New Symptom == Severe Pain On the BOTTOM Of FEET

Discussion in 'Fibromyalgia Main Forum' started by S-Elaine, May 3, 2012.

  1. S-Elaine

    S-Elaine Member


    I've recently been experiencing severe pain on the bottom of my feet.

    The pain will radiate up and hurt right above my knees. It is difficult to stand & now feels like my body is putting too much pressure on my feet.

    This is a new symptom for me.

    I've had Fibromyalgia & CFS for 12 years and never had this problem.

    I'm thin so it is not a weight issue. I will be seeing my FMS Specialist tomorrow & we will address it.

    I been trying to search for the "culprit" & read as much as I can about this particular symptom ...... but so far I've haven't found anything.

    Just bought today a pair of Triad Orthodic Profoot (that support your heel, arch & ball-of-foot) pads & it slightly helps a bit.

    Having the arch of my foot elevated due to these foot pads, makes a slight difference ..... but standing is extremely painful.

    Anyone know something about this?? What it is & suggesting on what can help?

    I'd welcome all types of input.


    == Elaine
  2. Nanie46

    Nanie46 Moderator

    Foot pain can be associated with chronic Bartonella infection, a very common infection which can also cause fatigue, pain in other places, anxiety, depression, etc.

    It can be spread by fleas, ticks, cats.
  3. deepak

    deepak Member


    Have you heard of SPIRO made by Raintree nutrition - a herbal thing supposted to cure Lymes. Seems interesting.

  4. mbofov

    mbofov Active Member

    Pantothenic acid deficiency can cause pain and a burning sensation on the bottom of the feet. Many years I was experiencing this, and just thought, what now! always something weird. and then happened upon an Adelle Davis book in which she described this symptom associated with pantothenic acid deficinecy.

    Pantothenic acid is one of the B vitamins and is crucial for adrenal health, so if your adrenals are weak or depleted, you may very well have a pantothenic acid deficiency.

    As I recall though my pain did not radiate up to my knees but you might try taking some pantothenic acid - it's cheap and you'll find out relatively quickly if it helps.

  5. Saoirse3

    Saoirse3 Member

    But I have diabetes and along with it came neuropathy. I get burning sensations in my arms and feet when my blood sugars spike. Have you had any cortisone injections lately? These can cause blood sugar to rise, even in non-diabetics and if it rises and falls too fast, this can cause the burning.

    Also you might want to check for bone spurs or plantar fascitis. Those make you feel like you're walking on flaming glass.

    If it's neither, then I use organic coconut oil on my feet and it seems to help quite a bit. Hope this helps and I hope you feel better!

    Soft hugs,
  6. Nanie46

    Nanie46 Moderator


    No, I have not heard of SPIRO made by Raintree nutrition.

    I would be curious to read more about it though.

    Where did you hear that it could cure Lyme Disease?

    If you can point me to any info I would like to read it.

    Thanks, deepak!
  7. lilaclover30

    lilaclover30 New Member

    I have spinal stenosis and a very bad knee. The Ortho. said this awful pain in feet---burning----, leg hurting up to groin is all caused by lower back stenosis. that's not much help but I can know what you are feeling.

    Sorry Elaine. You don't need that to everthing else.

    Gentle Hugs to you,

  8. deepak

    deepak Member

    Since we not allowed to post URLs here, what you can do is - just google " Spiro raintree lyme " and you will find it.

    I am not sure exactly what my diagnosis is but since it started with a raised esonophilia count which could be an indication of spirochetes , I am thinking of trying it.

    With love,
  9. newmyers06

    newmyers06 New Member

    My brother has pain like this. He was basically bedridden for 18 mos. He was just recently dx with SMALL nerve neuropathy... hence no numbness, just pain. He is taking Zonisamide after 45 days he is able to walk without a cane!
  10. Nanie46

    Nanie46 Moderator

    Thanks, deepak, I'll check it out!!
  11. S-Elaine

    S-Elaine Member

    Hi everyone!

    I appreciate all of the replies & suggestions. It’s helpful to get this type of feedback because it brings up many issues and areas of where the foot pain can be coming from.

