New Pain Doctor...

Discussion in 'Fibromyalgia Main Forum' started by LeightonLAM, Apr 6, 2007.

  1. LeightonLAM

    LeightonLAM New Member

    I am always nervous about going to see a new doctor. When something is working for me, they seem to have the overwhelming urge to change it.

    Yesterday I had my first appointment with a new pain doctor. The first thing that happened was when I was filling out all my paperwork there was a 2 page contract that I had to sign. It was a long list of things that I had to do to "participate" in their clinic and a huge list of "do and dont" rules. They were rules about never selling pain meds to others, dont give them to others, dont use any street drugs, be willing to participate in random urine drug tests, pick one pharmacy and always use only that one, never accept any pain meds from any other doctor, hospital, or clinic under any condition.

    It made me feel like I was signing into a rehab instead of a pain management clinic. As I was filling out my paperwork, 2 other patients got done and came out. They were both in tears and seemed distressed.

    When I finally got taken back (over an hour had passed since I finished the 45 minute paperwork) I was put into a room and the doctor came in after just a couple of minutes.

    He read my medical history and the first thing he told me was that it is hard to believe that a patient has Fibromyagia because the only diagnosing factors are the symptoms reported by the patient.

    Then he told me that he does not treat fibro with narcotics. I take Percocet everyday to keep my pain level down.

    Then he told me his treatment plan. He wanted to teach me how to COPE WITH the pain instead of finding ways to stop the pain. He said that I needed to learn to live with the pain.

    Needless to say that was both my first, and last appointment with this doctor. Does anyone else have this much trouble with pain clinics?
  2. PVLady

    PVLady New Member

    This does not sound like a pain doctor for you. If you are doing well with Percocet why upset your routine? If you are looking to learn how to "cope" that is different.

    No, my pain doctor does not have the same protocol. He definitely does use opiates if needed. He treats only pain patients and is very well versed in the meds.

    This new doctor of your already started out skeptical of your condition. Where does it go from here? You will wind up in more pain again and probably functioning less than now.

    As far as the paperwork, etc - that is common with pain doctors now because of their professional liability. If even one patient goes bad, they need to show they had these
    safeguards in place. Look at the doctor who prescribed all the meds to Anna Nicole Smith?

    Apparently she prescribed 11 different drugs and some were funneled through her boyfriend. If it weren't for bad doctors, the good ones would not have to do all this paperwork.

    Bottom line, follow your instinct. I have seen many doctors only once because I knew right off they were not for me. If you are in So. California I know a very good pain doctor.

  3. momof471

    momof471 New Member

    what he did about fibro, i would have hit the door! I will not go to someone for treatment who does not believe in what I have!

    God Bless
  4. tandy

    tandy New Member

    I agree 110% !!
    If our pain can be mananged without narcotics,... thats great~ But if it can't,..?
    we should'nt be denied pain relief. I don't care if it is a lifelong illness.
    Mnay of us don't have the option.

    Many drs. will not prescribe opiates for FM.
    Many of us NEED them to control our pain.
    (when all else has failed)

  5. obrnlc

    obrnlc New Member

    hi leigh,
    how can this guy call himself pain management, UNLESS--he was just testing you to make sure you weren't drug seeking. since he had you fill out the contract before he saw you, he obviously prescribes opiates, at least for somethings.
    the reality is that fibro is a "junkie's dream" and many of them use it to get drugs, since it is so hard to prove.(and when caught--they should be lynched, but that is another subject)
    this makes it as hard for the docs to weed them out as it does for us to get any respect, and these people destroy our credibility also.
    i don't agree that taking opiates destroys your quality of life, it is what has helped me HAVE a quality of life, to enjoy my grandbaby, occas. do some housework, and be able to do most anythingthat i can do. i do feel great in hot water (bath, warm pool, hot tub--i use all 3 ALOT), but you do occasionally have to get out to function, and if alot of non narcotic options work for you, WONDERFUL, and it is helpful to have them listed as options to try, but if percocet helps you have a quality of life, then thank God for it.

    I think most pain docs feel better when they have a referral from a reputable doc. that they know treats fibro or other chronic pain issues, it helps to weed out the drug seekers, so if your doc that prescribes the percocet can drop this guy a referral, it could help.

    it is awful that we have to be treated this way because of all of the drug abusers in our society, but prescr. drug abuse is SO high (very bad where i am from) that the abusers know all of the tricks, and its often easier for them than for us honest patients to get meds.

    good luck--L
  6. debhun

    debhun New Member

    I think obrnlc is right. It may be away to see if you truly in pain or not. I would try going back just to see what happens. It would hurt. I had been to one PM Dr. But she didn't treat FM but she was up front with me. I am now trying to get into one about 2 hours from here. There is only 3 citys in NC that treat FM at a PM center.

