New member, new diagnosis

Discussion in 'Fibromyalgia Main Forum' started by twinmomplus2, Jul 29, 2006.

  1. twinmomplus2

    twinmomplus2 New Member

    HI, I am Kelly, from Chicago, Il suburbs. Glad to find this site. My history- I am 29 years old, mom of 4 kids. Always feel tired, achy... I have Hashimoto's disease, treated for 5 years. Have been suffering with pain everywhere for years now, and the docs have always left me with a DX of depression, saying that I am a young busy mom so I must be depressed, and feel that as physical pain. My thoughts are that I am maybe a bit depressed from years of feeling constant pain. Over the years I have had short stints on antidepressants to make the docs happy... like Effexor, even Elavil and Xanax to sleep. They thought I might be bipolar, so they put me on Zyprexa- I took that 2 days, it just wasn't right for me, I am just not depressed like that. I have trouble sleeping at night from pressure points. I have pressure points in both knees, hips, shoulders, neck,wrists, ankles, elbows (worst), and my ears (believe it or not). I have NO heat or cold tolerance. Tired all the time.
    Went back to the doc, another new on this time. and she mentioned that it might be Fibro. I had never considered it before. I have had every other test done. EVERYTHING! There is nothing on paper wrong with me, but I am not making it up. I cannot play with my kids, for fear they will jump on me or bump me and it will hurt. I seem to just be over sensitive to everything.
    Doc did another CBC, and pending that result as negative for whatever, wants to start me on Mirapex. Nothing else. She said she has had unbelievable success with it. I am nervous about it because 1, she is just a family doc, not a specialist, and 2, I hate taking any meds, I even delivered my twins (breech) with no drugs because I don't want to put anything in my system, and finally 3, this is a drug for Parkinson's- scrary to give it for fibro.

    Ok, so I would love any comments or suggestions. I really have no one in my life to offer their support, have never had a babysitter in 11 years, my husband is no support, and family is screwy. I have no one to talk to, so others going through this may be able to help me decide if I should try the Mirapex.

    Thank you so much anyone who reads my post.
    Kelly
  2. jake123

    jake123 New Member

    You have come to the right place. I read about people who use Mirapex on this board. You might be able to pull those posts up by typing in Mirapex in the Search spot above. I have not taken it. None of my doctors have tried to cure me. Latest diagnosis is complex reflex sympathetic dystrophy which has as much to do with my brain as my muscles.
    I understand the pain though. Today I felt like I had a body suit of pain on. Just a burning pain everywhere and even a dull continuous headache. Does this sound like you?
    You might want to repost your message with Miraplx as your title then you would be giving those Mirapex people a signal.

  3. rockgor

    rockgor Well-Known Member

    Lots of nice people here w/ info, suggestions, experiences to share.

    Good luck.
  4. twinmomplus2

    twinmomplus2 New Member

    Thank you for our response, I did discover how to search Mirapex and really cam out about the same, I guess what works for one person may not work for another.

    The point about not doing exercises that flex and release muscles is so true... I remember once 12 years ago, I went to an exercise class. We had to flex every muscle in our body, then release them one by one to relax. My left leg never relaxed after that day, after 12 years, I still feel that flex- the tension. It drives me nuts at night when I think about it.
    Thanks again.
  5. blessedmom2four

    blessedmom2four New Member

    i am kinda new here, been gone for days though..
    just wanted to say hi. i am 28 mom to four.really tired today sorry i am not very exciting right now
  6. alaska3355

    alaska3355 New Member

    I'm another twinmom! Plus 3...
    I have taken Mirapex for 6 years now, just for RLS. It has been a godsend for me....without it, I couldn't sleep at all. I'd be up and walking around the house. I don't have fibro but I've heard of others taking it. It is at a much lower dose than they give you for Parkinson's.
    Do you have a church you could go to? I think they could be a support network for you...you need a babysitter once in a while . I know I do! Love, Terri
  7. eeyoreblue02

    eeyoreblue02 Member

    Welcome to the board. Many of us use natural supplements to control our symptoms. For pain I take a combination of calcium, magnesium and Vitamin D every morning and every night.

