new naturopath: should I take a chance? dad and I at ods

Discussion in 'Fibromyalgia Main Forum' started by Shannonsparkles, May 18, 2006.

  1. Shannonsparkles

    Shannonsparkles New Member

    Dad's found a new naturopath for me. Every time he finds me someone new, his eyes get a little-boy light in them. Makes me want to give him a shake.

    I haven't gotten to ask him more about this person because he's been working such long hours, so I don't know anything about it except... that he's expensive, that he will do something different with me, that I don't do well with most treatments of any kind, and that I have a good rolicking case of combat fatigue when it comes to doctors in general.

    Should I gamble? For some reason, he's not got a website, so I can't do my own research about him. Dad gave me a stack of testimonials to read, but testimonials are just bunk. I mean, andybody can say anything about anything, and how do I know they're not paid to write something or that these people ever really existed to begin with? They are paid advertisements snipped from a religious magazine. If they were articles in a medical journal or scientific papers, that would be different. Poor dad looked at me with puppy eyes and said innocently, "But didn't you read about all those people he helped?" I couldn't tell him it might be make-believe.

    I'm trying to make up my mind whether I want to try the new guy. I don't have enough information to decide. And once you make a commitment to this sort of thing, there's a lot of pressure to really get going on it and do what the doctor says and make all the money poured into it worthwile. Dad shrugs to my money concerns, "Nobody holds on to money anymore." But I like to make sure his money goes where it will count.

    I'm just thinking out loud. I don't like to air out my worries, but these are such stressful and uncertain times. As always, I wish they could seal me up in a plastic tube until a cure is found. Instead, they seal me in a test tube, and keep adding things to the mix and giving it a shake.

    How important should a person's body be to them? How important is is to feel respected and treated with dignity? This battle with illness is so close to home that it's impossible to feel neutral or purely scientific about it. It's my BODY. It's ME.

    I need to talk to my dad about a lot of things. He's been home late every night this week, so I haven't gotten a chance to talk to him. I wrote out a set of rules that should help with future medical stuff if he'll agree to it. Things like, if the doctor and I don't agree on a a diagnoses, believe ME, because I'm the one living in this. And also, I get to choose the doctors and decide on treatments. Things like that. Things that are so natural and fundimental that we should do them automatically without thinking. But the dance is just beginning, and already I feel my toes are being stepped on. Time to make clear the rules.
    Thanks for listening. :)
    ((dandilion lover)) Shannon
  2. carebelle

    carebelle New Member

    With these DD we always need to take a chance cause that's all we have ,is maybe a chance.That someone will be able to really help us.I think your Dad is wonderful for understanding your needs and willing to search for help .
    Don't miss a chance to get, if nothing else ,knowledge from someone that is as educated in these DD as much as anyone can be.
    I understand its your body and how uncomfortable things can be ,but my experience is the DD is it is worse then anything I have delt with in 53 years of my life.Beleave me I have had surgery's, a mental breakdown,where the pain was unbearable and degrading more embarrassing then you can imange.
    So I know you don't know me ,nor I you ,But we both know this DD and I am telling you it only gets worse the older you get.Start while you can and don't loose a second .If you have support from your Dad get on the path that may bring you good health.Good Luck and let us know how you are doing.
    Also you might still Google the Dr.'s name there may still be information about him on the web.
  3. ANNXYZ

    ANNXYZ New Member

    Please pardon me if I am being intrusive , but I strongly suggest you get a lyme test from Igenex Labs .
    There are soooooo Many of us here who have been misdiagnosed . Lyme is much more a possibility than one can imagine .

    If your lyme test has at least two positive bands , then I would consider lyme as a big factor in your illness , and look for a doc savvy in treating lyme . I wish someone had told me this years ago . The lyme tests that have been given in the past are useless , so an accurate test is a must .

    I wish you success & SOON!!!!
  4. windblade

    windblade Active Member

    It sounds like the needle in the haystack. I would stick to known, proven CFS specialists.

    And as annxyz wisely suggested - try that majorly important lyme test. That's a great way to spend your money because it would confirm or rule out one crucial thing.

    I would go for the nurse - so you could pick more dandelions, save your strength for your body to heal, and have someone to cook your specialized foods. It might be a hard step to take - change is so difficult - but it sounds like exactly the right thing to build up your strength and lift your morale.

    Then, you can search out other possibilities. After all, you would be following a tried and true CFS specialist who even said your life depends on eating well! What could be more important?

    Wondering how far your Dad got with arranging this through your CFS Dr. - also remembered your friend's daughter saying you could get someone in.

    How do you feel about getting a nurse in, Sparkles? Does it feel okay to you?

    With lots of love,
    Judy
  5. patches25

    patches25 New Member

    You can call the naturopaths office and ask for a brief consult so you can ask questions about what he can do for people with CFS. Or ask the receptionist if doctor gives talks locally that you can attend. Often some of these doctors will be giving talks to some group somewhere. I have attended a number of group meetings that I was not a part of so I could hear and get to know a professional.

    I have always found naturopaths easier to talk to than MD,s. Before I moved here I had one for my primary doctor. He ran CFS panels that no Md ever did. He geared his treatments to helping my body be stronger.

    Maybe, just maybe, you could take your dad along for the consult. And maybe, your dad would be willing to pay for part of your treatments. I really think your dad wants to help. And when a doctor says that we can help get a person healthier but there currently is no cure maybe your dad will see things differently about how to help. I am sure he loves you and just wants you to be well. E.
  6. Marta608

    Marta608 Member

    Most healers will do a consultation. I'd do that, then make up my mind whether or not I wanted to proceed.