    I wish you luck
  7. Lendy5

    Lendy5 New Member

    leightonlam - I am so sorry this has happened to you because I have been there one time to many. I agree move on to another because that doctor is a jerk but since you signed this contract please do not notify the next doctor you see of this because they will not treat you and contact that pain clinic regardless you have chosen not to go back.

    This happened to me several years ago and I had went to our local pain clinic and signed a one year contract and then I realized they didn't treat fibro so I moved on and mentioned I was previously a pain clinic patient and they said I couldn't get a script from anywhere as long as that contract was in place.

    Check to see if you can void that contract if possible and make some calls to other doctors and interview them over the phone. You are paying them not the other way around. You don't have to be treated that way, there are more doctors out there that will listen and work with you.

    I take a narcotic pain reliever and I have suffered from Fibromyalgia for at least ten plus years and I am also married with three kids. I would not say I enjoy taking a narcotic pain reliever but to have some quality of life I have no other choice. Yes narcotics do numb the brain receptors but I say if it works then stick with it. Everyone is different.

    Good Luck with your search and keep us posted when you can.

  8. suzette1954

    suzette1954 New Member

    My rheumy tried to send me to one mths ago. My husband had told me to ask the dr if there wasnt something stronger that I could take for the terrible pain and when I ask him that, his whole demeaner changed. He told me Im addicted to the darvocet and loratab and he was going to send me to a pain clinic.

    My PCP said he wasnt ready to send me some where else yet. He wanted the rheumy to work with me. Its been a mess. I took my husband with me to my last visit and the rheumy still acted like Ive got a drug problem. He asked if we have children in our home and how long I had been seeing my PCP and alot of other questions and then said he wasnt going to give me anything stronger then what Im on.

    Im sorry for what happened to you. That's what Im afraid of too.

  9. LeightonLAM

    LeightonLAM New Member

    One thing I would like to clear up is that like some of you who responded, the narcotic pain meds GIVE me a quality of life. I have a 3 year old, a 2 year old, and a 1 year old. I am 29 years old. I am in constant pain and cant even pick up my children or unscrew the cover of a sippy cup without help. When I take 1 or 2 Percocet in the morning upon waking it gives me pain relief that lasts most of the day. I then take 1 or 2 more in the early evening to help reduce the pain again and get me through dinner and have relief until I go to bed.

    I fully understand the concept of coping with the pain. I have learned to cope over the last couple of years. I have a fairly high pain tolerance now because I am used to my body being in pain all the time so when something goes wrong it doesnt feel much worse.

    I also use hot baths, epsom salts, heating pads to help with the pain. I even keep a couple of thermacare pads in my purse all the time. They are great when I start feeling pain when I am not home and need the heat.

    I have gotten the contract with the pain doctor voided out already. (I did this before I even left the office) I was that sure that I didnt want to go back to him. It wasnt even the narcotics that he didnt want to prescribe. He also told me that he would not refill my Lidoderm patches either.

  10. tandy

    tandy New Member

    after my 1st visit/evaluation,...
    the pain dr. said " Generally we don't treat Fibro with narcotics because they simply don't work on FM pain"

    I knew then I was screwed.
    My Rhuemy gives me Ultram. They don't help me.

    I'm thinking about trying another pain dr. but its an hr or more drive. UUGGHH! driving/traveling is extremely hard on me.
    Is it worth the trip? to get shot down again?

    plus I'm so tired of feeling afraid to ask for pain relief/meds.

    I dull my pain with OTC tylenol

    Best of Luck to you~
  11. kat1957

    kat1957 New Member

    I read once in the Fibro Newsletter where a Dr. (can't remember his name) was talking about pain meds and how so many Drs will not give them to their patients who have Fibro or non-terminal illnesses. He said that his oath said to "do no harm" and to him that meant NOT allowing his patients to suffer needlessly and by denying them pain meds when they so obviously needed them these Drs WERE doing harm!

    Sure if someone can do without narcotics that is great. I managed for 10+ years with muscle relaxers, tylenol or ibupropen but when the nerve pain started? I couldn't do it. I have said if I had to live in that kind of pain with no relief I would prefer to not live. Many of us are in this situation and the only bit of quality we get out of life is because we have a compassionate Dr who will give us those meds. I had one idiot Dr tell me once to "just take tylenol all day long." Made it sound like I should be popping them constantly! Uh, isn't that harmful???

    OP, I hope you can work this out.

  12. California31

    California31 New Member

    Pain begets pain....and breaking the cycle is very important in FM....any real specialist knows this...keep searching. Good luck. I had great sucess with a pain specialist...who was amazing...used alternative as well as general medical protocols.

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