    Gives me more things to investigate too.

    ****Chronic Bartonella Infection is referenced in the book I have. I’ll continue to keep that in mind & add it to my list for further investigation. When I see my doctor I will bring up my other concerns.

    ****SPIRO made by Raintree nutrition / herbal. Thank you. I will look into it!

    ****Pantothenic acid is one of the B vitamins, is crucial for adrenal health. YES it certainly is. I take it, but my doctor wants me to increase it.

    ****Diabetes, I’ve been checked for this multiple times. My doctor did examine my feet to check for bone spurs or plantar fascitis. Nothing visible. Organic coconut oil is something I will definitely try. Thanks!

    **** Blood Sugar Levels --- I am going to ask my doctor to double check on that & get new blood work done. We must recheck EVERYTHING. No stone will be left “unturned” ….. or UNTOSSED!!

    ****Reflexology I read about that and may pursue it.

    ****Lower Back Stenosis. Interesting because that just jogged my memory of the MRI they did on my Lumbar Spine. I will bring that up to the doctor & give him the report again to review. ~~** HUGS to you LILAC! **~~

    ****LEAH / Freida …. I know how important it is to get this fixed because we were on our ROAD TRIP!!

    ****Zonisamide. I will investigate this & discuss with my Doctor.

    I had my appointment with my FMS Specialist & this is what we are doing.

    == Foot pain is due to the nerves in my feet.

    == I told him just by standing in front of the mirror putting on some make up within 5 minutes the pain became so incredibly intense. If I didn’t have a doctor’s appointment I would have needed to lie down to alleviate the pain.

    == He suggested testing for Neuropathy & I reminded him we did that a little less than 1 year ago & the test results were …… NO.

    == He checked my file, re-read the report & no I do not have Neuropathy.

    == Lymes, I was checked for that last year when I had the “burning pain in my legs & ankles”. Also water retention was occurring. (I could bring this up to my Doctor, so I’ll add it to my LIST.)

    == Arthritis was also checked at the time too because my Father had it throughout his entire body.

    == The Intense pain from the soles of my feet radiates upwards to right above my knee. I can FEEL it. It goes up into the back of my legs (thighs) and it ends at the very lower portion of my back.

    == That helped my doctor narrow it down. It is nerve related and possibly could be from my lower back.

    == Without knowing what is the specific cause (for right now) we need to treat the pain because it has consumed my life & drastically restricts me from what I can do.

    == Vitamin B12, yes I do take it. My doctor wants me to increase the dosage & also take vitamin B to cover all areas.

    == Increase my Gabapentin (Neurontin) to 4 times a day. 1 in the AM, 1 Afternoon, 2 Nightly.

    == Discontinue taking the Reglan (Metoclopram). I may be dealing with the side effects of that medication. Possibly water retention, pain in my knees, then feet. This is a NEW SYMPTOM of the pain on the SOLES of my FEET and I started on the medication 7 weeks ago.

    == Restarted my Furosemide “water retention” medication along with Potassium. Just 3 days only. Already I visibly see the difference & FEEL it in my legs & feet!!

    == Doctor wants to see me back in 5 days.

    == Asked me to still continue with some form of gentle, mild exercise because he doesn’t want me to take a break from exercising again. I restarted it and had a good 3 weeks in ….. until this.

    == Today, I FEEL relief from the pain in my feet.

    == DIAGNOSIS ==== It is Fibromyalgia “nerve related”. It may be a new symptom for me. Unsure at the moment. With the changes my Doctor is making, time will tell. Increasing my Neurontin may possibly resolve it.

    == Discontinue my Reglan & increase my Vitamin B.

    Luckily this was caught pretty early on.

    Last year I went through so much. In & out of the Hospital, Emergency Rooms and too much of my life revolving around medical issues.

    I suspected “water retention” because I can feel it …… “ripping at your skin”.

    So ….. that is the update for now.

    When my Doctor sees me next depending on my symptoms at that time, he will be able to narrow it down more and find out WHAT IS / WAS CAUSING it.