    And, Shannon, don't do this to make your dad happy; do it for you if you choose to. If you get well, your dad will be happy. We tend to spend too much time trying to please other people and too little time taking care of us.

    Hugs,
    Marta
  7. Scapper

    Scapper New Member

    Are you unhappy with your current doctor?

    I remember you posting about being told you were malnourished. How are you doing with getting more food into your body?

    Please remember that if you do not eat enough to sustain you, you are never going to have the energy to heal. What you feel is enough food for you, may not be enough for your body. I'm just getting this from what you posted, so please do not think I'm coming out of nowhere. I also struggle with eating enough good food for my body, so I'm just concerned. I too think a protein shake should be enough for hours when it is NOT!!

    Are you still working with your nutritionist, or whomever that was who was advising you on food? I too do better with nutritional counseling.

    Sorry to take your post off in another direction. Your old post just sits in my mind, I think because I struggle with similar food issues, although I also tend to overeat on junk food, in addition to undereating at times. Food is a rough balance for me.

    I'd love to hear how you're doing nutritionally.

    scapper
  8. NanceZ

    NanceZ New Member

    I get more encouragement from my ND than anywhere else. He also made the most difference in how I felt/thought/ lived.......... I did have to change a lot of things pertaining to diet and lifestyle..... but over the three years (or is it 4 now?!) when I leave his office, i feel the most enthused, upbeat, and hopeful and with the knowing that i am and will get better (If I do the things he says to do!!).

    I see other docs as well for bits and pieces.

    I'd say go meet the person and then decide how you feel about him/her. if it is a life giving experience, then go for it.if it is simply spirit draining......then that tells you a lot.

    I sure understand about doctor fatigue!!!! and doc appointment fatigue..

    Blessings to you!
  9. Shannonsparkles

    Shannonsparkles New Member

    Dad asked his own ND about the new ND he told me about, and it turns out that he doesn't have a licence to practice naturopathy or anything else. He just advertises himself and gets away with it. In fact, Dad's ND is a member of a board that has been trying to shut this guy down.

    I'm not surprised, but I'm dissapointed. You're all right that I should take whatever help I can, and I was just getting psyched up about the idea of working with this guy before I found out he isn't for real.

    I called the number in his advertisements to find out more about the clinic. There was so much wrong with that call. First, he pracices from his home, and he doesn't have a website because, to quote whoever it was who took the call, "we keep having workmen come to hook up the internet but we're out in the country and they can never get it working so we keep calling them back, lots of problems but we're working on it..." (some rambling nonsense like that).

    I asked about an information package, and it became clear that it would just be the same stack of advertisements that dad had gotten. I started asking specific questions about what sort of treatments are used, and the lady kept saying to me, "Read the testimonials. Read them, they're real people, not made up." Not made up??? Like, come on! ;) She was also overly interested in finding out where I had heard about the "clinic" so that she could know "which advertisements were working."

    I asked about the man's experience treating CFS, and she said glibly, "Oh yes, that's very popular these days," Popular? And she didn't answer the question.

    And, what really settled things for me was that in the advertising, he called himself a naturopath and a phytotherapist. I tried to look him up on the internet, but not a trace of him, so I googled phytotherapy. The first thing that popped up was an ad for "earning" a diploma in phytotherapy over the internet. And the lady I talked to tried to pass it off as something new and cutting edge: "20 years ago no one heard about it, but now it's phyto-this and phyto-that..."

    Sigh!

    Well, I guess it's a reminder to be cautious.

    Thanks for the advice, everyone. I'm having an easier time getting food, because my family is helping more, and I'm relying more on fruit and raw vegetables for the times when I'm alone and can't cook. I get a fair portion of fish in each day. I still don't know if it's enough, but I think I'm managing. Bathing though... I would do just about anything to avoid having someone else bathe me. But I'm only managing to get that done two or three times a month.

    I did test positive for tick bacteria. I don't know if there are any lyme docs in Calgary. I really wonder about that. It seems like we have a high number of CFS cases here. Anyway. Lyme is supposed to be unknown in this province, so good luck finding someone to treat it, one doc told me (after roundly dismissing my lyme disease claim without testing me, never mind that I'm from B.C. lyme central).

    Thanks for the info about consultations. I didn't know NDs did that. Good way to sniff out a doc without commiting resources. :) Rickj44, I appreciate your warning. I'm getting fed up myself. I beleive in naturopathy, just not all naturopaths, if that makes sense. I'm not satisfied with the one that I have now, although she's helped me quite a bit. I may get a better one sometime.

    I've got to rest a bit. The last few days have been rough. The weather's acting up, and that seems to be part of it. Since childhood, I always got headaches before a storm. And I'm still having the sleep problem where I keep swinging forward in my bedtime by an hour or two every night, so I'm up till three or 4am now, and not sleeping well... I can't think for myself, so I have to rely on my dad for the doctor stuff. Is a GP the person to ask about sleeping problems? I don't know how the system works. We've tried to go natural the whole way, but so far, not a lot of progress. Well, some, but I keep hoping for something better.

    Thank you everyone.
    ((( ))) Shannon
  10. alaska3355

    alaska3355 New Member

    It sounds like your instincts were right...the new ND isn't what he's cracked up to be.

    On your sleep problems, I don't think a GP would be as much help as your CFS specialist would. Maybe you could call her up on the phone and not have to be seen. See if that works....Love, Terri