    Many of us also have a systemic yeast infection that we are battling. It is hard to get relief from your other symptoms until you can get the yeast under control. For that we take garlic and probiotics.

    Read back through some old posts. STormyskye is filled with wonderful information that she shares with all of us.

    If possible, find a great doctor. That is your first line of defense. My doctor believes in fibro, she believes in natural healing and she beliees in me. (I mean me, Linda, not ME the disease.)

    My doctor is an integrative medicine doctor who practices conventional medicine along with holistic medicine. I would love for everyone on this board to find someone as wonderful as my doctor.

    You're going to love the board. You'll make new friends here.

    Linda
  8. CockatooMom

    CockatooMom New Member

    Glad you found us too!

    Hugs,
    "E"
  9. FMsolider

    FMsolider New Member

    Hey Kelly. I am in Chicago too. NW side. My doctor wants me on Mirapex too. I haven't made a descion. Who is your doctor? What hospital is in your network?
  10. sisland

    sisland New Member

    So glad your here!!
  11. twinmomplus2

    twinmomplus2 New Member

    Thank you all so much for your kind words. I love that this board is filled with ideas, both medicinal and natural. I did take the calcium and magnesium for a long time, and it helped with my PMS, and joint pains, but it affected the absorption of my thyroid hormones so my TSH went way up and I couldn't even get up.

    I don't know anyone to watch my kids. My family is close (sister just 2 miles down the road), but they never offer help. I was raised in a very hostile environment, had my first child at 18 years old, and I have never trusted anyone with my kids. My days are like this: Monday, Tuesday, Wednesday, I work 9 hours at a pharmacy... come home at 4pm and my husband goes to work, so I have the kids. Then I am home with the kids for the next 4 days while he works... by Sunday, I am so exhausted, I cannot wait for the peace of my job again. It is low stress job. I do love being with my kids, they are so great! But my body and my mind are not in synch. They can physically exhaust me in just a couple hours. Today is a really bad day. I finally made them all go down to the play room and watch a movie because I cannot handle all the noise.

    I see doctor Jean Walsh,(woodridge) who has a wonderful PA in her office named Anna, who takes a lot of time with you even at last minute visits. She really listens. They are in Woodridge, and I believe they are with Edward Hospital, but may be CDH. I am open to any suggestions for docs in the Chicago area, though.

    Has anyone else tried a vegetarian diet to reduce pain? I started around 10 years ago, with a few slips at family parties over the first couple years. I found that red meat, poultry, even pork was very hard on me and made me feel 10 times worse.

    Well thank you again. I have to say, it is nice to read these posts and not feel alone and crazy.
    Kelly
  12. NyroFan

    NyroFan New Member

    Kelly:

    My doctor circles 'fibromyalgia' on the form I take out to the receptionist. Yes, it is on there. If more people saw their ICD numbers it would certainly 'legitamize' the disease.

    I also asked him to list my problems on a Rx pad which he gave me, just in case another doctor did not believe.

    It is nice to show it to the family when they doubt you have Fibromyagia, which is a disease charactered of having
    widespread pain just about 24/7.

    Nyrofan
  13. StephieBee

    StephieBee New Member

    First, welcome to the board. This board is great for support and advice.

    Secondly, I wanted to share with you my experience with Mirapex. I started it about a month ago. It has worked wonders on my RLS. I used to take Elavil for it but it lost its effect. The Mirapex has been a godsend and has worked wonders on me. Reports say that it may become one of first drugs to be approved for FM alone. I would give it a try. Like others mentioned, you may want to search it for other posts. I have personally not seen any mention of any kind of negativity with Mirapex.

    Take Care,
    Stephanie