    I do what to emphasize 2 important areas:

    1. Vitamins your body needs. This is key. Please make sure your body is getting the appropriate amount. Being deficient in 1 area can cause big problems for us.

    2. Pay close attention to changes when you start a new medication. Write down the symptoms. Keep a list and continue to add to it. That is helpful for your doctor’s appointment & you won’t forget to tell him something which could be very important to them.

    Thank you everyone for your replies. It is great to have this type of exchange of critical medical information.

    Everyone’s input is so valuable. Especially if someone has already dealt with this & it helps point us into the right direction.

    I’m grateful to all of you and feel LUCKY to be part of this Medical Message Board.

    Thank you for the “WELL WISHES!”

    == Elaine ….. (I’ll be back!)
  12. MicheleK

    MicheleK Member

    Hi Elaine, I have just read your initial post, the replies and then your doctor visit post. I am very glad your doctor is on the ball.

    Pain in feet or anywhere nerves go (basically everywhere) is a VERY common side effect of FM. And the thing is just because you have the symptom for a few days doesn't mean this is a new symptom you are going to have to deal with everyday like you do the regular pain of FM. Nerve pain will vary even minute to minute, day to day, week to week, etc.

    The reason is that the autonomic nervous system is in a state of dysfunction with FM. This has been coming out in research the past couple years and more research is on it's way. What once was thought of a muscle/skeletal disease is now being seen as a neuroimmune disease!

    With a neuroimmune disease your central nervous system, sympathetic nervous system and autonomic nervous system can all be affected as I said without any predictable pattern. Knowing this can help ease the fears that come up with a new and seemingly strange symptom. Of course it is always good to let your FM doctor know when a new symptom arises and get checked out which you did. Good for you!

    I hope this symptom will go away just as quickly as it appeared.

  13. S-Elaine

    S-Elaine Member


    Thanks so much for your reply. It is helpful.

    Yes, I now understand “nerve pain” can be present any where in your body. The explanation makes sense.

    I still have it in my Left leg & it hits right behind my knee. I keep stretching my leg, hoping to alleviate the pain. Unfortunately, that is not helping it too much.

    Do you know how it is treated??

    My FMS Doctor increased my Neurontin dosage & I was hoping for “permanent” results. Yesterday I had no nerve pain. Today I do.

    I’d describe it as …… “very bad burning, continual, constant, throbbing pain, jabbing, feeling like an animal has its mouth & teeth around my leg & is eating at my flesh!”.

    A pain that is very different than my normal Fibromyalgia pain.

    I have nothing else to take other than Neurontin. I’d imagine my doctor will have to adjust the dosage until we can get it under better control ….. so it is not as intrusive in my day in / day out life.

    Lyrica ….. I was previously on that. It was discontinued because at the highest dosage, it wasn’t helping in the way it should & side effects eventually came along with it.

    Any thought?

    I’d welcome all comments, ideas, input. Thank you as they would be helpful on my ….. “Once Again SEARCH for improvement”!

    == Elaine
  14. S-Elaine

    S-Elaine Member


    From what I know, we have "nerve endings" every where on our bodies & they can be more "sensitive" in some areas.

    EXAMPLE: I was having breathing problems anytime I went into our basement because we had slight mildew & a “musty” smell.

    This would only happen to me when I went downstairs in our house.

    I had all of the Thorough Allergy testing done & the results showed up as ----- not allergic to anything.

    The Allergist explained it to me this way: People who have Fibromyalgia can be sensitive to lights, sound, noise.

    YES, I AM!

    His reply was …… but that does not mean you are ALLERGIC to light or ALLERGIC to the sound of music.

    NO, I’M NOT.

    It is our “nerve endings” that are throughout our entire bodies that can be more “sensitive” to us & not affect other people at all. There are nerve endings in your / my nose that are more sensitive to just the smell of something slightly musty & it causes me to have a REACTION of difficultly with breathing & basically a PANIC like reaction …… which was causing me to “hyper ventilate”, lose oxygen, become unable to walk, disoriented and difficulty speaking.

    When it would happen, I’d RUN out of the house & the symptoms would subside.

    We had the basement cleaned & everything dis-infected & I have no problems with being in that area of the house any more.

