go by, and then find out that I have liver or kidney disease or something else serious... and realize that it could have been prevented with proper diagnosis & treatment. It's scary when we know something is wrong with our body, but we don't know exactly what it is.

    I'd still like to hear any input from others.

    take care,
    Pam
  5. pamj

    pamj New Member

    MCD... I really appreciate your detailed input. I just checked your profile & saw that you were a hematology specialist... I was wondering how you were able to explain it so clearly!

    I'll definitely keep you updated on what the doc says, including any other testing. I guess I'll have to continue to be patient. We may never find a definitive answer to this illness.

    Thanks so much for your support!

    take care,
    Pam