New ME and CFS Advocacy Website is launched

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by caledonia, Mar 17, 2014.

  1. caledonia

    caledonia Member

    Hi folks,

    I'm a long time ME/CFS patient. It's been awhile since I've been on this forum, but I wanted you all to know about this new website for advocacy. I invite you to check it, out and if you like what you see, join:

    If you ever wished that ME and CFS patients had a place or organization where they could speak in a united way about advocacy issues such as the egregious actions of the Department of Health and Human Services, adopting the Canadian Consensus Criteria case definition, or the lack of biomedical funding - this is it.

    The purpose of this site is to promote and support the advocacy efforts of M.E. expert researchers, clinicians and patient advocates. This can mean anything from sharing and spreading information with patients, the general public, the press and our Congressional representatives, to protesting in various ways, either online or in real life.

    Your source for advocacy information and actions for ME and CFS - http://meadvocacy.org - a project of May12.org. Join today.
  2. caledonia

    caledonia Member

    I'm also asking people to start sharing the site on message boards, social media, in your signature, etc.

    Here are some ideas for what to say:

    Twitter

    http://meadvocacy.org - Your source for advocacy information and actions for ME and CFS #mecfs #cfs #myalgic

    Facebook, email, messageboards (longer version)
    If you ever wished that ME and CFS patients had a place or organization where they could speak in a united way about advocacy issues such as the egregious actions of the Department of Health and Human Services, adopting the Canadian Consensus Criteria case definition, or the lack of biomedical funding - this is it.

    The purpose of this site is to promote and support the advocacy efforts of M.E. expert researchers, clinicians and patient advocates. This can mean anything from sharing and spreading information with patients, the general public, the press and our Congressional representatives, to protesting in various ways, either online or in real life.

    Your source for advocacy information and actions for ME and CFS - http://meadvocacy.org - a project of May12.org. Join today.

    Facebook, email, messageboards (shorter version)

    If you ever wished that ME and CFS patients had a place or organization where they could speak in a united way about advocacy issues- this is it.

    Through this site we will be able to share and spread information with patients, the general public, the press and our Congressional representatives, and also protest in various ways, either online or in real life.

    Your source for advocacy information and actions for ME and CFS - http://meadvocacy.org - a project of May12.org. Join today.

    Signature line on messageboards (longer)

    Your source for advocacy information and actions for ME and CFS - http://meadvocacy.org - a project of May12.org. Join today.

    Signature line on messageboards (shorter)

    Your source for advocacy information and actions for ME and CFS - http://meadvocacy.org