    The Allergy Specialist did give me a …. Nasal spray that I will use periodically if I start to get a continual congestion & runny nose.


    Basically, what I am saying is ----- our “nerve endings” can be sensitive & triggered anywhere without there being a definitive / medically known cause.

    PHERIPHIAL NEUROPATHY ===== I was tested for that & the results were negative. No, I do not have Neuropathy.

    However, it seems like “something” was triggering the “nerve endings” in my feet like that & it still is in my left knee today.

    I honestly believe it was due to the side effects of the medication …… Reglan.

    It was causing water retention & triggering the nerves in my feet. So it is appearing to me, mine was medication related basically & causing pain in my legs, feet.

    Water Retention is a bad culprit as well. That has subsided for me.

    When I see my Doctor on Wednesday, we will address the pain in my left knee & discuss an alternative medication (if any) to replace the Reglan, which was helping my intestines / digestive system.

    Unfortunately, now I am having problems with eating & food again because I’m not on the Reglan.

    I will continue to add to this post where this ends up leading me.

    My goal is to get back to exercising & balance my life out again filled with work, activities, & all of the things that everyone else in life usually manages.

    Hope that helps.

    == Elaine
  15. MicheleK

    MicheleK Member

    I have never been on neurontin but when I get that pain on the bottom of my feet, I take oxycodone or tramadol. And I make sure to take it every 4 hours or if it's really bad every 3 hours.
    I hope the pain just goes away for you and gives you a break.
  16. S-Elaine

    S-Elaine Member


    I was referred to a Neurologist for the Neuropathy testing. I had an MRI of my Lumbar Spine first.

    Here you go, I looked it up & found this information. I will paste it in below because it was the test they did for me.

    Before diagnosing peripheral neuropathy, your physician will review your medical history and conduct a physical exam and neurological evaluation.

    A neurological evaluation, which consists of a number of simple and painless tests, is usually performed to diagnose peripheral neuropathy. Depending on your symptoms and outcome of the neurological evaluation, you may encounter other tests that can determine what type of peripheral neuropathy you have.

    Electromyography (EMG)
    What is it?

    An electromyogram (EMG) is a test that measures the electrical activity of a muscle. It detects any signs of blocking or slowing down of responses to nerve stimulation. The test provides information about the muscle itself and shows how well it receives stimulation from the nerve. A nerve conduction velocity (NCV) test is often done at the same time as an EMG.
    Why should I do it?

    An EMG is often used to evaluate unexplained muscle weakness, twitching or paralysis, and to find the causes of numbness, tingling and pain. EMG testing can differentiate between true weakness and reduced use because of pain or lack of motivation. It can also determine whether a muscle disorder begins in the muscle itself or is caused by a nerve disorder.
    How is it performed?

    In an EMG, a physician or technician inserts a very fine needle, which serves as an electrode, through the skin into the muscle. With the electrode in place, the patient is asked to slowly contract the muscle—for example, by bending the arm—with gradually increasing force, while the electrical activity is being recorded. The activity can be displayed visually on an oscilloscope or screen, or played audibly through a speaker. The results can provide information about the ability of the muscle to respond to nerve stimulation.
    How will it feel?

    The patient may feel some minor discomfort, similar to an injection, when the needle or needles are inserted. Afterward, the examined muscle may feel tender or sore for a few days, and there may be a small bruise.


    MICHELEK ===== Thanks for letting me know what you take. Oxycodone does not help, as I already tried. I will ask my doctor about the other medication mentioned ~~~ especially since I saw another reply with that exact medication.

    My appointment is tomorrow ..... so I'm hoping all goes well.

    HUGS to ALL,
    == Elaine
  17. pogwarden

    pogwarden New Member

    After reading through everything here plus the visit to your doctor, you sure received a lot of information. One thing that I didn't see mentioned is "Plantar Fasciitis" (Wikipedia search for same)

    My wife fought with that for a long time. Pain across the bottom of your foot. Can get so tender the pain climbs the leg.

    Anyway, just tossing my two cents in. :)

    Get feeling better. Be Happy :) And do fun things twice. Its a Rule you know.

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